Posted By Posting
Oct 17, 2008
b-girl
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
engin
I've been thinking about poor Meggy being hungry and not eating and it breaks my heart. Then I realized that Jazz sometimes goes for many hours refusing food too... mean sometimes as much as 15-20 hours. Anyways, I think it was Jedd's mom that reminde me about coconut milk. Would Meggy drink a smoothie? We use Rice milk, coconut milk (whick is as thick as whipped cream), a half of a banana, and some frozen berry gelato. There is not much protein, but lots of fat and carbs, so at least some calories. Meggy has a protein powder supplement right? All above ingredients are, dairy, soy and corn free.

'm sure you've already thought about all this, but I kept thinking about these poor starving babies and I need to do somthing!

Oct 17, 2008
b-girl
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
Or can she have the Neocate Splash...E028 juice? That contains no milk, no soy and no corn products?
Oct 17, 2008
engin117
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including engi.nowaira.net, engi@nowaira.net, Engi@nowaira.us, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
Thank you
Thank you so much. She does like coconut milk and was taking that okay until we started ultracare. Unfortunately it seems even the tiny bit of corn sugar (xantham gum) in the ultracare is hurting her. We stopped the ultracare and she ate breakfast and lunch. I hope it will continue.

Unfortunately we never could get Meggy to take very much E028 splash. She would prefer to starve over taking that. They told us to withhold all food and drink except that and she would take it, but after 48 hours of nothing I wasn't going to let her go longer over wanting her to take one thing and one thing only. The E028 splash contains Maltodextrin which is corn.

To me, trying to be corn free is even harder than no dairy or soy, but once we figure it out, I think it will be easy.

If I could get her to stop eating paper and licking stickers (they have corn which she apparently craves.) I think she will be okay in time.

Oct 17, 2008
b-girl
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
Jazz never liked splash either....Stickers eh???? LOL!!! The neocate info sheet that I have says "contains no corn:, I'll have to let themknow that's not so. Hopefully the coconut milk will add some weight...
Oct 17, 2008
engin117
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including engi.nowaira.net, engi@nowaira.net, Engi@nowaira.us, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
Your right, they do advertise that it has no corn. I always look the ingredients up anyway just to be sure. I actually called them and they told me that yes it has corn sugar but not corn protein. They advertise corn free because they say most people do not react to the sugar.

Thanks for letting me know about the coconut. I have been giving her that, but hadn't thought to make it into a shake. She does love bananas too.

Your Jazz is just beautiful. I love the pic u have posted of her. Thanks for sharing.

Engi

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