Posted By Posting
Oct 04, 2008
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
insurance screwed up!
Our pedi referred Audrey to a GI over a month ago but b/c of insurance issues we haven't been able to go and we can not afford to be self pay (300-400$!!!) The state selected her an HMO before my 30 day choosing time so i got stuck with a plan the Pedi will take but the GI will not.

I called the medicaid options line (finally after 90 mins on hold!) and a lady told me that my pedi was not on the list for Medipass HMO so she would put her PCP as the first choice on the list of medipass providers closest to my house; this happens to be the Hernando County Health Dpt. She also said she would send the Pedi billing dpt a letter asking to open Audrey a file for Medipass.

So i call on the 29th to make sure the letter was sent and the file was opened. (after waiting on hold for an hour) I was told that the letter was never returned but the girl did give me the "Magic" phone number to Medicaid central billing! I called the pedi to see if they ever got a letter and she said no. So i called central billing and the lady there told me how to do everything and that everything would be fixed if i get the pedi to fax in a letter saying they are allowing Audrey to be on medipass b/c it's the only Medicaid HMO the GI takes.

well it got sent in on time and audrey now has medipass BUT central billing FORGOT to change her PCP from HC Health Dpt. to the PEDI. I choose!!!!! It takes a MONTH for them to change this error!!!!! So this means the ONLY way audrey can see the GI before November is for her to be seen by a dr at the HC Health Dpt. and i have to go through the whole spiel of this insurance blunder and pray and BEG that the Dr there refers us to OUR GI. They refused to do a referral by phone! ugh!

mean while poor little bug is having a bad eating and sleeping day b/c she hasn't pooped in three days, suppository time... :( oh yeah at the pedi she weighed 11lbs 2oz for 14 weeks.
Oct 04, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
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oh my gosh, I would be livid (as I am sure you are). Have you looked up more info about intususseption (sp?)? I heard about it from you, from someone on another site, and also from engi all within the same couple weeks! Audrey needs some relief, poor baby. It is so hard dealing with the insurance stuff, we have been there! Those hold times you are dealing with are INSANE!
Oct 04, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
Man, Kat, that's terrible. Poor little booger.
Oct 04, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
I had to read this twice because I was so lost. I cannot believe your stupid insurance company had you running around in circles like that. Wait - yes, I can. Good luck with the referral. Can you ask for a referral to a particular doc? I did that with our last allergist before we started seeing Dr. Wood....

Sebastian had his first suppository in months today! Poor kids! So sorry about little Audrey being stopped up. Poor baby!!

Oct 04, 2008
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
melissa you think you were lost! i had a terrible time finding the ins and outs to this myself!! LOL How did the suppository go? Sometimes i have to give audrey 2 of the pedilax, others i have talked to say it gets their kids to go in less then 20 mins, i hope that was the case with Sebi! lol

melissa, she is feeling much better now she ate her first full meal at 9pm after i made her poop at 5pm

Sharon i e-mailed you back, i found the correct spelling to our weird word! I googeled "partial bowel obstruction" and got intussusception it's not a malrotation disorder like i had thought. When A was a few days old i told the pedi that when she poops it looks like some of the skin from inside her rectum is coming out. I forgot that the pedi had called it an intussusception b/c the word is not pronounced at all what it looks like it would be. Anyway the pedi had told me to watch out for this b/c the most common intussusception is when the large intestine dips out of the anus. but it dosen't happen usually until the baby is 3 months+.
Oct 05, 2008
engin117
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including engi.nowaira.net, engi@nowaira.net, Engi@nowaira.us, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
Kathryn,

I am sorry your LO has to hurt while the mad world of insurance is dealt with.

I hope the situation is resolved quickly and she gets the care she needs.

OH, I did not realize that is what Intususseption is. The definition make me think of malrotation. I guess I thought of it differently when I read this: http://www.spiritus-temporis.com/intususseption/

It occurs when a section of the bowel telescopes inside an adjacent section (a little like pushing the end of a long balloon in on itself).

Intussusception occurs when one portion of the bowel slides into the next, much like the pieces of a telescope. When this occurs, it creates an obstruction in the bowel, with the walls of the intestines pressing against one another. This, in turn, leads to swelling, inflammation, and decreased blood flow to the intestines involved.

Meggy also has a rectal prolapse. That is what the doctor calls it when it looks like her rectum is coming out. I guess ever doctor uses different names.

I guess in which case an enema would be contraindicated.

Oct 05, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Kathryn - the poop mission was a success! I stuffed him full of Miralax today, too, and he had a nice size poop...but it was still pretty hard (but the experience was NOTHING like yesterday, when he was crying and screaming.). I really talk about poop all the time. Poop is fun!
Oct 05, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Kathryn - the poop mission was a success! I stuffed him full of Miralax today, too, and he had a nice size poop...but it was still pretty hard (but the experience was NOTHING like yesterday, when he was crying and screaming.). I really talk about poop all the time. Poop is fun!
Check with your
doctor first!