Posted By Posting
Oct 15, 2008
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
Back and with good news (Elyse)
We got back from a mini vacation with Vanessa and Cassie and the daddies...we went to the beach, Disneyland, and Universal Studios. Elyse HATED the rides, LOVED the ocean (she even went all the way under the water and wanted more, and face dove into the sand and wanted more). Her favorite part of the parks was playing with Cassie! I am at work right now but will post pics soon. We had a ton of fun and got home at midnight and had to work the next day.

The good news part is that ELyse was a hog the whole trip. Usually when away from home she does not eat or drink well. I fed her all day long for 4 days! Also, there were times at the parks when I just dumped a juice box into her cup undiluted and she just drained it! I don't advocate giving kids straight juice in large amounts, but it meant we did not have to worry about hydration issues. She still won't drink anything like milk and can only use one type of sippy with a valve, but she is DRINKING and that is so exciting.

Oct 15, 2008
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
Yay for her! If she ever goes through a feeding funk, tell daddy that you have to go back to Disney :)
Oct 15, 2008
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
WhoooHooo! Go Elyse! I'm glad you guys had a good trip, and I'm looking forward to seeing the pictures.
Oct 15, 2008
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including,,, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
how exciting! I am so happy for you.
Oct 15, 2008
I am Jacky, mommy to Joslyn Olivia (April 2008) and Katelyn Isabel (November 2009).
Joslyn was dx'ed with Silent Reflux with breath apnea at 5 days old. VERY SCARY!
Katelyn is a spitter reflux baby. Started at 3 days old as well. (Both were/are breast fed.. symptoms came on when my milk came in).
Joslyn has been reflux free since she was 12 months (suffered poor weight gain for a few months) and Katelyn is now on Zantac... waiting to see if it works.
a happy place will do crazy things!!! hehe. Its magical!
Oct 15, 2008
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
i love good eating days :) so glad you all had a good time!
Oct 15, 2008
Renee, mother to Nicholas, born 4/18/08 with silent reflux, moderate laryngomalacia, Sandifer's Syndrome& suspected MSPI. On Neocate, Simply Thick and Prevacid. Also mother to Nathan, born 12/06/06, who had mild reflux the first few months.
So happy to hear your vaca was such a good time and that Elyse ate and drank so well! May it continue!!!
Check with your
doctor first!