Posted By Posting
Oct 18, 2008
michelle&aurora
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
Is this normal? Video included. Need opinions.
Hi everyone.

Okay, so I know I haven't been around to offer much support lately, but I've come to you because I trust you and I will catch up with everyone tonight. I know you will tell me to get a grip if need be. Should I be concerned by this? FIL is concerned and Mike said a daycare lady asked if she always had a hole in her chest. Have a look at her chest in the video. Is this normal for a 19 month old? Also, without constipation or gas, should her tummy be this big? We see the ped on Thursday, but I'll be neurotic until then. Help.

Oct 18, 2008
michelle&aurora
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
This is her tummy.

Photobucket - Video and Image Hosting

Oct 18, 2008
michelle&aurora
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
sorry, forgot to resize.

Photobucket - Video and Image Hosting

Oct 18, 2008
stickybean
I am Jacky, mommy to Joslyn Olivia (April 2008) and Katelyn Isabel (November 2009).
Joslyn was dx'ed with Silent Reflux with breath apnea at 5 days old. VERY SCARY!
Katelyn is a spitter reflux baby. Started at 3 days old as well. (Both were/are breast fed.. symptoms came on when my milk came in).
Joslyn has been reflux free since she was 12 months (suffered poor weight gain for a few months) and Katelyn is now on Zantac... waiting to see if it works.
that looks concerning to me............. i dont know if i would wait til thursday...........
Oct 18, 2008
mommyto2
BRANDON-Zantac and Bethanacol; Neocate formula, 2 sets of ear tubes, Adnoids removed, Vasomotor Rhinits, Asthma. Currently on: Xyzal, Omnaris, Flovent and Xopenex,
AUBREY-Zegerid 2x a day, Soy Milk, Tubes put in and adnoids removed (11-7), Hypotonia, ECI therapy for low muscle tone throughout trunk and hips, oral motor issues and sensory integration issues, delayed speech, Teething, probiotics
PICTURE: Aubrey in her cute cat outfit. If you look you can see how her right foot turns in. She walks that way as well. It is not as exaggerated in the morning's but gets worse in the evenings. This was after her nap.
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That looks very concerning. I would not wait.
Oct 18, 2008
michelle&aurora
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
Really? I don't understand why none of her doctors have seen this. They always push on her tummy and stuff. She was at the ER last month and she got the whole look over. Mind you, it has just gotten noticeable in the last week, and it's not something I've ever pointed out to them. I figure because her tummy is so big the hole has become more pronounced. Coupled with the breath holding that has been going on for a couple months while she eats, I'm getting freaked out. What could this be from?? What is it even? If she's had something anatomically wrong with her this whole time that caused the GERD, vomiting, feeding difficulties, poor growth, I will lose my mind. Thanks for your thoughts ladies.
Oct 18, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
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Is the hole thing new? That is a HUGE tummy! Hopefully it is just bc she is eating now. Ask to be seen if you are concerned...if the daycare lady is asking she probably hasn't seen that before and she sees tons of kids, so...
Oct 18, 2008
nicholasmom
Renee, mother to Nicholas, born 4/18/08 with silent reflux, moderate laryngomalacia, Sandifer's Syndrome& suspected MSPI. On Neocate, Simply Thick and Prevacid. Also mother to Nathan, born 12/06/06, who had mild reflux the first few months.
I have to agree, I'd want it looked at soon. Especially if you've noticed it getting more dramatic just recently. Better safe than sorry. She is still such a cutie though!!!
Oct 18, 2008
jenrackley
PAGER Volunteer Services Coordinator
Nutritionist
Melina 7/24/02 now reflux free!!
TWINS:
Ella 5/3/05 GERD, asthma, hypotonia, food intolerances, esophagitis, IBS //
Ava 5/3/05 asthma, food allergies
Pic: My girls! They are getting so big!
I would have it checked soon too. It looks distended to me, but I am not a DR. Is she eating foods that cause a lot of gas? Do you think she could be swallowing air when she is doing her "breath holding"?

Ella and Melina both had huge tummies at times but theirs was all related to contipation and bloating... but it look very similar.
Oct 18, 2008
engin117
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including engi.nowaira.net, engi@nowaira.net, Engi@nowaira.us, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
First: Term for chest is: Pectus excavatum I look at wrongdiagnosis.com to get information. I just type the technical term in and get info.

Meggy has the same balloon belly and the caved in chest, but I am not thinking is is as pronounced as Rory's.

