Posted By Posting
Oct 18, 2008
p3
nexium
Has anyone tried nexium yet for kids long-term and any side-effects noticed? I have a 3 y/o girl who was diagnosed with AR at 6 weeks. She has been on prevacid and carafete most of her life. Recently, I noticed a potential side-effect of the prevacid. An hour after prevacid, she told me the room was spinning and had a staring spell where she was non-resposive about 30 seconds and not fully aware of her surroundings for about 10 minutes afterwards. I called 911 and her oxygen, heart rate and blood sugar ok. Took her to ER and heat CT was normal. It was VERy SCARY!! The next night, around the same time, she was blinking rapidly about 15 seconds. She was also crankier than normal a few days before these episodes. She is scheduled for an EEg this week. My GI and Ped are skeptical about prevacid being the cause, but since there are no long-term studies on kids, I took her off the prevacid. She was doing ok for about 2 weeks, but now has a sore throat everyday several times a day. BTW, no blinking or staring episodes since off prevacid. I don't want to put her back on, but she defineatly needs some type of medication to help her. I'd appreciate any suggestions or input. THanks, Molly (Phoebe's mom)
Oct 19, 2008
jan gambino burns
Jan Gambino, M.Ed
The Reflux Mom
P.O. Box 171
Arnold, Maryland
21012 USA
Mom to Rebecca: reflux and asthma, post nissen fundo, post g tube, post FTT and Jenna: reflux, asthma and POTS.
Author of Reflux 101: A Parent's Guide to Gastroesophageal Reflux.
http://www.lulu.com/content/4999931
Blog: www.healthcentral.com/acid-reflux/c/96
Hello Phoebe's Mom, What a scary experience-you did the right thing calling 911 and having her evaluated. It sounds like the doctors are taking steps to rule out all reasons for the staring episodes. Certainly they need to rule out seizures as the cause. After that, I am sure they will investigate other reasons for the blinking episodes, including the medication. Each person responds to medication differently. While there are documented side effects for all medications, I know from my own kids that it is possible to have rare and unusual side effects too. My daughter always had the "rare" side effects and the doctors were skeptical of my theories about this! Nexium, like Prevacid is a brand name for the class of medications called Proton Pump Inhibitors or PPI's. Even though the meds are very similar, some people react differently to different brands. You can certainly ask the doctor if Nexium or Prilosec would be worth a try. If PPI's in general don't agree with Phoebe, it might be necessary to try another class of medications such as an acid reducer. BTW: Some adults have told me about sensory/headache/ neurological symptoms from some of the reflux medications. Hang in there- Jan Gambino The Reflux Mom
Oct 19, 2008
p3
Jan, Thanks for your response. My little one is such a trooper. She has had only carafete for almost a month now. I spoke with her peds GI and he suggested trying Nexium. He did not think the prevacid caused the episode since she has been on it a long time, but was not against her trying a different med. He agreed we could try taking her off meds a little bit a see how she does, but that's not working for her. I also spoke to the pharmacist who told me the powder that she uses to mix the compound changed this year. (We started out with compound when she was an infant and did not switch when the solutabs came out. Phoebe tried the 1/2 crushed tablet in water with syringe one time, then completely resisted taking it, so we stuck with the compound.) The other night she was having trouble falling asleep, so the next morning, I gave her prevacid. She did not get the entire dose. About 2 hours later, she finished eating and seemed a bit out of it. She did not have a staring episode like before, but she mixed up 2 words and seemed tired all the sudden and grabbing onto me to hold her. When she had the staring episode before, she also mixed up 2 words. That is it for Prevacid for us! My concern about Nexium is that it was just approved this year for kids her age. I'm calling her GI on MOnday to discuss options and she has an appointment with him next week. She is still eating, but smaller amounts more frequently. She asks for ice cream alot and says she has a "bee" in her throat. She tells me the ice cream makes the bee go away. The "bee" seems to be with her everyday for most of the day. She is allergic to dairy, eggs and peanuts, so her ice cream is soy, of course. Her reflux seems to have improved a bit, since she still is able to eat, but she defineatly needs some meds to help her with that pesky "bee" that keeps showing up. I'm still waiting for that day that she is supposed to grow out of her AR. BTW, her eeg is this Wednesday, if she cooperates.
Oct 19, 2008
jan gambino burns
Jan Gambino, M.Ed
The Reflux Mom
P.O. Box 171
Arnold, Maryland
21012 USA
Mom to Rebecca: reflux and asthma, post nissen fundo, post g tube, post FTT and Jenna: reflux, asthma and POTS.
Author of Reflux 101: A Parent's Guide to Gastroesophageal Reflux.
http://www.lulu.com/content/4999931
Blog: www.healthcentral.com/acid-reflux/c/96
Oh yes...must get rid of the bee. I love it when the little ones can describe what it feels like and think of words to go with the symptoms. I know a little girl who said she had a crumb in her throat. My daughter wasn't too creative and just belched or stood on her chair and made a grand announcement after each meal "I just refluxed!!". With the history of food allergies and this pattern of reaction to the prevacid, I wonder if a food allergist may be of assistance. Could there be a trace of some offending ingredient? New emerging allergy? I know you have a big list of questions for the doctor. I would be curious if Nexium and Prevacid are so similar that there would be a risk of a similar reaction. What other medication options are available?H2 Blocker? Good luck as you search for answers. I know you will figure this out! Jan Gambino The Reflux Mom
Oct 20, 2008
p3
Yes, i am concerned about giving her Nexium and would be willing to try an H2 blocker. I left a message with her peds GI nurse today and hope to get an answer tomarrow. It seems she's had some improvement in her reflux since she has been able to eat with adjustments to her regular habits, and has not lost weight. I have noticed some foods seem to make her feel worse, in particular chicken tenders. Her food repretoire is limited, but I probably need to eliminate them and try some other protein sources. She ate well tonight and loves tofu. Its not easy to get her to try new foods. Her blood test last year was negative for wheat, however, I have two relatives with celiac; a first cousin and aunt. I'm not ready to go down the wheat-free road yet though. Wheat bread and pasta are big staples for her, but I will discuss it with her GI next week. THank you so much for responding and giving me feedback. It really helps since I've been feeling pretty stressed out lately. I hope all is well with your little refluxers. As a read other postings I realize our situation is much more managable than others. It seems reflux kids and their parents are a resilient bunch.
