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Oct 01, 2008
katiesmommy
Tracey, mom to Katie. Diagnosed with reflux at 3 weeks and put on Zantac. At 8 months old she was removed from Zantac as it was giving her migraines, currently on Prevacid. Switched to Elecare since she is not gaining weight; trialing solids after being off for a month. Geneticist said reason she isn't gaining weight is she is stubborn. Upcoming appts.: Neurologist for developmental delay and EGD scheduled for September. She is one funny baby!
ER trip last night

So Katie has not been eating well. This is no shock and doesn't alarm me since she has done this in the past. Past couple of days only drinking 13 oz and refusing solids. No big deal, this will pass. Yesterday 7 ounces but no wet diapers. Called to make an appt. after hours and the advice nurse flipped out when I said she had 7 oz. in 24 hours; acted like I should have CPS called on me. I explained that with GERD they do this and then a day or two later she will eat me out of formula and baby food. I am only concerned since no wet diapers. They send us to the ER.

One nurse says she sees 4 teeth coming in and tries to show me where. I don't see anything and since her last episode of teething made her eat like a horse and her teeth had popped through before we knew she was teething I wasn't convinced it was teething. She gave us that look that "this is your first child right?". Said I have taken her to the dr. before when she doesn't eat and they see she has a wet mouth and send us home. Well, they did give her fluids (she gained a pound) and today she is lethargic and completely out of it. She just laid on the ground until we went back for a follow up and cuddled with me the whole time. No smiles, no singing nothing. They drew some blood and put her on abx in case she has a sinus infection since she should be done with the green snot 2 1/2 weeks after her last cold.

LOVED this pedi and asked if she was accepting new patients and sadly she is not. Since we have an HMO we can pretty much been seen by anyone but I hate her primary pedi.

Oh, and the dr today said her upper gums are a little swollen but nothing breaking through or swollen enough to warrant her not eating or drinking. Thank you very much ER nurse!! I am not a stupid as you think just because this is my first child!

BTW, this is our second ER trip in 2 weeks. DH had rapid irregular heartbeat in the middle of the night 2 weeks ago. We had the same ER doc. I hope she doesn't think we are making a habit out of this! :)

Oct 01, 2008
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
Poor bugaroo! poor mama! porr hubby! This sounds like a household in need of a hug or winning the publishers' clearing house!

Allie's done the food strikes numerous times, though she's always had wet diapers.

Definitely seems like the sinuses are still an issue, which can affect the ears, which in turn will affect eating and drinking. Have you tried getting her to suck on a wet washcloth? It worked when my dd had her first ear infection and fought the bottle like a Berserker.

Oct 01, 2008
mom2coy
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
Sorry you had to go thru that! i hate food strikes! seriously. glad she gained a pound though! maybe the Doc has recommendation for you?
Oct 01, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Oh Tracey, I am so sorry. I cannot imagine how scary this must be. And what the hell is it with ER docs and nurses? Ours told us Sebastian had the flu (this was in July, but apparently, he must have had it since January). I am sure there are plenty of great ones, but we apparently get the crap ones.

Is she sleeping right now? I am so sorry she is having a tough go at it. And I am sick of everything being blamed on teething. Teething doesn't cause dehydration!!!!! Thinking of you.

Oct 01, 2008
engin117
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including engi.nowaira.net, engi@nowaira.net, Engi@nowaira.us, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
I have heard perpectual teething syndrome forever now. It is ridiculous. I usually spot her teeth coming in before any one. I know what Meggy's usual teething pain is and when it is something different.

Docs. ask the question about being a first time mother like God doesn't give us the intuition we need to care for our little ones.

My response is often, "R U a mother." More often than not, the answer is NO.

I am sorry you are all going through so much. I hope she feels better soon. I hope your DH is feeling better too.

Oct 01, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
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Yikes! See, I get worried about low fluid intake all the time too, but when she was averaging 12 ounces a day it was a large amount for her and I was happy...but then you talk to other mommies and they are apalled because their los eat 8 oz a few times a day! Last time I ordered E's formula they told me she was signed up for enough for like 900-something mls a day (when she was 6 mos old)....I had to suppress a laugh bc she has never drank that much and the stockpile is growing...how did they give the fluids there....iv or ng?
Oct 02, 2008
katiesmommy
Tracey, mom to Katie. Diagnosed with reflux at 3 weeks and put on Zantac. At 8 months old she was removed from Zantac as it was giving her migraines, currently on Prevacid. Switched to Elecare since she is not gaining weight; trialing solids after being off for a month. Geneticist said reason she isn't gaining weight is she is stubborn. Upcoming appts.: Neurologist for developmental delay and EGD scheduled for September. She is one funny baby!

They gave the fluids IV. I asked today if I just take her to the pedi next time will they give her fluids and they said yes but through ng tube.

She actually lost 10 ounces during the last two weeks. I was so shocked when she gained and knew that she was losing again. They pumped her with enough liquids to last a few days in the event that she strikes again but her fingers and hands are so swollen from all the fluid. The up side to that is she discovered that she is double jointed in her thumb and can make it do cool tricks like her daddy!

Meg, the weird and troubling thing is she wouldn't even drink bathwater or suck a wet washcloth. We have always known that is an easy way to get more liquid in her but she was rejecting that too. She did start sucking again tonight during bath so hopefully she will be better tomorrow!

Oct 02, 2008
amber f
That has to be so scary and what your went through with you dh. Is he alright? I hope Katie feels better and drinks more.
Check with your
doctor first!