Posted By Posting
Oct 14, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
OT-prayer request
I mentioned this down in the update post but I wanted to make sure everyone sees it. I told y'all about my 55ish friend that has throat cancer. They are doing surgery tomorrow to remove the mass. The details that I didn't know are this: there have only been 6 of these surgeries done and they've all been done at MUSC where she is. Just during the last week, the cancer has completely eaten through her esophagus. If they can't close it, they will have to do skin grafts. If they have to do that-her chin will have to be sewn to her neck/chest area. Like sewn down so she's looking down all the time.

If she didn't have the surgery, the drs gave her a month at most. With the surgery SHE HAS 6MOS TO 3YRS!!!

I am just so sad for her and her daughter. She is so close to her family-her dd and grandkids. She has a teenage son! That I had just remembered today. I had kind of forgotten about him.

She and her family firmly believe that her health issues are a result of self-tanning sprays being inhaled. Nobody can confirm that but I just don't doubt it a bit. It's funny bc I always teased her about being such a "sun hog". I'm anti-sun ya know.

Any way, God is in the miracle business and I want everyone to pray that he works one with her!

Oct 14, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
OH NO! I just got another update! They've cancelled her surgery! The drs at musc aren't confident enough to do it. They are referring her to Boston! Y'all....this is crazy!
Oct 14, 2008
stickybean
I am Jacky, mommy to Joslyn Olivia (April 2008) and Katelyn Isabel (November 2009).
Joslyn was dx'ed with Silent Reflux with breath apnea at 5 days old. VERY SCARY!
Katelyn is a spitter reflux baby. Started at 3 days old as well. (Both were/are breast fed.. symptoms came on when my milk came in).
Joslyn has been reflux free since she was 12 months (suffered poor weight gain for a few months) and Katelyn is now on Zantac... waiting to see if it works.
she has our prayers... how horribly sad
Oct 14, 2008
alex's mom
Alex was dx with silent reflux at 3 weeks old. Previously on Prevacid SoluTabs 15mg daily, now on trial of no medication. Was thought to have oral aversion, saw feeding specialist who says he's just not interested in food--no aversion at all. Slowly coming around to food. 15 months, 19lbs, 7 oz.
Our thoughts are with your friend!
Oct 14, 2008
jessicalynn
Brent 2 years old,
Birthweight 12 lbs 3.3 oz!
Very severe GERD,LPR,FTT
Severe esophagitis/scarring
Paraesophageal Hiatal Hernia,
Esophageal Dysmotility,
Food impaction,Aspiration
ALTE,Dysphagia,Odynophagia
Eosinophilic Esophagitis,Severe retching
Severe allergic colitis/malabsorption
Susp eosinophilic colitis,chronic diarrhea,
Laryngomalacia,Gas/Bloat Syndrome,
Visceral Hyperalgesia,GI Dysmotility,
Chronic infection(ear/sinus/lung)
Adenoid/tonsillar hypertrophy
Gait abnormality/bowlegs,widened growth plates
Susp Vagus Nerve Damage
Surgeries, Nissen fundo,hernia repair/
reconstruction,esophageal dilation,gtube,
ear tubes,adenoidectomy
Bronchs w/ BAL's,lung biopsy
Upcoming scope/colonoscopy
Manometry testing in Oct.
Meds: Nexium,Zantac,Baclofen, Neurontin,
Zofran,Pulmicort/Splenda,PrednisonePRN,
NPO tubefed continuous elecare 24 hours/day
I'll be praying!
Oct 14, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
I pray that she can get transferred and hopefully get the surgery done.
Oct 14, 2008
amber f
I'm sorry she is going through this. (((HUGS))) It always seems that the nicest, sweetest people have to suffer so much.
Oct 14, 2008
nicholasmom
Renee, mother to Nicholas, born 4/18/08 with silent reflux, moderate laryngomalacia, Sandifer's Syndrome& suspected MSPI. On Neocate, Simply Thick and Prevacid. Also mother to Nathan, born 12/06/06, who had mild reflux the first few months.
I'll definitely be praying...
Check with your
doctor first!