Posted By Posting
Oct 16, 2008
lorenzomama
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
Behavior -- sort of OT
I'm noticing that, for several days after medical appointments in which he is subjected to tests or procedures that require that he be held down, Lorenzo expresses a tremendous amount of frustration. Unfortunately, in his case, it is usually expressed by biting everyone who comes within reach. It makes sense to me that he would need to deal with the stress and frustration that he very obviously feels when he has been physically forced to remain still against his will -- especially when what is done to him is physically painful, but it breaks my heart to see him acting it out that way -- he's usually exceptionally calm and gentle. I worry, I guess, that what he has to go through medically is going to have a negative impact on him emotionally. So, I'm wondering what your experiences/thoughts are. How can we best encourage our little one's to feel safe and empowered when so much of their early lives are spent being (from their perspective) tormented and disempowered?
Oct 16, 2008
sadie
Our 1 year old daughter has silent reflux, hypotonia as well as benign external hydrocephalus. We are currently weaning onto whole milk (we'll see if it works) and she is also on Prevacid 15mg per day.
Hmmmm I was just reading a book about how to deal with this. I'll see if I can post about it this afternoon. Keira just woke up so... Keira is a little edgy after shots or blood work (iron levels) too. And when we had to have CT scans of her brain they had to completely restrain her which tortured MY brain. I HATED to see her like that. Any time we have to restrain her in a medical setting for shots or even the exams it seems like it really disturbs her. It would me too I guess. ;) I think because they had to start so young too it doesn't help. I mean all kids have to have shots and such but ours have seen the pedi/gi/specialists waaaaaay earlier than others. Just the other week the neurosurgeon said he is ok w/ discharging Keira as her symptoms are resolved and as we were leaving he said "I'm so happy she can mark one specialist off her list. This poor kid has had a rough first year between the GI stuff and the brain stuff." If that isn't the truth!
Check with your
doctor first!