Posted By Posting
Oct 18, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
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Elyse update
Well, add us to the list of failed med weans...we thought she might be ready to go off her zantac (she is already down to one dose a day, wahoo!) but today was day 3 and she spit up twice and then all out vomited! I was not home, I was off running a 5K for breast cancer awareness so DH got to take care of it (hehe). He went ahead and gave her a dose of Zantac a little while after, then 30 minutes later she wanted to EAT! and now seems much better.

Still won't drink milk or anything like it, and only about 3 oz of her elecare a day (yes, THREE), so we now have her on a calcium supplement which she LOVES. It is a chewable one that is vanilla ice cream flavored and I break it up in tiny pieces and she sucks them and asks for more!

I also started her on juice plus gummies...have you heard of them? They are like fruit snacks, but made from 17 different fruits and veggies. They are considered a "whole food" by the FDA, not a vitamin, so she also takes her rx multi along with them. They are rather expensive but we have heard great things about them and Dr Sears promotes them too. You have to buy them from a consultant, they are not sold in stores, but i bet you could get them online too. but I feel good knowing that she is getting calcium now, and the extra nutrition from the gummies.

Oct 18, 2008
michelle&aurora
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
oh, I'm sorry to hear the wean didn't go well, but at least you tried, right? The little stinker, not drinking her formula or milk. She's strongwilled, isn't she? lol. Well, at least she is taking the vitamins and fruit snacks and wanting to eat. I'm gonna search for those gummies online. I wonder if they ship to Canada? I'm going to start Rory on a vitamin as soon as we get her off formula all the way. I don't think she'd to a liquid or chewable though, hard to say. She stopped taking her prevacid. She'd know it was good for her and spit it out, no doubt. lol. Hugs to Elyse and you.
Oct 18, 2008
katiesmommy
Tracey, mom to Katie. Diagnosed with reflux at 3 weeks and put on Zantac. At 8 months old she was removed from Zantac as it was giving her migraines, currently on Prevacid. Switched to Elecare since she is not gaining weight; trialing solids after being off for a month. Geneticist said reason she isn't gaining weight is she is stubborn. Upcoming appts.: Neurologist for developmental delay and EGD scheduled for September. She is one funny baby!
Sorry! I've read that rice milk with flax oil can be subsituted but I bet she wouldn't drink that either?
Oct 19, 2008
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
sorry the med wean didn't go well. isn't that crazy when they love medicine
Check with your
doctor first!