Posted By Posting
Oct 03, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Wait - ear tubes for us, too?? And no antibiotics for the eye infection. D*mn freaking dog.
Ah, yes. After a fabulous check-up with the ped yesterday, we are having a little bit of a setback. We saw the ENT today (Now, he is no Dr. Wood, but I love him anyway. I love you, Dr. Lee! Can you here me??), and he said yes, it is time for tubes. I guess I have been so obsessed with Sebastian's allergy issues that this was a little bit of a shock. We have had four ear/sinus infections since Memorial Day weekend (first and third caused by allergic reactions, of course, because of all the congestion...). Anyway, Dr. Lee says four in four months is too many. Bassy has also had fluid EVERY time he has had his ears checked (all 9,476 times because I am paranoid and love throwing mopney away on co-pays), and the doc worries that it could start affecting his speech. So the surgery scheduling people will be calling us early next week to schedule the big tubing event.

Sebastian is in love with Louise (it is unrequited love), an dhe constantly touches/smack/abuses her. I usually chase him around with wipes, so I get his hands before he can put them in his mouth or whatever. Well, for some reason, he kept touching her and then rubbing his eyes ALL DAY on Wednesday, and now he has a huge sty and a swollen, red, RED eye. (He also did a faceplant on the concrete yesterday, so he has a bruise above the other eye, so he totally looks like I beat him). Anyway, when I saw the ped yesterday, he said to call today if it got worse. Well, it got worse, so I called and the ped prescribed Eurythromicin (I know I spelled that wrong) topical ointment. Well, Target called me and said they couldn't fill it because the manufacturer said it has milk in it (they call the manufacturer for EVERYthing because of all our drug issues). Wait, WHAT? How does a topical ointment have milk in it? So now Bassy just has to run around with a red bullseye on his face. Poor little man. Can't even do the Benadryl thanks to the paradoxical reaction. I already have an overtired child, and I can't take having an overtired, screaming child (Benadryl makes him HYPER and MAD).

Ok. This was a very long post. I am going to go read my book and watch my cell phone dry out. Sebastian wouldn't stop screaming in the ENT"s today (what is it with him lately?????). so I got desperate and gave him my phone so I could hear Dr. Lee. Well, he slobbered on it like a roaring drunk and BROKE IT. I am trying to find a way to blame this on Louise, but I am struggling. Ok. Enough ranting. GOOD NIGHT, LADIES!!! (If you got this far)

Oct 03, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
I meant, "Can you hear me???"
Oct 03, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
I swear we have used the eye ointment before and no one said anything about milk, nor did we have a reaction. DO they really put milk in eye ointments? I wonder if it is just in the oral med and someone got confused (or more likely, is trying to cover his/her butt)?????
Oct 03, 2008
rissaroo
Picture: This is what happens when you raise a kid on health food and they get ahold of a Coke! Bad mom, that soda is NOT on the reflux diet.
UPDATE: Isaiah is now 12 and off meds! He is doing great, eating again and hopefully will be catching up in the growing department. I am still in the "hoping it sticks" phase, but we're so happy that he's better!
Really?!? Milk, in antibiotic OINTMENT? Oh, man...that's not good news. Is there some other option that his dr. could call in instead? On the ear tubes...sorry to hear that but I guess it's good that you're getting on top of it now and he's not going any longer w/out being able to hear well. My youngest has an ear issue where her eustatian (sp?) tubes are very thin, and when she is congested or has allergies they sort of squeeze shut. She can't hear well, she talks LOUD and asks "what?" all the time, plus she barrels around like a bull in a china shop because her balance is all wonky. If they could fix it with tubes, I'd be first in line! Luckily for us, it doesn't happen too often any more...I bet he'll be happier and talk faster once his ears are better.
Oct 04, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
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Sorry Melissa! All this on top of not being able to feed him and cleaning your whole house everyday...if bassy were to come to my house, the poor guy would be covered in hives within seconds (I clean, but not fanatically like you have to!)! And I have heard of cell phones working again after they dry out if they don't get that wet. it sucks that he has to get tubes, but at least you won't have to deal with so many infections.
Oct 04, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
Dh says you should write children's books.

In my eyes, it's Louise's fault bc she's the reason you had to go to the ent. (is that good enough?-It's something) I'm anxious to see how the tubes affect our winter. It will be wonderful to go through winter without ear infections! I hope that's how it goes for you too.

That's terrible about the sty. I had a little boy in my class once that had one for weeks and weeks. It looked terrible but it didn't seem to bother him. Big ole hugs!

Just ship that dog to me....My dachshund will like her, lol.

Oct 04, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
Oh, if you take the phone to the place, they usually can take it apart and use a blower to dry it. Good as new...
Oct 04, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
I've been trying to find ingredients on the net. NOTHING they all say to "tell the pharm. if you have allergies to foods, etc". I think maybe (since you like throwing $ at drs) I would take him to an opthamologist on Monday. I was reading that an opth. might drain the pus but I doubt a ped would do that. Also I bet the opth. would know the ingredients in all the drops.

