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Oct 13, 2008
alex's mom
Alex was dx with silent reflux at 3 weeks old. Previously on Prevacid SoluTabs 15mg daily, now on trial of no medication. Was thought to have oral aversion, saw feeding specialist who says he's just not interested in food--no aversion at all. Slowly coming around to food. 15 months, 19lbs, 7 oz.
Early Intervention Program?
This has been suggested for me to try with my son who has oral aversion (the beginnings of it anyway) and I'm very interested. I have tried to look online but have been referred to alcohol/drug rehab pages. If anyone has a website or phone number I would be grateful. Thanks to everyone on this site for just posting and letting me be able to read about others and find that I am not alone!! Have a great, high calorie food/bottle filled day! Ha! I keep praying for that for my LO.
Oct 13, 2008
sadie
Our 1 year old daughter has silent reflux, hypotonia as well as benign external hydrocephalus. We are currently weaning onto whole milk (we'll see if it works) and she is also on Prevacid 15mg per day.
What state are you in?
Oct 13, 2008
baby quinn's mommy
Mom to a 3 year old baby girl with severe reflux: g-tube, nissen fundoplication. dx: RAD, failure to thrive, DGE, epilepsy, sleep apnea, paraesohphogeal hernia, high lactic acid there's more "unknown disease"... Hospitalized 12 times, PT graduate! ST graduate! OT graduate! Current Meds: singulair, zopeonex, pulmicort, reglan, Keppra, Trileptal, vitamin B6, Veramyst. Current weight: 34 lb. Current height: 39". g-tube dependent, oxygen 1-2LpM all day and night PIC: Ms. Quinn
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You might try looking up Occupational Therapy or Feeding Therapy.
Oct 13, 2008
alex's mom
Alex was dx with silent reflux at 3 weeks old. Previously on Prevacid SoluTabs 15mg daily, now on trial of no medication. Was thought to have oral aversion, saw feeding specialist who says he's just not interested in food--no aversion at all. Slowly coming around to food. 15 months, 19lbs, 7 oz.
Thanks! We live near Seattle, WA. I tried looking that up in Seattle Children's Hospital. Is that like the feeding clinic? We had one visit and the clinic didn't think there was anything wrong!
Oct 13, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
Call your local school district. They should be able to point you in the right direct. Most of the time EI is a branch of the local school. If they don't hlep call your pedi. they shoudl DEF. be able to give you the numbers.
Oct 13, 2008
zack'smom
Zack born 09/28/07 @ 31 weeks. Dx silent reflux @ 6 mo. Now not so silent. Switched to Elecare @ 9 mo. On Prevacid 15mg 1x daily. Looking to stop the puke and gain some lbs.
Puke stopped about 24 months and he's learning to eat...very slowly.
Still on prevacid and periactin.
http://www1.dshs.wa.gov/iteip/
Oct 13, 2008
nicholasmom
Renee, mother to Nicholas, born 4/18/08 with silent reflux, moderate laryngomalacia, Sandifer's Syndrome& suspected MSPI. On Neocate, Simply Thick and Prevacid. Also mother to Nathan, born 12/06/06, who had mild reflux the first few months.
Yeah, the local school district is who's in charge here in Florida. We have Nathan enrolled for speech delay. They've been pretty helpful and whatever our insurance doesn't cover, they pick up, which is huge (especially with the economy the way it is). Good luck!!!
Check with your
doctor first!