I hope your docs. will listen to you and take notice. Meggy's docs. dismiss it as normal. It is also concerning to me.

I will post again if I find more info. Meggy is in my lap now wanting to watch videos on the computer.

Oct 18, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
I don't want to alarm you but my opinion...I've seen lots of babies and never noticed that before and her belly def looks big. Even if just for peace of mind, I'd go in. Thurs is almost a week...I wouldn't wait that long. Again...this is just a mom talking, not a prof.
Oct 18, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
I agree with thepecuts thing. We were sjtu talking some where on P2P about that. Soemtimes they go in and surgically repair it. It all depends on how it is affecting the other structures inside the chest walls. It can very well be causing a varied amount of other issues from what others had said. I don't remeber exactly what as Jedd doesn't have this issue so I was just skimming.

They can do x-rays and see what the structure of her chest looks like to see what is going on.

Maybe post his over ther in the medical issues forum and see what they say.

As far as the belly. IF Jedd's belly looked like that we'd VENT him with his G tube. It looks like she has a HUGE build up of air in her tummy. Hence the venting, or releasing of air through and with the G tube.

I think she's bloated from something she is eating or drinking.

Jedd had some bloating issues due to the fiber that was in his formula. Prebio fiber caused him to bloat where as, Benefiber (OTC) did not cause this issue.

I would certainly pu8sh to have her seen by the GI ASAP because all that air may be the cause of her not wanting to eat. If the belly is full of air there is NO room let to put any food.

You could always use some gas (mylicon) drops for infants and see if that makes a dfference in the time being. If it does, then you know it's trapped gas.

Poor girly, either way that looks really uncomfortable.

Oct 18, 2008
daniejo
Mom (Danie) to Adam (9-4-03) & Nate (3-7-07) Nate was diagnosed with silent AR at 2 months old. He was on neocate, prevacid 30mg per day and couldn't start solids till he was almost 8 months old. He started cow's milk at 14 months and is currently off all meds!! So far so good :) PIC: Disney trip 2008. Nate didn't know Piglet was there, he didn't like the characters too much.
It does look like something I would be concerned about as well. I have nothing to really add to this...I hope you let us know what the dr's say.
Oct 18, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
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It makes sense that if her belly looks bigger lately that it would make the "hole" look more pronounced. Elyse has a huge belly but hers is all flab...Rory's looks full of air like others said...
Oct 18, 2008
mommyto2
BRANDON-Zantac and Bethanacol; Neocate formula, 2 sets of ear tubes, Adnoids removed, Vasomotor Rhinits, Asthma. Currently on: Xyzal, Omnaris, Flovent and Xopenex,
AUBREY-Zegerid 2x a day, Soy Milk, Tubes put in and adnoids removed (11-7), Hypotonia, ECI therapy for low muscle tone throughout trunk and hips, oral motor issues and sensory integration issues, delayed speech, Teething, probiotics
PICTURE: Aubrey in her cute cat outfit. If you look you can see how her right foot turns in. She walks that way as well. It is not as exaggerated in the morning's but gets worse in the evenings. This was after her nap.
Photobucket
Aubrey has a huge belly (fat) but she does not have the hole in her chest. Is it caving in when she breathes? Does it seem hard for her to breath? It looks like her belly is hard and bloated but I would be concerned as to what is causing it.
Oct 18, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
Just a thought
Can you take an A.M. picture and then a P.M. picutre in the same day and see what the difference is????

I have seen some kids where they are totally FLAT in the morning and as the day goes on they get more bloated and bloated and bloated.....

