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Oct 07, 2008
katiesmommy
Tracey, mom to Katie. Diagnosed with reflux at 3 weeks and put on Zantac. At 8 months old she was removed from Zantac as it was giving her migraines, currently on Prevacid. Switched to Elecare since she is not gaining weight; trialing solids after being off for a month. Geneticist said reason she isn't gaining weight is she is stubborn. Upcoming appts.: Neurologist for developmental delay and EGD scheduled for September. She is one funny baby!
Erithomycin-or however you spell it

Hi all! We went to the GI since Katie stopped eating for a week. We now think that she did in fact have a sinus infection and that the abx are just now kicking in after 6 days. I wasn't as concerned as they doctors and nursers were but their concern caused me to be concerned. Why couldn't one of them say it might take up to a week for her to start eating again? If they had said that I would have stopped worrying since she was still playing and talking. Instead they freaked out and contacted her GI as an emergency appointment that needed to be resolved. Of course she ate well yesterday after I had made the appt. and today so far so good so I felt like a dork for taking her in. She is still refluxing pretty bad and can't have any sort of grain in her diet or she stops sleeping but dr. wants us to continue to try in case she is getting nightmares and not food related. I think it is food related but since she hasn't had oats or wheat in any great number in months (oats at least) I am willing to try.

She put Katie on erithomycin (sp?) since Reglan has so many bad side effects personality wise. Anyone have any issues with it? Katie has gained some weight which surprised us both since she hardly seems to take in enough calories (400 a day normally) to do so so Yay for gaining weight!

Oct 07, 2008
molson1525
Mary & Nicholas 7-17-03 (non-refluxer)allergies, asthma on Singulair and Flovent & Aidan 1-28-07(my refluxer)Nissen Fundoplication on June 20, 2008, FTT, MSPI, DGE, ear tubes, allergies and severe GERD now currently taking just Prevacid and drinking Elecare Vanilla 1+.
YAY for eating, feeling better, and weight gain. We used Erthro for months with no issues but it never really worked for my child. There was a recent discussion on here about how they are discontinuing Erthro so you probably won't be able to use it for much longer. Antibiotics are so hard on refluxers bodies it definitely can take up to 2 weeks after stopping the antis to see an improvement. Doctors don't tell you this when they prescribe them because I think honestly most of them just don't know how it effects a refluxer. I hope she keeps the weight gain up.
Oct 07, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
We have had NO issues while Jedd was taking the EES. He wasn't even on any probiotics while takng it either....It worked OK for Jedd. Reglan worked MUCH better. I hope it does great for you.
Oct 08, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
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We didn't have any "issues" with it except that it didn't work! Reglan didn't either, but had the side effect of very disrupted sleep and fussiness. I have also heard about bethanocol, but our GI said reglan works the best so when that didn't work we just dumped the motility drugs and waited it out. She got much better around the one year mark, motility-wise.
Check with your
doctor first!