Posted By Posting
Oct 15, 2008
annegirl1919
sharlin, mom to aviah, smith and faye (4/08)-dx with acid reflux (mostly silent) at 6 months.
Looking back I suspect she's been dealing with this for most of her little life. She's tried about every formula in the book and is currently on liquid alimentum, which has really helped a lot with her fighting feedings. We also tried zantac, but she became MUCH worse, and so we've been trying to work on helping her through her diet. she's also taking probiotics, and i'm hoping to get her eating some solids more regularly.
new with questions
hi everyone. i just figured out last sat. that my 6 month old has silent gerd. it explains a lot of issues over time, but the week before i realized what was going on was horrible. she would be hungry but would not eat, so obviously not terribly happy. she's had 5 doses of generic zantac, and i'm thickening her neocate with rice cereal. i just found out last night that i wasn't thickening it enough, and after the first feeding of doing that, she didn't wake up until after 6 to eat. so i'm hopeful, but scared to be. (plus, today i can tell it hurts, but i'm sure it takes time to heal a raw esophagus, right?) so for the questions: anyone else not find out 'til their baby was this old? is it common to see gradual improvement, or is it usually instant improvement when you start doing things like getting them on a formula that they can tolerate, thickening, etc. i am i correct in thinking that i should give her some water off and on-that water won't start the acids working, and hopefully will stave off constipation? how long do you do all these things (propping bed, keeping upright, meds, thickening formula, neocate, etc.) before trying to wean them off. especially since it's mainly silent gerd. it's not like we see a lot of puke coming out. thanks a ton in advance, and i'm sure that i'll have a lot more questions. ~sharlin
Oct 15, 2008
amber f
Hello, It is great to meet you but I'm sad it is under these circumstances. Silent gerd is a very painful thing because it burns the esphagus going up and going down. Has your doc mentioned giving her something to help heal the esphagus. I have heard other mom's on here talk about carafate, that coats the esphagus. If Zantac isn't doing the trick after 1-2 weeks I'd talk to your doc about trying a PPI like prilosec or prevacid. It is the right combo of meds, thickening and proping that helps. And sadly the same thing doesn't always work for everyone. We tried zantac then prilosec then prevacid solutabs. The prevacid was a the answer for us. I don't think you can worry about weaning until your child has no more symptoms and it is completely under control. Nolan was dxed at 4 weeks but some were sooner and some were later. I hope I helped some. Welcome to the forum. Post as often as you need to. Amber F
Oct 15, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
If the reflux is that severe I'd switch to a PPI like Prevacaid or Prilosec. Preferably the Prevacaid. ALOT of kiddos have success with that.
Oct 15, 2008
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
emily's old pedi gave her zantac at 3 months old for what he based as colic. He gave her .4 ml 1x a day and refused to increase it. He said if she really had reflux it would stop her from screaming and since she is not puking the zantac was working. I know know it was such a low dose. It wasn't until we saw a GI when she was 7.5 months old that he actually diagnosed her with Silent Reflux. She screamed all the time, had all the symptoms of silent reflux, in retrospect i wish i had known more to do something sooner.

zantac starts to work in about 3 day, you may need to split the dose into 2x a day or even 3x. it is very weight sensitive so you may need to increase the dose often to see results.

neocate and thickening usually get weaned at about a year old depending on the child. but it's up to your dr.

bed propping works for as long as the child will use it. we stopped propping the bed for emily at about 9 months when she could stand. i was afraid she would jump out of the crib. instead we use a pillow under the crib sheet.

wish i could write more but you will get plenty of advice from others :) welcome!
Oct 15, 2008
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
ps none of what the old pedi said was true btw
Oct 15, 2008
annegirl1919
sharlin, mom to aviah, smith and faye (4/08)-dx with acid reflux (mostly silent) at 6 months.
Looking back I suspect she's been dealing with this for most of her little life. She's tried about every formula in the book and is currently on liquid alimentum, which has really helped a lot with her fighting feedings. We also tried zantac, but she became MUCH worse, and so we've been trying to work on helping her through her diet. she's also taking probiotics, and i'm hoping to get her eating some solids more regularly.
thank you all for your welcome and info so far. i'm glad to have some place to go with all the questions that my mind won't stop asking!
Oct 15, 2008
ethan's mom
Meridith, mom to Ethan born 4/23/08. Ethan was diagnosed with reflux at about 1 month. He has been on Zantac (unsuccessful) and Prevacid. He is currently taking 7.5 mg of Prevacid 2x per day, with good results. We also suspect MPI, though this hasn't been confirmed by a doctor yet.
Ethan is mostly breastfed, though we are doing one bottle of soy formula each day. We also do some homeade "solids' including, so far pears, avocado, sweet potato, and peaches.
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I wanted to reply sooner, but it is difficult with little hands on the keyboard. It sounds like your daughter is about the same age as my son. He has been diagnosed for a while now, and has mostly silent reflux, though spits up several times per week. Our medicine is Prevacid, as has been suggested by others, and it works way better than Zantac did for Ethan.

We *try* to keep Ethan upright for a while after feeding, and have his bed propped some, but most of the time, he resists the upright, and rolls down to the foot of the bed, so in our case, we just let him be, and help him out when he lets us know that he has pain.

Oct 15, 2008
nicholasmom
Renee, mother to Nicholas, born 4/18/08 with silent reflux, moderate laryngomalacia, Sandifer's Syndrome& suspected MSPI. On Neocate, Simply Thick and Prevacid. Also mother to Nathan, born 12/06/06, who had mild reflux the first few months.
Hi-Welcome My 6 month old is also a silent refluxer though diagnosed much earlier on. We too tried Zantac and had to go to prevacid. It made a big difference. We also use Mylanta as needed if the pain seems to be bad. We thicken the formula and that seemed to help decrease the spit up and number of silent refluces (which are not silent -just not always so messy). We also try to keep him upright for about an hour after feeding (except in the middle of the night). I have no idea about the weaning process as I do not think Nicholas is ready. We are in the middle of questioning whether he made need his prevacid dose upped as he is bigger and has started arching and pulling off the bottle a little again. Glad you're here. Hope we all have some info for you. At the very least, you'll have lots of empathetic ears!
Check with your
doctor first!