Posted By Posting
Oct 02, 2008
madismom
Introducing self
Hi there, my name is Laura and Madison is my daughter. She is 17 months old. For the past 6 months, Madison has been regularly sick. Many ear infections, tonsilitis, fevers of 103 for days, croup (5 times in the past year). On top of that she has had a gastro infection, gagging, choking on liquids, become a picky eater, etc. Well the drs have all decided that most of this is because of GERD. So she is now on 2ml of Zantac twice a day. This has not made a big change in Madi, but she has not had croup once since taking the meds. She recently started having sleeping problems. She wakes up screaming, intense screaming and will not let us console her. Is this common in GERD? Thanks!
Oct 02, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
Hi Laura! Nice to meet ya! Sleep trouble is definitely a symptom of GERD. I will add that zantac is very weight sensitive so the dose has to be changed pretty often and many babies don't see much relief from it. Did the drs tell you to elevate her bed? Raising the head of Maggie's crib helped us tremendously. What is her diet like? I will also direct you to the site's "reading room". There's more info there about symptoms, diet, etc than I can remember :) I'm so glad you found the site and especially the forum. You will get a lot of support here!
Oct 02, 2008
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
Hi and Welcome! Though sorry that you have to be here, like the rest of us! Just a thought, a couple of the side effects of Zantac is irritability and restlessness. GERD definitely adds to the screaming issues as well, but that's one reason why we didn't continue on it - my dd screamed even harder with the week we had her on it, and didn't sleep at all (not that she slept anyway) <[> Another thought may be night terrors? HTH
Oct 02, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Hi and welcome! I know sleep is DEFINITELY a symptom of GERD in our case. When the reflux isn't under control, no one sleeps. We never had sleep on Zantac...it took Prevacid for us to see any kind of improvement. You will get lots of help from the other mommies on here...glad you joined us!
Oct 02, 2008
jessicalynn
Brent 2 years old,
Birthweight 12 lbs 3.3 oz!
Very severe GERD,LPR,FTT
Severe esophagitis/scarring
Paraesophageal Hiatal Hernia,
Esophageal Dysmotility,
Food impaction,Aspiration
ALTE,Dysphagia,Odynophagia
Eosinophilic Esophagitis,Severe retching
Severe allergic colitis/malabsorption
Susp eosinophilic colitis,chronic diarrhea,
Laryngomalacia,Gas/Bloat Syndrome,
Visceral Hyperalgesia,GI Dysmotility,
Chronic infection(ear/sinus/lung)
Adenoid/tonsillar hypertrophy
Gait abnormality/bowlegs,widened growth plates
Susp Vagus Nerve Damage
Surgeries, Nissen fundo,hernia repair/
reconstruction,esophageal dilation,gtube,
ear tubes,adenoidectomy
Bronchs w/ BAL's,lung biopsy
Upcoming scope/colonoscopy
Manometry testing in Oct.
Meds: Nexium,Zantac,Baclofen, Neurontin,
Zofran,Pulmicort/Splenda,PrednisonePRN,
NPO tubefed continuous elecare 24 hours/day
Hello! :)
Oct 02, 2008
engin117
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including engi.nowaira.net, engi@nowaira.net, Engi@nowaira.us, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
Glad you have found us. The ladies here have provided what feels like miracles to me. The amount of imformation and help is endless.

Meggy had trouble with Zantac and that is all she would do while on it.

I think it would be hard to tell if the crying all night is the zantac side affects or reflux.

I refer to reflux as a monster because of all the tough times it brings.

I think the screaming and not allowing u to console her is a major sign at least for Meggy's perspective. Sometimes we try to hold her and calm her but she squirms and arches her back so hard and fast that it is hard to hang on.

She rolls around in her crib so hard she bruises herself, but she also has spasms.

Have a good evening.

Oct 02, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
Photobucket
Hello, my first thought is that zantac may not be strong enough for her. My second is that the dose may not be large enough because it is very weight sensitive (your dd's dose is what my dd took when she was 8 mos old (6 mos adjusted). You could ask to try a different med.

