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Oct 17, 2008
engin117
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including engi.nowaira.net, engi@nowaira.net, Engi@nowaira.us, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
Meds deplete important nutrients
While meds for our Little one's are often a must, I thought u would find this information important.

I am asking the GI about supplements and what not to make sure Meggy gets what she needs.

http://www.vrp.com/articles.aspx?ProdID=art2079&zTYPE=2

"Acid blockers have been linked to significant increases in the risk of vitamin B12 deficiency" "...decrease in protein-bound B12 absorption in individuals taking an H2 blocker."

"...folic acid absorption is decreased with supplementation of H2 blockers and other antacids....decreased absorption of iron and zinc, ...alters vitamin D metabolism by altering the enzyme vitamin D 25-hydroxylase activity."

Oct 18, 2008
katiesmommy
Tracey, mom to Katie. Diagnosed with reflux at 3 weeks and put on Zantac. At 8 months old she was removed from Zantac as it was giving her migraines, currently on Prevacid. Switched to Elecare since she is not gaining weight; trialing solids after being off for a month. Geneticist said reason she isn't gaining weight is she is stubborn. Upcoming appts.: Neurologist for developmental delay and EGD scheduled for September. She is one funny baby!
I knew they blocked calcium but not B12. The developmentalist we saw believes that a lot of developmental delays are caused by B12 deficiency and Katie was on Zantac for 8 months and started catching up once we switched to Prevacid. Interesting.
Oct 18, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
But remember this study was performed on adults...so we don't really know if it affects kids or not (let's hope not). It also says that the studies were very small, so we don't know much about the sample population. Let's try not to worry too much until we have some better evidence! (Just trying to keep my own sanity and to help you keep yours, too!)
Oct 18, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
You can probably find all sorts of articles like that. We have just decided that the benefits FAR outweigh the risks. So we don't worry about it at all.
Oct 18, 2008
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
I agree. Too much for me to worry about. The medicine is such a savior that I can't worry about the vitamins now. Maybe I will mark my calendar to worry about it in January LOL!
Oct 18, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
LOL-it's good to err on the safe side but I had to say: I was all about psychology and statistics & such in college. Then I took a research class and pretty much all I learned is that a study can be conducted to show whatever the person doing it wants to show. No matter what it concerns....it's still sometime the only thing we have to go by so we have to be cautious and listen but I take it all with a grain of salt. :)
Oct 18, 2008
engin117
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including engi.nowaira.net, engi@nowaira.net, Engi@nowaira.us, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
Oh,

Sorry if I worried everyone, I was saying this in perspective of add back therapy. If our children start having problems related to the particular vitamins their meds deplete or block, we know to ask about adding that supplement to their regimen.

I know how important the meds our for our children and would never suggest stopping them, only the doc should make that decision.

Oct 18, 2008
rissaroo
Picture: This is what happens when you raise a kid on health food and they get ahold of a Coke! Bad mom, that soda is NOT on the reflux diet.
UPDATE: Isaiah is now 12 and off meds! He is doing great, eating again and hopefully will be catching up in the growing department. I am still in the "hoping it sticks" phase, but we're so happy that he's better!
I'm kinda worried about that, too...especially since Isaiah can't have gluten and dairy. Sadly, he eats antacids several times a week...they have extra calcium, so I guess between that and the calcium gummy bears and chocolate chews maybe he's getting enough. Probably not. Sheesh, I hate having to choose between the kid not eating anything (or keeping anything down) and not absorbing what he does eat!
Oct 18, 2008
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
engin117 - no worries! It is in the back of all our minds. We are just keeping it way back there. Thanks for the info.
Oct 18, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
engin117
NOthing to worry about. It's ok. There are soo many studies out there that we just had to stop reading them as well for fear of worrying about everything. We have however, had Jedd on a infant vitamin form about 9 weeks old an dnow he is on a toddler vitamen, we crush it an add it to food. Sinc ewe won't chew and swallow it.
Oct 18, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
Photobucket
I have always worried about this, and about kidney/liver damage from so many meds, etc etc, the list goes on....but like most everyone else said, for us the benefits outweighed the risks...if she were not on the meds, we would have had an apnea monitor because she constantly gagged and turned blue, and she would be tube fed because she WOULD NOT eat...etc etc....
Oct 18, 2008
michelle&aurora
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
Mike has always been much more concerned about the long term effects of meds than I have been. I always felt pressure from him to take her off of prevacid. Again, one must weigh the benefits against the negatives. I appreciate where you are coming from though. In this day and age, with the lucrativeness of the pharmaceutical industry, it always pays to be educated ourselves on all aspects of our medications. I still say prevacid has an appetite effect on some children, but her doctors think it is absurd. I've had first hand education in the matter. Appetite suppression is more concerning to me than nutrient absorption, because without nutrients they can't be absorbed anyway, kwim? At the same time, a screaming child at night is no fun for anyone, so.....it just depends on the situation.
Oct 18, 2008
engin117
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including engi.nowaira.net, engi@nowaira.net, Engi@nowaira.us, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
Our local Costco sells the supplements right along with the PPI's to make sure people are away that they will need extra while on them.
Oct 18, 2008
katiesmommy
Tracey, mom to Katie. Diagnosed with reflux at 3 weeks and put on Zantac. At 8 months old she was removed from Zantac as it was giving her migraines, currently on Prevacid. Switched to Elecare since she is not gaining weight; trialing solids after being off for a month. Geneticist said reason she isn't gaining weight is she is stubborn. Upcoming appts.: Neurologist for developmental delay and EGD scheduled for September. She is one funny baby!
I have had to tell my mom to stop reading about the negatives of PPI's since they have so many side effects but Katie needs them and that outweighs the negatives.
Check with your
doctor first!