Oct 21, 2008
jan gambino burns
Jan Gambino, M.Ed
The Reflux Mom
P.O. Box 171
Arnold, Maryland
21012 USA
Mom to Rebecca: reflux and asthma, post nissen fundo, post g tube, post FTT and Jenna: reflux, asthma and POTS.
Author of Reflux 101: A Parent's Guide to Gastroesophageal Reflux.
http://www.lulu.com/content/4999931
Blog: www.healthcentral.com/acid-reflux/c/96
Hello! I am wondering why chicken tenders would trigger reflux. In light of the fact that Phoebe has a history of food allergies, I am wondering if there many be a hidden ingredient in the medication/foods that is triggering the symptoms you are seeing, including the scary reaction to Prevacid. Are you working with a food allergist at this point? Feeling stressed is part of the parenting package deal with GERD. It is important to have a network of support. Too much for one mommy to do all alone! Jan
Oct 23, 2008
p3
HI jan Phoebe has seen an allergist and was tested for some food allergies last year. I talked to a dietician I know and she told me chicken tenders can contribute to reflux because they often have pepper in them. She eats the Tyson brand only. She does not eat fast food and I avoid food with preservatives and dyes. She does not eat candy of any kind and I am vigilant about reading labels. i do give in when it comes to chocolate though(non-dairy). She has her well check in a few weeks, so we may test her for a few more foods at that time. She seemed to be doing well until the episode last month. I wonder about the prevacid because I believe the powder and solu-tabs contain aspartame as a sweetener. I've read quite a bit of negative & scary info about aspartame and I myself avoid it. I know its probably a small amount, but a small amount everyday adds up. She has had quite a few colds this fall too and our weather has been uncomfortably dry possibly contributing to her constant sore throat. In fact, she just came down with another cold last night. On the postive side, the bee is gone!! I finally reached her GI doctor and he prescribed zantac. It really seems to help her, but she hates the taste and it is a battle to get it in. She had her EEG yesterday and we have an appointment with the peds Neuro tomarrow to get the results. We managed to do the EEG without sedation. I deprived her of some sleep, gave her a dose of benedryl and bribed her with a reward. She was surprisingly cooperative and finally fell asleep after about 30 minutes. I really did not want her sedated on IV meds. She also has a F/U appt. with her peds GI next week. BTW, I do manage to get support from my friends and family. I'm quite good at venting, however, most of them don't really understand how stressful it can be. All the same, they listen, which helps alot. Thank you for all of your input and supportive words. I'll let you know how her appt. goes tomarrow. Hope all is well on your end. MOlly
Oct 26, 2008
jan gambino burns
Jan Gambino, M.Ed
The Reflux Mom
P.O. Box 171
Arnold, Maryland
21012 USA
Mom to Rebecca: reflux and asthma, post nissen fundo, post g tube, post FTT and Jenna: reflux, asthma and POTS.
Author of Reflux 101: A Parent's Guide to Gastroesophageal Reflux.
http://www.lulu.com/content/4999931
Blog: www.healthcentral.com/acid-reflux/c/96
Hello! Sounds like you are making some progress in your detective work! I am so glad the bee is gone. Wonderful she is tolerating Zantac. You might want to ask the pharmacist about flavoring it with FlavorX or a similar flavoring system. Don't worry-the flavorings they use are non-allergic. check out the website for info. I am glad the EEG is done-good work on getting her through it! I wonder about the aspartame connection. If she is sensitive to pepper in a chicken nugget, a whiff of a hidden ingredient may be too much for her. You may even have to be super careful about toothpaste, body lotion, laundry detergent, etc. Good luck, Jan Gambino The Reflux Mom
Oct 28, 2008
p3
Yes, I do think I need to be very careful about many products I use with Phoebe. Thanks for the info. about flavoring. She started to cooperate with taking the zantac after about 2 days of resistance. Now she takes it just fine, but I tasted it and it sure does taste terrible. The bee has shown up a few times recently, but not everyday and she's still getting over a cold. We are going to the GI tomarrow morning. I do need to figure out the timing of her meds a bit better. She is currently taking Carafete 5ml 3 times daily and 1.6ml zantac 3 times daily, but because the carafete needs to be 2 hours away from the zantac, I usually end up missing one carafete dose almost everyday. I guess we will figure it out tomarrow. Thanks, MOlly
Dec 17, 2008
loonie
What doesn't kill us makes us stronger!
Nexium
Hi Molly. I'm Leonie from Australia. My son was on losec for several years and went onto Nexium (I'm relying on my memory) about 2 or 3 years ago - he is now almost 8. The nexium works very well - he takes 20mg once a day. He used to take it twice a day but we went down the food intolerance path also. Eamon cannot tolerate any egg, cow's milk or soy in any form - milk/flour/soybean oil etc. We cook a majority of our food from scratch (ie no bottled sauces/flavours/sachets etc) including stocks/gravies and have found it works really well for us. I think it has benefited the entire family as we are eating better planned meals with limited processing. Good luck! Please ask me if you want more information. I'm new to this forum and not sure how much information to share! I feel like I could go on for ages! Best wishes.
Check with your
doctor first!