Posted By Posting
Oct 01, 2008
rissaroo
Picture: This is what happens when you raise a kid on health food and they get ahold of a Coke! Bad mom, that soda is NOT on the reflux diet.
UPDATE: Isaiah is now 12 and off meds! He is doing great, eating again and hopefully will be catching up in the growing department. I am still in the "hoping it sticks" phase, but we're so happy that he's better!
I hate reflux.
Just wanted to share that...I know you guys understand but man, some days I just really get mad at this stupid disease. Isaiah is feeling icky and we had to come home early from visiting with friends and now he's popping Tums again and I just wish I could make it better for him. Sorry, I just needed to vent...I just get so upset when it flares up and I get worried about him all over again. I'm so thankful it's not worse...but I sure wish it was better!
Oct 02, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
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So sorry he isn't feeling good. I wish that ELyse could tell me what she feels like so I would know if we need to change meds again....but at the same time I don't want her to have gerd hang around until she IS old enough to tell me! I have reflux too, which is almost nonexistent now, but in the past I had it really bad and it can be totally debilitating!
Oct 02, 2008
katiesmommy
Tracey, mom to Katie. Diagnosed with reflux at 3 weeks and put on Zantac. At 8 months old she was removed from Zantac as it was giving her migraines, currently on Prevacid. Switched to Elecare since she is not gaining weight; trialing solids after being off for a month. Geneticist said reason she isn't gaining weight is she is stubborn. Upcoming appts.: Neurologist for developmental delay and EGD scheduled for September. She is one funny baby!
Rissaroo, vent more!!! You are so sweet even in your vents! :) Poor guy, I know he has your Celiacs as well as milk and soy intollerance. Hugs to you both!!!!!
Oct 02, 2008
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
I hate reflux too! It's O.K. to hate it because it is such a constant worry.

I hope Isaiah starts to feel better soon. You are managing it so well - it hasn't gotten worse. Unfortunately it is us moms that bear the burden of worry. I hope you feel better and know that he will be O.K.

Oct 02, 2008
amber f
I hate it too. I hope he feels better soon.
Oct 02, 2008
mom2coy
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
G-D me too! :( sorry he's having a rough patch.
Oct 02, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
I'm so sorry. I feel awful that he is 11 and still having problems...it just seems so unfair - to him, to you, to your family. I'm always thinking of you guys. Vent away!!!
Check with your
doctor first!