Posted By Posting
Oct 17, 2008
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
Question to ponder (Breath holding)
Hey guys, I thought I'd pop in to pick your brains about something. I'm not giving a Rory update until the 23rd when I get her weighed and ask this same question to the ped, but here goes....I figured since some of you like to research you might help me out. I don't have much time online and everything I researched so far on breath holding refers to tantrums, which isn't what I'm looking for.

Anyway, for many months now Rory has been holding her breath while she eats. Like, she holds it and then gasps, but very subtlely. We had noticed it before but now that she eats more, it is becoming more distinct. My FIL (who only sees her every couple months) pointed it out at Thanksgiving. He also pointed out that when she is sitting her stomach protrudes so much that her chest concaves. You could actually hold liquid in the hole. He seemed really concerned. We thought maybe all the months of discomfort from GERD had created this habit whereby she doesn't want to breathe deeply. Does that make sense? Does it seem like a reasonable explanation? The VERY LARGE tummy has me concerned, but then Mike tells me it's because she's eating. I don't want to look for something to be wrong, esp. since she seems to be doing so well.....but you know that mommy voice???? Can you do some digging and see what you can come up with in regards to the breath holding until I talk to the ped (who'll brush me off anyway). Maybe if I get time I will post a pic of her tummy. It doesn't belong on such a small constipation either, never been a problem for her. Thanks girls. Miss you all.

Oct 17, 2008
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
Has she ever had a swallow study done? My first thought was that maybe she's unconsciously protecting her airway. The retracting would cause me a little bit of concern - it's certainly something to ask the doctor about. I seem to remember that one other baby on here had the same thing (was it Quinn?). Halley's belly looks like a miniature beer belly, but it's not so much that it concerns me. If Rory's is so large that it's concerning you, trust your instinct.
Oct 17, 2008
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including,,, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
I am so happy for you that overall Rory is doing great. She is such a cutie. I love the hair. Some of her pics remind me so much of Meggy.

In research for Meggy putting that symptom and many other brought up familial dysautonomia. However, this cannot be tested till they are older.

As for the chest caving in, can u give a little more detail? There are some genetic syndromes in which this occurs. I forget the names but I can find them with some time.

I know what u mean by the breath holding. Meggy does this and I too have had a hard time finding applicable info. Meggy's certainly seems pain related. I do have a question about it though. Does it occur on a daily basis or on some of her worst days? "Breath-holding attacks cause a lot of anxiety in parents, but are not dangerous. They occur when the child is frightened, frustrated or injured. They may also occur after a temper tantrum, or a spanking.Breath-holding attacks are more frequent, severe and prolonged in anaemic children, so giving iron supplements to these children appears justified. "

Children can also have pallid breath holding spells, in which something painful happens, and they quickly turn pale and pass out without crying very much.

"PALLID BHS. Pallid breath holding spells are unpredictable. They usually occur in response to being startled, frightened, in pain, immunized, or injured, particularly after hitting the head. In a pallid BHS the brain sends a signal via the vagus nerve that severely slows the heart rate, leading to a temporary cessation of breathing and loss of consciousness."

Check with your
doctor first!