Posted By Posting
Oct 06, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
About to rip out my nappy, frizzy, split-endy hair if this kid doesn't start sleeping ASAP
Hi everyone. It's me ranting about one of my two favorite topics...sleep and poop! Today's subject is sleep. Quick question.

Sebastian has a crappy, crappy cold right now. His nose is running nonstop like a faucet. He is sleeping even worse than usual (how is this even possible???!!). I am fine taking care of him and comforting him 24/7 when he's sick. HOWEVER, he keeps waking up all night to PLAY...so I know he can't feel THAT bad. He is also waking up at 5 a.m. (sometimes early) raring to go (although he is obviously tired as crap). I am certainly going to him every time, and rocking him forever, feeding him, changing him, holding him, and putting him in my bed (he hates this), etc are NOT WORKING.

What do I do? He is already down to one nap and is currently getting about 9-9.5 hours of broken sleep a night and 1-1.5 hoursof sleep during the day (if we are lucky). I can't leave him to cry at night because his nose will be so stopped up (it's bad). He sounds so awful when he sleeps as it is. I am just worried that he isn't going to get better any time soon if he isn't sleeping.

Sigh. Do all kids do this? Do yours? Any tips are welcome. At least this isn't affecting his Herculean strength. He is currently carrying around a full, unopened gallon jug of nursery water.

Oct 06, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
I just saw your "post" on fb too...you're having a nice morning! When Maggie was sick I did whatever I had to but when she wasn't sick, I was very stern with her. One of us (usually dh) would go in and just lay her back down with her blanket and paci. We never talked to her, rocked her, held her, nothing unless she was sick. Even when she was sick, the interaction was very minimal. It sounds bad when I type or say it, but everything I've read (and my experience) tells me that if you interact with them, it only reinforces the behavior.

NOW I'M KNOCKING ON A BIG OLD REDWOOD TREE BC I DON'T WANT TO HAVE THIS BITE ME IN THE BUTT!

Oct 06, 2008
abbysmom
Andrea: Mom to 3 crazy girls!
Jackie (3/01)
Payton (9/03)
Abby (4/06) Prevacid 7.5mg (evening), MSPI, goats milk (currently trying to wean off Prevacid)
Photobucket
Will he take more than one nap? ( i am sure that you probably have tried that LOL) Usually kiddos at his age are still on one nap. Being OT can def cause problems with nighttime sleep and cause ewings. Yucky about the cold! I hope that he is feeling better soon. You might want to try keeping a daily journal of wake times, when he goes down for a nap, when he actually falls asleep and wake up times. I found that this really helped with Abby as I could see what was going on for weeks at a time and finally figured out a good routine for her. It is hard to remember things when you get so sleep deprived.
Oct 06, 2008
blueleopard
Pictured: G'mom w/3 kids. I'm mom to 1 angel Melissa (dec'd 11/92 - hypoplastic left-heart syn.)
2 healthy daughters (knock wood) Cory (16), Kim (11) & Eric (4) diagnosed with e.e. (scoped 8/08), GERD & severe food/seasonal allergies, asthma. Cried non-stop first 17 mths. of life Found out he is allergic to cow's milk, soy, eggs, and peanuts. Takes Prevacid, Neocate One Plus & Flovent.
I am not saying this will help matters, in your case, but I had to cut Eric's naps out completely at about a year of age. He has an incredible amount of energy in general (side effect of allergies?) & he really did not WANT to nap at all. So, now he goes from 8:30 or 9:00 p.m. to 5:00 a.m. (gets changed/bottle in the dark), then back to bed until about 10 a.m. We did have to do cry-it-out, put him in awake with favorite teddy, etc. way back in the beginning. However, if he is really sick, his sleeping is affected, of course. I hope you can figure something out - I know it's so hard to be deprived of proper sleep. Ellen
Oct 06, 2008
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
Hi there, are you doing the saline nose drops and a vaporizer in his reom at night? Also, is he too young for benedryl? Benedryl and Motrin always helped the nights for us but I can't remember at what age you can start the benedryl. Also the Vick's rub.

I am sure you have tried all these. It is just what I can remember doing for Katie.

Hang in there. When they get older the colds aren't so horrific at night.

And yes, Katie was the same way.

