Posted By Posting
Oct 02, 2008
amber f
Nolan's first year~ surviving the reflux rollercoaster
6am Oct. 2nd, 2007 I entered the Melrose Hospital unaware what the next few months were going to bring. I was full of hope for an easy labor and so excited to meet our new addition. At about 7:00 am the pitocen was started and the labor began. With each contraction I was getting closer to meeting my sweet boy. 5:40 PM Nolan Joseph Fleischhacker was welcomed into this world. Weighing in at 8lbs 13.8ozs and 22 inches long. My first thought was he is so big!!! He had the biggest hands and feet of any newborn baby I have ever seen. He was so long. We were thrilled. At the hospital I noticed already that he was spitting up an awful lot. I didn’t really think anything of it. He was a breast-feeding champ. The first few weeks were bliss. I thought it was no big deal having a third child. I was so relaxed and calm. Life was good. At our one week check up I made a comment to the nurse about how great everything was going. I couldn’t have imagined it any better. I asked about his spitting up saying that people (mainly my mother) kept commenting on how much he spit up for a breast-fed baby. The nurse said as long as he wasn’t in pain it was fine. Two weeks later Oct. 26th we were back in to the clinic because he was screaming after every feeding and spit a lot of it up. He would unlatch and arch his back while he was nursing. He was diagnosed with AR and was put on Zantac. Two weeks later we were back to the doctor because he felt better for a week and then all his symptoms came back. So she suggested prilosec. That seemed to help but we were back to the doctor almost every two weeks for a weigh in and increase of the meds. In Feb. I found the site reflux.org. There was a forum where I could meet other parents of a child with reflux and ask them questions. I remember my first post as if it was yesterday. I was so overwhelmed and desperate for answers. I tried everything and nothing was helping long term. I found some really great people that had some answers for me and suggested I ask the doctor about prevacid solutabs. I am so thankful. The solutabs worked miracles. These wonderful people helped me through so much. Through our breast-feeding struggles and bottle fighting. I would have lost my mind if I hadn’t found this site. After months of unconsolable crying, screaming, pulling away I had found others who were going through the same things.

Nolan has been through so much. 5 months of pain. It has been one emotional year. He is walking and starting to talk. He has reached every milestone. He is so smart, sweet, and loveable. It breaks my heart to realize that there was so much wasted time waiting for Nolan to out grow his reflux. So much pain he had to go through. I never thought we would make it. The helplessness I felt and now the realization that I will never get those baby days back again still makes my heart ache. Dylan and Jasmine were robbed from so much also. Siblings of a high needs baby have it rough too. I was short tempered with them and was so consumed in Nolan’s needs their needs were pushed back. They accepted it and tried to help as much as they could. I have really great kids. Now Nolan is turning One. I’m very hopeful that our ride is almost over. I vow to love and cherish the rest of our years and never for once take for granted our blessed life. No more regrets or wishing that he would be older and have outgrown reflux. I’m living in the moment. I’m thankful for I all I have. I have a supportive husband and a great family. We survived the reflux roller coaster with only a few scars and memories that will never be forgotten.

Happy Birthday my sweet boy.

Oct 02, 2008
amber f
I wrote this on Tuesday before the med wean but I now I should change the bottom to we are surviving the reflux rollercoaster. Sadly I don't think our ride is over.
Oct 02, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
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What a sweet tribute. i am so happy that this site helps so many mommies. I agree with you that *I* would not have survived without it! I ache for those "lost" days too that we will never get back, but I am trying to enjoy all the great moments now. :) Happy Birthday big guy!
Oct 02, 2008
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
A big Happy Birthday to Nolan and a nice ice cold margarita for mommy! You're an amazing mom, dealing with this and raising 2 other kids who know you love them enough to try to help you through the rough patches, even if they didn't get enough attention.

You keep that head held high, knowing the amount of strength this trial is lending to you, and how it could have been worse, but it was bad enough as it was. {{{HUGS}}}

Oct 02, 2008
mom2coy
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
Happy B-day Nolan. It's amazing how our little boys are all one year old already! i so hope that it goes away soon :(
Oct 02, 2008
mom2halleyann
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
This brought tears to my eyes. I thank God for the PAGER moms (and dads). Hopefully all of this will soon be in your rear view mirror. Hang in there.
Oct 02, 2008
amber f
Thanks everyone here is a picture...
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Look at those feet:)

Oct 02, 2008
amber f
Sorry I resized but forgot to save try again
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Oct 02, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Happy birthday, little Hercules! You are so lucky to have a mommy that loves you so, so much. No baby deserves to go through so many tests in his first year of life...but you have prevailed! And I wish (as your mommy does) it had been under far different circumstances, but I am so glad to have "met" you here on this board. I finally found a positive aspect of reflux - it has hleped us make some truly great friends! So happy birthday, Nolan. I hope you have a fabulous day and REMEMBER - BIG BOYS ROCK!!!!
Oct 02, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Those feet look like mine.
Oct 02, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
HAPPY BIRTHDAY! HOPE NONE OF THIS HAPPENS TO YOU, NOLAN!
Oct 02, 2008
mom2halleyann
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
LOL! Halley was a little squirt (5 lbs 12 oz and 18") but she had HUGE feet and hands as well. Thankfully she's finally grown into them, but it took almost a year :-)
Oct 02, 2008
amber f
Thanks Melissa~ I hope non of that happens also.

Nolan still has big feet. He is in a size 6.5- 7 shoe already. He has big hands so my dad nicknamed him Knuckles! Poor guy. My dad took one look at him at the hospital and said "Hi there Knuckles!" I'm curious how big he'll be on his well check on Oct. 17th.

Oct 02, 2008
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
haha nolan reminds me of a little puppy that has to grown into his feet lol that is such a touching story i am glad you have found us and i am glad to know you and nolan. happy birthday little man!!
Oct 02, 2008
daniejo
Mom (Danie) to Adam (9-4-03) & Nate (3-7-07) Nate was diagnosed with silent AR at 2 months old. He was on neocate, prevacid 30mg per day and couldn't start solids till he was almost 8 months old. He started cow's milk at 14 months and is currently off all meds!! So far so good :) PIC: Disney trip 2008. Nate didn't know Piglet was there, he didn't like the characters too much.
Happy Birthday little man.
Check with your
doctor first!