Just a thought.

Oct 04, 2008
blueleopard
Pictured: G'mom w/3 kids. I'm mom to 1 angel Melissa (dec'd 11/92 - hypoplastic left-heart syn.)
2 healthy daughters (knock wood) Cory (16), Kim (11) & Eric (4) diagnosed with e.e. (scoped 8/08), GERD & severe food/seasonal allergies, asthma. Cried non-stop first 17 mths. of life Found out he is allergic to cow's milk, soy, eggs, and peanuts. Takes Prevacid, Neocate One Plus & Flovent.
Eric has horrible eye issues and we don't even have our dogs anymore (Bailey choc. lab died last summer, Co Co choc. lab died 2 yrs. ago : (). Anyway, he has like 3 prescription eye meds. One was for an acute attack he had last spring (antibiotic), one is for "allergy eyes" (can use daily if neccessary) & I forget what the other was for. Eric is allergic to milk, too & I don't recall a problem, but thanks for the heads up. Can you double-check with the company itself or ask for an alternative? P.S. Eric now has a bad case of eczema on his eyeLIDS, god, it never ends. Ellen
Oct 04, 2008
baby quinn's mommy
Mom to a 3 year old baby girl with severe reflux: g-tube, nissen fundoplication. dx: RAD, failure to thrive, DGE, epilepsy, sleep apnea, paraesohphogeal hernia, high lactic acid there's more "unknown disease"... Hospitalized 12 times, PT graduate! ST graduate! OT graduate! Current Meds: singulair, zopeonex, pulmicort, reglan, Keppra, Trileptal, vitamin B6, Veramyst. Current weight: 34 lb. Current height: 39". g-tube dependent, oxygen 1-2LpM all day and night PIC: Ms. Quinn
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I just can't believe the kind of allergies poor Bassy has. You work so hard to keep him healthy and I dont think I would be able to do as good a job as you do if Q had so many allergies. i hope the eyes clear up in no time. I didn't know about the milk in the ointment. Maybe you could call the company yourself to double check. BTW, it's way awesome that you have a pharmacy that cares enough to check on that stuff for you. When I told our pharmacy about Quinn not being able to have sugar, they acted like it was too much work, literally rolled their eyes and told me that the number to call to find out was on the information sheet inside each medication.
Oct 04, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Thanks, everyone! I took my phone to verizon today and left $180 poorer. I am going to try the blow dryer trick (thanks, Melissa!) today because I have 30 days to return the new phone. $180 for a 2006 or whatever model is RIDICULOUS - I always just get whatever one I can get free with New Every Two, so this sucks.

The eye looks a little better this morning, probably because he wasn't rubbing Louise all over it all night (she isn't allowed upstairs. I feel a little bad, too, because I may have said things like, "Louise, I am going to give you to our Greek firends and see if they will roast you on their spit," "Louise, I am going to put you in the oven and broil you, then make you into a S'more," and "Sebastian! Hurry up! I am going to hold Louise right here until you get here, and then you can pull her ears as hard as you'd like."

I really do love my dog.

I am going to call the manufacturer myself on Monday. It just seems really weird to me.

Quinn's mommy - I am 99% sure that any Target pharmacy will flag whatever you ask it to. Wait - are you in Canada? This probably sounds stupid, but do you have Target?

Melissa, Louise is a giant butt around other dogs. She might seriously try to eat your dachshund. Something is wired wrong, and she is sort of a cannibal.