Second, zantac keeps my dd awake. We dropped her night dose when she was ready and she suddenly started sleeping thru the night immediately. it was like a miracle!

Oct 02, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
Photobucket
Also, does she have a senstive gag reflex? My dd does and she chokes/gags very easily but if you think it might be a swallowing problem ask for a swallow study. Respiratory issues can be caused by aspiration either from the tummy or while drinking/eating. And, ear infections can also be caused by reflux. If the refluxed acid goes too far up it can actually affect the ears.
Oct 03, 2008
lorenzomama
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
Sleep is definitely something most mothers of GERDlings long for. One of the really big challenges is determining when sleep issues are the result of something directly related to GERD and when they are related to "normal" developmental things and common illnesses.

My son is also 17 months, and while it definitely sounds like you need to determine if the Zantac is causing trouble, I also wonder if she has her molars yet. I know it sounds crazy, but I know several children who suffered so much with the pain of molars coming in that they seemed like they must be suffering from something imminently fatal. It may have nothing to do with it, but it is one of the easiest things to rule out and also to help with....

Welcome to PAGER, and I hope you get some sleep soon!

Oct 03, 2008
mom2adriane&morgan
Adriane Reese 05/16/07; seemingly healthy when born; diagnosed with MSPI, severe Reflux, Apnea, Ashtma, Epilepsy, and severe food allergies(rice, corn, milk, soy, eggs, oats, wheat, beef, chicken, squash, pumpkin, avocado, etc.);On apnea monitor, seems to be tolerating RCF w/carbohydrate mixed in; on Zyrtec, Xopenex, Prevacid
Welcome! My dd Adriane will be 17 months on the 16. I know that the croup thing could be related to the reflux but do you have a history of asthma in the family? My oldest dd used to get croup several times a year and then they dx her with asthma. Daily neb treatments might be beneficial. I know that when Morgan or my reflux flares our asthma is worse.

I think alot of the pp have great suggestions. The other thing would be to check into a pediatric pulmonary specialist about the croup issue. Have they checked her immune system? IGe, IGa, IGg levels? Those could play a role in her fevers and croup and stuff also. I hope that you find help and comfort that you were hoping for when you came here. -Amanda

Oct 03, 2008
jenrackley
PAGER Volunteer Services Coordinator
Nutritionist
Melina 7/24/02 now reflux free!!
TWINS:
Ella 5/3/05 GERD, asthma, hypotonia, food intolerances, esophagitis, IBS //
Ava 5/3/05 asthma, food allergies
Pic: My girls! They are getting so big!
I just read an article the other day on reflux and croup. I think the fact that your daughter is better now that her reflux is being treated is a sign that perhaps it was behind the croup issue. Here is the article:

http://www.medicalnewstoday.com/articles/122455.php

My refluxers definitely had a lot of the issues you are mentioning. Mine were not good sleepers until their reflux was well controlled. Zantac is pretty weight sensitive so we had to keep close track of the dosage when the girls went through growth spurts... like Sharon said. If it doesn't seem to be working their are meds that are a "step" up. Unfortunately it tends to be "trial and error" to find what works best for each child.

Do you have a history of food allergies/allergies in general in the family? That might also be worth looking into if she is still in pain on the GERD meds.

Two of my little ones also have asthma which caused a lot of the nighttime coughing. The coughing at night is completely gone now that they are being treated for asthma.

Just thought I'd toss you some extra info. I am glad you found PAGER, let us know if we can help in any way!! WELCOME!
Oct 04, 2008
madismom
Hi everyone, thanks for all the info and support. Ironically enough I have not been able to check my posts b/c Madi was hopsitalized with croup on Thursday evening and we just got home today. Very frustrating. I have one dr telling me zantac is useless and another saying its fantastic. They are saying that Madi's croup is party related to the GERD but also they believe she has a weak windpipe, so a viral infection will cause her to get croup. My poor little girl is so tired of being sick and tired of being tired, but we don't seem to be getting much help. I am at my wits end with everything and feel like Ihave hit a wall.
Check with your
doctor first!