Posted By Posting
Oct 09, 2008
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
just feel like talking about being sad
I was cleaning out my medicine cabinet today. I could not believe how many tummy medicines i have in there. Kids tums, peptobismal, 3 bottles of mylanta mylanta, carafate, 2 half bottles of milk of magnesia, mirilax, mineral oil, reglan(used for about a week), zantac(kept in hopes of med wean), green boxes (15mg) of prevacid and now pink boxes of prevacid (30mg), mylanta gas, about 5 or so empty to half used bottles of mylicon gas drops. These are ALL emily's!

It just makes me so sad that even with all these medicines her tummy is just so messed up. I am afraid that we may never really know whats causing all this, kinda afraid that nothing at all is wrong except that it's just CSID. b/c if that's true then it's mostly my fault she hurts. She eats what i give her... I just think that there is something else, she is gaining weight and eats fine it's just the consequences of her eating normal PLAIN things... *sigh* just having a bad day...
Oct 10, 2008
lorenzomama
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
((HUGS)) Sometimes we all just need to feel sad for what our little one's have already dealt with, and for the pain we feel because we love them and want them to be healthy and happy and carefree...
Oct 10, 2008
engin117
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including engi.nowaira.net, engi@nowaira.net, Engi@nowaira.us, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
I am sorry you are having such a tough time with your little one. It is so tough when they keep hurting and we cannot take the pain away. I wouldn't say it is your fault that she hurts. The kind of diets our children require to be pain free are extremely difficult if not entirely impossible in order to keep them pain free.

Just wanted to share with you my website. The first is a page I have began working on for the Eosinophillic disorder stuff on Meggy's website. The second link is the home page of the website. It still have a long way to go, but this is the beginning.

Hope some little thing there is encouraging.

Engi

http://engi.nowaira.net/Megan%20Nora/quality_of_life.html

http://engi.nowaira.net/index.html

Oct 10, 2008
jenrackley
PAGER Volunteer Services Coordinator
Nutritionist
Melina 7/24/02 now reflux free!!
TWINS:
Ella 5/3/05 GERD, asthma, hypotonia, food intolerances, esophagitis, IBS //
Ava 5/3/05 asthma, food allergies
Pic: My girls! They are getting so big!
I am so sorry! I understand what you mean though. (((HUGS))). E-mail me if you want to chat!
Oct 10, 2008
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
I feel your pain. I am so envious at children at her school who can eat whatever they want and seem to always feel O.K. For us, it is a constant worry that never goes away.

We do have to have faith that it will eventually get better

I have given up on beating myself up for giving her foods that make her sick. I try my very best and I often goof up ...but I am only human.

Hang in there. You will feel better tomorrow.

Oct 10, 2008
engin117
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including engi.nowaira.net, engi@nowaira.net, Engi@nowaira.us, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
R u feeling better today?
Oct 10, 2008
mom2halleyann
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
I don't have the right words to say to make you feel better. Just sending you a huge hug and some extra prayers tonight.
Oct 10, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
Hugs Kat! You're a wonderful mom and so strong! You deserve to feel like being sad sometime!
Oct 11, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
I hope today is better! I know how bad it sucks to wonder what it is that your kid is eating that is making him or her sick and not feeling you like can do a da*n thing about it. I don't have much in the way of advice, but I a thinking of you and you are NOT alone!!!
Check with your
doctor first!