Oct 06, 2008
lorenzomama
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
Hmmm...as usual, he sounds EXACTLY like Lorenzo (except, if you can believe it, Sebastian's current sleep is L's normal sleep...). When Lorenzo has a cold, I give him a bath just before bed and then slather his chest with a combination of vick's vapo rub and a similar product (by the same company) called soothing baby rub (or something similar) which has is the same consistency but is more mild and also has lavender, which is said to assist with making people feel sleepy. I also make sure I have a little vapo rub on my finger when I feed him (BFing, still) so that his nose stays relatively clear while he nurses. And finally, although he hates it and squirms away from the position lots of times during the night, I elevate his head as much as possible (even putting him the carseat to sleep if it's really bad -- which still means crappy sleep, but at least he doesn't sound like he's dying).

Hang in there. Colds suck. Lorenzo has had two in the past month and I always want to run away from home when he gets them... Fortunately, they do, eventually pass. ((HUGS)) and may regular crappy sleep return to your home soon!

Oct 06, 2008
lorenzomama
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
Also, if it helps as far as number of sleep hours... Lorenzo has slept a total of 9 broken hours of sleep, per 24, for months. Every doctor mention this to says that, as long as he doesn't have any developmental delays or extreme behavior issues, he probably just doesn't need more than that. I'm not sure I buy that completely, but for what it's worth, that's what they say....
Oct 06, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Hi ladies! Thanks! I always get the best advice on here. I should add that the 9 hoursish of night sleep is cold related. Usually (well, before the last ear infection) we get about 11 hours of broken sleep...which is MUCH better. It's just now is making me want to stuff myselg in my oven. I couldn't believe it when I fed him in the middle of the night and then soothed him and he started laughing and shouting "dadadadadadadada!!!!" I seriously considered putting him in his closet (it sounds worse than it is. His closet is very organized. I'd behappy in there) and leaving. The house, not the room.

Ellen - who knows if it is the allergies? I do know that when I had my 20-week sono, it took about two hours because he wouldn't stop flipping around long enough to get a head measurement. The tech lady warned me. Da*n her for jinxing me. And I swear, for like 8 months, he woke up EVERY night at the time he was born! Seriously! He did! (This was 3:57 a.m., so you can imagine how happy this made me).

Ok. I have the green froggie humidifier going, and I held him down and used the Nosefrida before his nap (usually I just use the bulb at night, but this called for serious recourse). This nap better be better than last night.

Thanks again!!!!!!!!!

Oct 06, 2008
sadie
Our 1 year old daughter has silent reflux, hypotonia as well as benign external hydrocephalus. We are currently weaning onto whole milk (we'll see if it works) and she is also on Prevacid 15mg per day.
I can only offer online hugs! You don't work at home do you? Is Sebi still on Zyrtec? This morning Keira woke up at 5:30 and her nose was red on the outside and stuffy. Sometimes I wonder if I should hold off on the Zyrtec when she's getting a cold. I wonder if it makes it worse? Sebastian has other allergies though so he may have no choice. Just a thought. I LOVE that Vapo bath from Johnson and Johnson as well as the vapo rub. I think it's even harder for us because unlike other mommies- we've been dealing w/ sleep struggles w/ our children since BIRTH. It's not like just the usual sleep deprivation and then all is fine and then OH he has a cold now so his sleep is off....OH NO....it's been like this for a long time, ya know? Oh and I think some of it is just that they've had such issues w/ sleep that it's almost ingrained in them right now. Keira has been waking up at 5 or 5:30 just talking and playing....even though she might go to bed at 8pm. And it use to be that she'd go back to sleep...eventually. But not now...oh no...she's raring to go even though just like you said-she's way overtired. I don't have any advice but when I hear my friends talk about their one year olds sleep for three hours in the afternoon- I WANT TO SCREAM! LOL. HUGS!!
Oct 06, 2008
mom2coy
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
Hi there. My suggestion is that we all find a reduced rate cruise line that will take in a bunch of overtired, stressed out moms for dirt-cheap and just go AWAY! think about it.. sun and sleep, what more can you ask for! they can all stay with their dads for a week, right?

seriously though, have you left him for an overnighter yet? i'm doing it this coming weekend with a fellow mommy friend. you need some sleep and relaxtion for yourself.

as far as the sleep. i've been having the same issues.. the cold and ALL. i went to talk to a veteran mom-i.e-one with 3 kids.. and all boys to boot. she said that all of her kids slept differently and not very well. the middle child was crawling out of his crib all night long at 10 months of age. the last cried for hours. the youngest actually still gets up @ night (he's 4) and will go into the kitchen and take food back to his room!!! at least he doesnt disturb anyone, right?

