Posted By Posting
Oct 13, 2008
maielise
Celiac's?
Did anyone have issues with this site? I could not get on to any of the forums since Thursday

Anywho, Julian had his scope on Thursday with Dr. Whitney and she biopsied several areas of his digestive system. We got the preliminary results from the Dr. and everything looks good over all. Julian showed sensitivity to gluten.

On Thursday after the procedure she went over the pictures with us and said his stomach looks good, his duodenum bulb looks good, the lower 1/3 of his esophagus show signs of reflux, so does one other area I can't recall.

So he is going in for some blood work up tomorrow morning. She suspects Celiac. I feel some what relieved, not fully there. At least not until we get all the refluxing under control.

Doesn't everything we consume contain some sort of trace of gluten? What am I going to feed this kid? I know some stuff we already buy says gluten free on the package. We buy the organic snacks Mrs. Mays.

Well ta ta for now, we just got back from the fair and we had a long weekend in Austin with family and work today..I am dead tired. Hope I can muscle up the strength to wake up in the morning.

Hope everyone is doiding well!

Oct 14, 2008
3blues21pink
Dr. Whitney? You aren't by any chance in the Dallas area are you? We see a Dr. Whitney and that's who's doing my son's Flex-sig today. My older son is on a gluten and casein free diet due to his Autism. It's hard, but not nearly as hard as it was even a few years ago. Yes, most foods contain gluten in some form, even those that say "gluten free" are often gluten containing in trace amounts. You have to ready very carefully for even cross contamination. Whole foods has a nice gluten free section and also a lot of ingredients that you can really trust. I would get some great cookbooks (they have some wonderful ones geared more towards kids so the recipes are more pleasing to them) and go online to some GF sites. I have a few that I will get posted later today for you. Also, you might want to check with a nutritionist, at least one visit. She can lead you down the right path as far as GF diets go and make sure he's getting everything he needs. Breads are the hardest, IMO. I have yet to find a good bread. They just aren't soft and yummy like regular breads are and homemade GF bread is hard. The other thing, you might ask about some digestive enzymes. We have our oldest son on this (so easy to give, just pop it in a little juice and they drink it down). It will help their body to digest any of the hidden gluten they might get into their little systems.
Oct 14, 2008
amber f
Rissaroo is the screen name of a great mother who has lots of gluten free recipes. You could post to her. I'm sure she'll chime in here soon. But I wanted to throw that out there. I hope they figure it all out soon. The feeling of relief comes from having an idea what is causing all this I'm sure. (((HUGS)))
Oct 14, 2008
rissaroo
Picture: This is what happens when you raise a kid on health food and they get ahold of a Coke! Bad mom, that soda is NOT on the reflux diet.
UPDATE: Isaiah is now 12 and off meds! He is doing great, eating again and hopefully will be catching up in the growing department. I am still in the "hoping it sticks" phase, but we're so happy that he's better!
Thanks Amber...*blush* I'm sorry that Julian may have Celiac's! My son and I both have it. The good news is, it's much easier than it used to be to be gluten free, and that's all you have to do to solve the problem! It may well solve the reflux problem pretty quickly, too. The first year of the gluten free diet was tough (yes, it will seem like there's gluten in *everything* but there are a lot of mainstream products that are gluten free!). But pretty quickly it gets to be routine and it really isn't that difficult. Honestly, except for a few situations I don't think my son feels bad or left out because he's on this diet...he's just happy to feel better! I actually (and I know this will sound weird) am thankful for Celiac's...because, number one, it's one of the few GI issues that's pretty easy to deal with...especially if you catch it early and aren't dealing with a lot of other damage. The second reason is, our whole family eats sooooo much better than we used to...it's a little more work, but it is so worth it! I feel good about what my kids eat, and the entire family has been healthier because of it. Please email me if you want to...I'll give you a call and we can talk! I have tons of resources for gf products, cookbooks, tons of recipes (we can have donuts, breads, muffins, sugar cookies...pretty much anything at all, you just have to get creative and/or know where to find them!). I post gluten free dinner menus on my blog every week...www.anerissara.blogspot.com (haven't gotten this weeks up yet, but I will!). Also, Celiac.com is a great resource, they have a really busy and helpful forum. Anyway...email me, it's anerishale@comcast.net (((hugs))) to you, I hope that you get some solid answers soon. Generally, if a biopsy shows Celiac's that's even more conclusive than the blood test, so it sounds like you may have your answer...I don't know if there may be other things that cause the same damage but honestly, Celiac's isn't bad.
Check with your
doctor first!