Oct 04, 2008
baby quinn's mommy
Mom to a 3 year old baby girl with severe reflux: g-tube, nissen fundoplication. dx: RAD, failure to thrive, DGE, epilepsy, sleep apnea, paraesohphogeal hernia, high lactic acid there's more "unknown disease"... Hospitalized 12 times, PT graduate! ST graduate! OT graduate! Current Meds: singulair, zopeonex, pulmicort, reglan, Keppra, Trileptal, vitamin B6, Veramyst. Current weight: 34 lb. Current height: 39". g-tube dependent, oxygen 1-2LpM all day and night PIC: Ms. Quinn
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No, we live in the US, but the nearest Target is 45 minutes away, down a mountain so it's unrealistic for us to go through that pharmacy.
Oct 04, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
Melissa-I just love antagonizing you about Louise bc you say such funny things about her. This is a true story: I took in a lab for a while. Quietest, lovingest, sweetest dog I ever knew. We have a 10x10 kennel in our fenced back yard. I decided I'd let the lab stay in the kennel and let our son roam the yard. I had the lab on a leash to take her into the kennel. (so she wouldn't attack son) Well, wouldn't you know....son charged her from across the yard! The lab actually had him in her mouth. I was pulling the leash and screaming at the top of my lungs. It was a full on fight and it was dark. I was crying by the time dh came outside. I just knew that Bosco was dying. I didn't want to even look at him in the light. NOT A SCRATCH! I expected him to be bleeding to death. I guess the lab just wanted to show him she was bigger. I almost had dh convinced to keep her but oh well. That did it.
Oct 04, 2008
jessicalynn
Brent 2 years old,
Birthweight 12 lbs 3.3 oz!
Very severe GERD,LPR,FTT
Severe esophagitis/scarring
Paraesophageal Hiatal Hernia,
Esophageal Dysmotility,
Food impaction,Aspiration
ALTE,Dysphagia,Odynophagia
Eosinophilic Esophagitis,Severe retching
Severe allergic colitis/malabsorption
Susp eosinophilic colitis,chronic diarrhea,
Laryngomalacia,Gas/Bloat Syndrome,
Visceral Hyperalgesia,GI Dysmotility,
Chronic infection(ear/sinus/lung)
Adenoid/tonsillar hypertrophy
Gait abnormality/bowlegs,widened growth plates
Susp Vagus Nerve Damage
Surgeries, Nissen fundo,hernia repair/
reconstruction,esophageal dilation,gtube,
ear tubes,adenoidectomy
Bronchs w/ BAL's,lung biopsy
Upcoming scope/colonoscopy
Manometry testing in Oct.
Meds: Nexium,Zantac,Baclofen, Neurontin,
Zofran,Pulmicort/Splenda,PrednisonePRN,
NPO tubefed continuous elecare 24 hours/day
Poor little man, sorry he has to get tubes, but they work wonders, 3 of mine had to get thim and it made a HUGE difference. Hugs and good luck!
Oct 04, 2008
ozzie*smom
Becca
ditto on the benadryll
I very rarely post, but Benadryll make Ozzie the SAME way. The mad part makes it seem like he is tired, and my MIL keeps telling me that that way it is...but it is NOT. He gets mad. GL with the tubes - we did GREAT with them - our little booger def does not have Sebastian's allergies, but he is ALWAYS congested, and heaven forbid I don't give him the Zyrtec - the next day is a disaster. We will be aksing for an allergist next dr appt. Kudos to you and the other mamas. You guys are incredible with what you deal with day to day!!!!
Oct 04, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Melissa - I love Bosco! I really wanted a dachshund (I feel like I am spelling that wrong), but I wanted a dog I could run with...so we stayed within the hound family and adopted Louise the Hun. Seriously, she was great until my aunt's Bichon Friese (yes, the purse dog - and Louise is about 60 pounds) attacked her. Then, no more nice dog. She is great with kids and adults, but she haaaatttttteeeeessss dogs. Every walk is torturous for me, which is why I am always so pissed off at her. The problem is that she is so cute and sweet and silly that I can't do any of the horrible things I often dream about. :(
Oct 04, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
Hey, you did spell it right! LOL I hate it when people say they have a "dash-hound". DUH! any way...Bosco hates other dogs too. We could never take him to a dog park or a pet store or anything. Actually since we spent over $2000 on his back, dh won't even let me walk him any more. :( He's a very happy, elderly but spunky, hard-headed 10 yr old puppy. He's turning all white on us :( I truly dread the day that my son passes. I pray that we don't have to go through decision making-I pray that we just find him dead one day--many many years from now.

On a lighter note, dh was gonna take my cat to a roadside pet-med setup to get shots. When I checked it out, it just didn't seem "nice". The vet was basically just jabbing the needle in the animals' butts and that was that. It wasn't "pretty" and "loving" enough for me. Also, my cat is wild and I bet when he pulled her out of the crate, kitty would have split the scene, ran into traffic and that would've been that. All to save a few bucks. Soooooo...I guess I'll be putting a vet visit on my credit card.

Oct 04, 2008
engin117
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including engi.nowaira.net, engi@nowaira.net, Engi@nowaira.us, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
Sebastian is such a cutie pie. I hope that the tubes help him so much. Wow, all the falls these kids take, u would think they would break but they just get back up and do it again and again.

You are a brave woman. I don't know how u keep up with Sebastian and all that cleaning.

That is very strange that the drops have milk, but I am glad they caught that. U don't need anymore problems.

Oh and I have to agree Dr. Wood is fantastic.

Oct 05, 2008
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
I checked this out in several of my pharmacology books, and a few pharm friends of mine....the ointment contains NO MILK. Just erythromycin, mineral oil, and white petrolatum. THAT'S IT, so they must have gotten something screwed up. Maybe you can try (if he'll sit still) warm chamomille teabags on his eye for the inflammation....
Oct 05, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Thanks, everyone! Slimfast 13, I KNEW IT! Thanks for looking it up. It seems ridiculous that an ointment would have had milk in it. I actually argued with Target, but my husband was like, you should be happy they are watching out for Sebastian. Yes, he's right (sheepish grin).
Check with your
doctor first!