other mom's i've spoken with and a couple of sleep books i've read said that many kids will get up early (5 am seems to be the time) for while around their 1st birthday.. my GF son did it (no reflux or allergies) and my other GFs son did too (no reflux or allergies)... coy is doing it too. luckily though, for the past three days he got fed and rocked back to sleep and then continued to sleep for another 1.5 hours. and, i'm happier with 5 am then 130 or 330, kwim..

not sure why he wont go back to sleep @ 5 am. maybe you should do a dramatic wake up @ 5am and then lay him back down @ 8? wake him at 930 and then try another nap sometime after lunch? my advise sucks..just rying to help. we've been trying one nap for 2 days now. yesterday it lasted one hour. today so far one hour.. we'll see.

good luck. and take a vaca!
Oct 06, 2008
sadie
Our 1 year old daughter has silent reflux, hypotonia as well as benign external hydrocephalus. We are currently weaning onto whole milk (we'll see if it works) and she is also on Prevacid 15mg per day.
I still agree on the cruise- MOMS OF REFLUX BABIES CRUISE '08. ;) One thing I have to say- in a way it's nice that Keira isn't walking yet because I never have to worry about her trying to get out of the crib. By the time I do she'll be a little older. ;) I feel bad for saying it but it's true. ;)
Oct 06, 2008
katiesmommy
Tracey, mom to Katie. Diagnosed with reflux at 3 weeks and put on Zantac. At 8 months old she was removed from Zantac as it was giving her migraines, currently on Prevacid. Switched to Elecare since she is not gaining weight; trialing solids after being off for a month. Geneticist said reason she isn't gaining weight is she is stubborn. Upcoming appts.: Neurologist for developmental delay and EGD scheduled for September. She is one funny baby!
When Katie was/is first getting sick she will do that too. Scream until we pick her up then she plays. We tried bringing her into our bed and she just started crawling around even though she was sooooo tired. No advice to give, just hugs and my lo does the same!
Oct 06, 2008
engin117
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including engi.nowaira.net, engi@nowaira.net, Engi@nowaira.us, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
LOL,

He must be pretty strong to be carrying that jug around. Doesn't it amaze you what the lo's can do. OH Me! The sleep Monster is there.

Sorry he is not sleeping on top of everything else. Megan hardly naps. We go from 8AM-midnight most days without a break.

Have you tried to leave him for 10 min while you are out of sight to see if he can fall back to sleep on his on.

I am sure you have. If he is not in pain, sleep training may work but will be harder on you than him. It is heart breaking to hear them cry and not go to them.

It may or may not be the same for you, but the more we touch Meggy at night the more alert and awake she becomes. We are in the habit of her sleeping in our bed next to us. She starts out in hers every night, but then the crying starts and last sometimes 5 hours no matter where she is (her bed or ours) we just cannot stay awake to keep untangling her from the rails in her bed. While in our bed, we will feel and wake if she crawls over us to get up.

Because in her crib she twists so much that she gets stuck between the rails. Other times she flails about and bruises herself on the rails. We tried a toddler bed but the results were not any better.

I have heard a lot of people say that Melatonin drops do the trick but I have yet to try them. There is material that says it is great and other material says it can cause long term problems.

Oct 07, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Hi everyone! Thanks so much!! Kel- how did the one nap go yesterday?

I am OK with sleep training - we have tried it 9,456,789 times...it just never worked for along (and NEVER for naps. I have to rock him to sleep) because he always got sick soon after! I didn't make it clear that I needed help getting him to stay asleep when he is sick...and playing in the middle of the night!! WTH?? When he is doing OK, we feed him once and then pretty much ignore him unless he borders on hysterical. Then i check for wet PJs (happens sometimes) and give a little reassurance. He doesn't get all this attention at night whe he is not sick.

Last night was much better! He fell asleep around 6:15, then slept straight until 9:15. He cried and tossed around but didn't really sit up from about then until 10:30, then slept until 2, then woke up to eat....then slept until 4:45, rolled around, cried, then slept until 5:25. Almost a typical night, but a little worse. I didn't go to him unless he stood up and was yelling. I'll be stopping that once his nose returns to normal!

Thanks again!!

Check with your
doctor first!