Posted By Posting
Oct 21, 2008
evan's dad
Evan born Sept. 4, 2008. 10.2 lbs Dx Reflux
Newborn with Reflux
My newborn son has severe reflux and won't eat on his own. He has been in the NICU for 6 weeks and the doctors have tried many different things to calm the refulx. We have decided to have a G tube inserted so we can get him home and start our new sense of normal. Any thoughts or concerns with having a G tube in this condition would be greatly appreciated.
Oct 21, 2008
amber f
I have no experience with a G tube but others here do. I just want to say welcome to the forum. It is a great source of info and support. Good luck. I hope the G tube helps. Amber F
Oct 21, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
Welcome. What kind of G tube are you getting?? We have a MicKey. It was astraight insertion. Menaing we never ahd the long PEG tube ever. Not all hpsotals do that. The vast majority will do a PEG first to make sure the tract in the stoma gets healed real well first.

Have you even seen a G tube in a child before???? I can try to get some pictures of Jedd up for you.

Also I would not try to let them talk you into doing a FUNDO at the same time. WAIT on that.....as long as you are getting the G that gives you more options with the reflux later. Like advancing that G to a GJ to bypass the stomach and reduce blue aspriation spells.

Alot to take in I know. Here is a link to some pictures....

http://parent-2-parent.com/forum/showthread.php?t=109947

My Jedd is post #7!!!! He is MUCH MUCH bigger than that now...He turned 2 yesterday.

Let me know if you can't see the pictures. I am pretty sure you will have acess to that thread. It also has a TON of info on how others had thiers placed which will answer tons of your questions.

Oct 21, 2008
evan's dad
Evan born Sept. 4, 2008. 10.2 lbs Dx Reflux
Thanks for the response. Evan will be getting the PEG first and then going to the Mic-key if necessary. The Fundo has not been discussed. Evan is only 6 weeks old and I'm not sure how young they do that procedure.
Oct 21, 2008
engin117
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including engi.nowaira.net, engi@nowaira.net, Engi@nowaira.us, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
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I cannot tell u anything about G-tube, but hope u get the answers u r looking for. We used NG for about 6 weeks I think. I am sorry your little one is having a tough time.
Oct 21, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
Yes, I have heard of Mothers and Fathers being todl that IF they want their child to go home form the hosoptial they were required to do a FUNDO. So I was just giving you a heads up incase you wre told that. I know some kids who had them done at that age, yes.
Oct 21, 2008
stickybean
I am Jacky, mommy to Joslyn Olivia (April 2008) and Katelyn Isabel (November 2009).
Joslyn was dx'ed with Silent Reflux with breath apnea at 5 days old. VERY SCARY!
Katelyn is a spitter reflux baby. Started at 3 days old as well. (Both were/are breast fed.. symptoms came on when my milk came in).
Joslyn has been reflux free since she was 12 months (suffered poor weight gain for a few months) and Katelyn is now on Zantac... waiting to see if it works.
welcome to the pager forum. I am so sorry you are going through this. I have no experience with feeding tubes....... but i know alot of mommies here do. I wish you much luck
Oct 21, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
Photobucket
Yikes! Sorry he has to go thru this (and you)! From what I hear other parents say, going to the g will be easier in the long run than keeping a ng long-term. Hopefully he won't have so much oral aversion later on, as he might with a long-term ng. My dd was on ng for 6 weeks while inpatient, and even with the nurses taking care of it it was super hard seeing her fighting them as they changed it, and the raw skin on her face....and that was only 6 weeks so I can't imagine longer! When she was older and inpatient again it was way worse...the bigger they are the harder they can fight and it was heartbreaking!

i have been posting here for over a year and everyone is so great....I have never been part of a more supportive forum! So welcome, even though the circumstances SUCK. let us know when he is having his surgery and when he gets to come home.

Oct 22, 2008
blueleopard
Pictured: G'mom w/3 kids. I'm mom to 1 angel Melissa (dec'd 11/92 - hypoplastic left-heart syn.)
2 healthy daughters (knock wood) Cory (16), Kim (11) & Eric (4) diagnosed with e.e. (scoped 8/08), GERD & severe food/seasonal allergies, asthma. Cried non-stop first 17 mths. of life Found out he is allergic to cow's milk, soy, eggs, and peanuts. Takes Prevacid, Neocate One Plus & Flovent.
My only thought....which may or may not apply to you......any chance of a milk allergy? Allergies/asthma/eczema on either side of the family. A very well-known hospital missed this in my son & did a surgery on him at two weeks of age which was totally unneccessary. All they had to do was try him on Neocate. Soy formula wouldn't have worked as he had a soy allergy as well. In any case, let us know how he is doing. Ellen
Oct 22, 2008
evan's dad
Evan born Sept. 4, 2008. 10.2 lbs Dx Reflux
Allergy
Evan has been fed Mom's milk since birth and she is not much of a dairy consumer but the medical staff has been supplementing calories to lower the amount of liquid Evan has to consume. Evan has had consumption issues even in utero (mom had polyhydramneous) so I'm not sure an allergy exists. It is something I will ask. The reason we are getting the G tube is that he'll only nipple a very labored 10ml. The medical staff has tried to remove the NG for a day to see if he will eat due to hunger but that didn't work and actually caused more aversion. Hope the G tube gives his throat time to heal and he will start to enjoy eating?????
Oct 23, 2008
mom2coy
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
have they checked for tongue tie or other abnormaliites? any swallow study done? where in US are yoU?
Check with your
doctor first!