Posted By Posting
Oct 16, 2008
zack'smom
Zack born 09/28/07 @ 31 weeks. Dx silent reflux @ 6 mo. Now not so silent. Switched to Elecare @ 9 mo. On Prevacid 15mg 1x daily. Looking to stop the puke and gain some lbs.
Puke stopped about 24 months and he's learning to eat...very slowly.
Still on prevacid and periactin.
concentrating formula
Anyone concentrated their kid's formula and they couldn't handle it? I was told to do it and we started and the flood of puke hasnt stopped until we gave him a normal bottle. He had a horrible night and a terrible morning. Refluxing all over the place!
Oct 16, 2008
jessicalynn
Brent 2 years old,
Birthweight 12 lbs 3.3 oz!
Very severe GERD,LPR,FTT
Severe esophagitis/scarring
Paraesophageal Hiatal Hernia,
Esophageal Dysmotility,
Food impaction,Aspiration
ALTE,Dysphagia,Odynophagia
Eosinophilic Esophagitis,Severe retching
Severe allergic colitis/malabsorption
Susp eosinophilic colitis,chronic diarrhea,
Laryngomalacia,Gas/Bloat Syndrome,
Visceral Hyperalgesia,GI Dysmotility,
Chronic infection(ear/sinus/lung)
Adenoid/tonsillar hypertrophy
Gait abnormality/bowlegs,widened growth plates
Susp Vagus Nerve Damage
Surgeries, Nissen fundo,hernia repair/
reconstruction,esophageal dilation,gtube,
ear tubes,adenoidectomy
Bronchs w/ BAL's,lung biopsy
Upcoming scope/colonoscopy
Manometry testing in Oct.
Meds: Nexium,Zantac,Baclofen, Neurontin,
Zofran,Pulmicort/Splenda,PrednisonePRN,
NPO tubefed continuous elecare 24 hours/day
Concentrating it does make it more dense, harder to digest. Hugs!
Oct 16, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
Yeah, It can be harder on their belly to pass it. Like my HH Nurse told me once she said "Jessica just because we CAN feed him doesn't mean we SHOULD feed him" Meaning for us, jsut because he had a tube didn't mean we shoudl try to force him to take it.

If he is not handleing it well I'd call whoever had you do it and explain to them the issues you are having. My thinking is, if it ain't staying down you are not doing anyoen any good...HUGS!!!!!!

Oct 16, 2008
engin117
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including engi.nowaira.net, engi@nowaira.net, Engi@nowaira.us, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
We backed off when Meggy wasn't tolerating the concentrated feeds. We were 40 cals per ounce.

Some kids can handle it, most have to be slowly worked upward instead of just going from 20 to 30 cals an ounce all at once.

Wishing u the very best.

Check with your
doctor first!