Oct 18, 2008
katiesmommy
Tracey, mom to Katie. Diagnosed with reflux at 3 weeks and put on Zantac. At 8 months old she was removed from Zantac as it was giving her migraines, currently on Prevacid. Switched to Elecare since she is not gaining weight; trialing solids after being off for a month. Geneticist said reason she isn't gaining weight is she is stubborn. Upcoming appts.: Neurologist for developmental delay and EGD scheduled for September. She is one funny baby!
Poor girl! That looks uncomfortable! I'd get it checked.
Oct 18, 2008
raynasmommy
Chris: Mom to Rayna Marie our little miracle born June 13, 2007. 7lbs 12oz. Diagnosed with GERD after ph probe at 5 weeks. Current weight 21lbs 8 oz. Prevacid 8ml in a.m. 2% milk
I'd take her in too, can you take the pictures & video with you? I watched your video about 10 times and I noticed in the video with about 5 seconds left, her eyes dart over to the left side of the video and her one eye kinda squints, her mouth seems to move slightly to the side then she does the little giggle and she stares for a brief second. Maybe this is just a face that she does? I know your very concerned about her belly and maybe didn't notice this. Maybe it's nothing but I wanted to let you know what I see. And nobody should ever tell you to get a grip when it comes to your child. I think it's wonderful that you come here for opinions from all the fantastic mommies on this board.
Oct 19, 2008
mom2halleyann
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
That tummy picture looks very similar to the one jessicalynn posted the other day of her daughter... I don't think you're being paranoid at all, I definitely would get her looked at.
Oct 19, 2008
michelle&aurora
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
Thank you everyone for your opinions. I agree that I should be concerned. However, Mike feels that this isn't something new and that since she isn't acting any different, it can wait until Thursday. I don't agree. I'll be calling her pedi in the am to see about getting in tomorrow after work. Thank you for taking the time to respond. I definitely value your opinions and agree, but you have to know Mike to understand. He hates hospitals, medicines, and being told over and over that she was "just" a happy spitter every time we took her to the ER, has made him feel like a fool, so he questions my judgement, kwim? Oh, and that's just one of the many faces she likes to make....she's weird, but it has never concerned me. Thank you though, for pointing that out. Anyway, I'll keep everyone posted. As for the bloating, I'm not sure. I feel like perhaps it is because she is not breathing deeply and is swallowing air, but it could also be food related....she's had some pretty bad facial rashes too, so food sensitivity is also pinging my radar. Anyway, I'll let you know what the ped says if I can get her in tomorrow. THANKS SO MUCH!!!
Oct 19, 2008
mom2coy
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
did she just drink a bottle b4 this video? i gave coy a bottle before his bath 2 nights ago and his belly looked huge like this. not as big i guess but HUGE... my husband said it was because of the bottle but it freaked me out.. her belly looks big.. maybe cuz she is eating? can you get in b4 thur?
Oct 20, 2008
baby quinn's mommy
Mom to a 3 year old baby girl with severe reflux: g-tube, nissen fundoplication. dx: RAD, failure to thrive, DGE, epilepsy, sleep apnea, paraesohphogeal hernia, high lactic acid there's more "unknown disease"... Hospitalized 12 times, PT graduate! ST graduate! OT graduate! Current Meds: singulair, zopeonex, pulmicort, reglan, Keppra, Trileptal, vitamin B6, Veramyst. Current weight: 34 lb. Current height: 39". g-tube dependent, oxygen 1-2LpM all day and night PIC: Ms. Quinn
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Has her tummy always been distended or is that something new? if it is something new, it is probably something that she ate.

It also looks like she has a pectus excavatum or whatever that thing is called. Quinn has this. Her pulmonologist picked up on it. Her bottom ribs also fan outward. Quinn's pectus looks a lot like rory's. In that case, they won't do anything about it unless is is constricting the heart and/or lungs. In that case, it require surgery. From my understanding, it gets worse over time and if surgery is necessary, it is usually done in the teen years. If the belly gets bloated, as quinn;s is always, it looks much worse.

Try not to be too concerned. I do believe though that you can wait until her doctor's appointment to bring it up. Let us know what comes of the appointment and what the doctor says. Check this link out

http://www.parent-2-parent.com/forum/showthread.php?t=111148

Oct 20, 2008
baby quinn's mommy
Mom to a 3 year old baby girl with severe reflux: g-tube, nissen fundoplication. dx: RAD, failure to thrive, DGE, epilepsy, sleep apnea, paraesohphogeal hernia, high lactic acid there's more "unknown disease"... Hospitalized 12 times, PT graduate! ST graduate! OT graduate! Current Meds: singulair, zopeonex, pulmicort, reglan, Keppra, Trileptal, vitamin B6, Veramyst. Current weight: 34 lb. Current height: 39". g-tube dependent, oxygen 1-2LpM all day and night PIC: Ms. Quinn
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Also, like what Jessica, Jedd's Mommy said, Quinn wakes up skinny as hell in the morning and by the end of the day, her belly looks very bloated and distended. Sometimes venting works, sometimes it doesn't. She also puffs up by the end of the day, very strange, but nobody cares but me :) Does your insurance require you to have referrals to see specialists?
Check with your
doctor first!