Posted By Posting
Oct 01, 2008
adelaidesmom
high price of prevacid
Hi, My daughter Adelaide, born 8/1/08, has silent reflux, and the Zantac just doesn't seem to do much for her. Our pediatrician prescribed Prevacid, and I just bought the first week's worth (1 week only!) for over $70.00. Our insurance doesn't cover it, and there is NO WAY we can afford this. One of the volunteers kindly referred me to a website for $25 off each time, but it's still too much for us. Has anyone used Prilosec? Is it cheaper? As effective? We need to help Adelaide because I have to return to work in 2 weeks!!!! Thanks for any help.
Oct 01, 2008
jmom
Josh 12 yrs colic as a baby
Jenna 6 yrs dream baby
Jessica (6/11/07) Silent reflux dx at 3 weeks
Went off meds successfully at 3 mos
Went back on Prevacid 8 mg TID 1/3/08
Call your doctor asap. Sometimes drug companies will give their drugs out for free to people in need. Also your doctor may have samples you can get for free. Walmart is the cheapest place to find Prevacid that I have found. I have not tried any other drugs but I think most of the drugs in that class are pretty expensive. Take care! Cristy
Oct 01, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
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Every kid responds differently to dift meds, although i have to say prevacid was the best for us. Zantac was useless until she was much older and things were more in control! There are many options for refluxers, ask to try a cheaper one. I don't think many ppl could afford prevacid at that price!
Oct 01, 2008
adelaidesmom
high price of prevacid-thanks!
Hi, Thanks so much for the advice. I will ask for samples. Also, my pediatrician put her on 15 mg twice a day (solutabs). Does this seem high? Cutting the cost in half sounds better, although I still think we couldn't afford it. One more question: I bf, and nurse very often. What formula should I begin with? I have read so much about MSPI, thanks to the numerous postings, but my pediatrician suggests beginning with Gentle Ease and taking it from there. I am very nervous to do this for all of the obvious reasons. Thanks again to all of you! I have had so much anxiety over this, and can't envision returning to work, yet I must. One more question: how do some of you deal with sibling issues? My older son Luke, a VERY easy baby, is 2 1/2 and is being such a good sport, but Adelaide cries so often that he just looks crestfallen when I have to say yet again that I can't do another activity with him. I try to split my time during bfeeding, but he needs one-on-one. Thanks again.
Oct 01, 2008
rissaroo
Picture: This is what happens when you raise a kid on health food and they get ahold of a Coke! Bad mom, that soda is NOT on the reflux diet.
UPDATE: Isaiah is now 12 and off meds! He is doing great, eating again and hopefully will be catching up in the growing department. I am still in the "hoping it sticks" phase, but we're so happy that he's better!
(((hugs)))....the "sticker shock" for Prevacid just about killed me, too! It was actually a deciding factor in my dh not taking an excellent job in the town I want to live in last year...their health insurance didn't cover prescriptions. Sigh. I second the post that says call your dr., and I also want to add that if you get on the Prevacid website and look it up, they have an area for people who are not not covered for Prevacid by insurance. I dont' know how easy it is to get it but I do know that they help people who can't afford it...so I'd get on the website and find an 800 number, and call them and explain the situation. There's a good chance they'll help you out--they seem to know that their product is astronomically priced and are pretty quick to help out once they know that you really aren't going to have an insurance company shell out for it. Good luck!
Oct 01, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
I thought you were my sister for a second. She just had a daughter named Adelaide with reflux...but in late June. It's not like it is a common name! I"ll have to tell her!

So sorry about your daughter. We had no luck with Prilosec working for us, but lots of mommies on here have...especially Jedd's mommy. She will probably weigh in eventually.

Nice to meet you!

Oct 01, 2008
abbysmom
Andrea: Mom to 3 crazy girls!
Jackie (3/01)
Payton (9/03)
Abby (4/06) Prevacid 7.5mg (evening), MSPI, goats milk (currently trying to wean off Prevacid)
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You might also want to check into Zegerid. It is the same base med as Prilosec but with the added sodium bicarbonate buffer so you don't have to time it around eating. It is nice b/c you can mix it up at home and don't have to worry about the pharmacy mixing up the Prilosec correctly. You can find lots of info on Zegerid at www.marci-kids.com. And if you decide to go with the Prilosec read up on how to have it compounded correctly here http://www.infantreflux.org/forum/forum_posts.asp?TID=4505
Oct 01, 2008
jmom
Josh 12 yrs colic as a baby
Jenna 6 yrs dream baby
Jessica (6/11/07) Silent reflux dx at 3 weeks
Went off meds successfully at 3 mos
Went back on Prevacid 8 mg TID 1/3/08
All I can say about the sibling thing is that it gets easier with time. Can dad do some one on one activities with your son? Can dad watch the baby for an hour per weekend so you can do something out of the house with your son? I know it's hard. The Prevacid dose seems a bit high. I think we started with 7.5 mg 2x per day so you could ask your doctor if you could start with that and increase in a month if it doesn't help. I wouldn't decrease the dose without asking. Most babies don't have a milk allergy or a lactose intolerance just a lot of kids with moms that post here do. I would try Gentlease first. You can always use the expensive stuff if cheaper lactose based milks don't work. It's going to be hard to tell what formula works til you get the reflux under control because the pain will still be there from the reflux. Just watch for rashes and diarrhea with the formula. Cristy
Oct 01, 2008
adelaidesmom
high price of prevacid
Thanks to all of you! I am going to look into the Zegerid; in the meantime, I've applied for the Beyond the Burn. I'll update you all. Hi to the other baby Adelaide; Im so orry she hs reflux too.
Oct 01, 2008
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
2 FULL TABS each day? That DOES seem like a lot - my 1 year old is 15 mg ONCE a day. Most times, less is more for these kids. I'd call your ped and make sure that you really need that much. Have you seen a gastroenterologist?

Our MD also gave us a full month's samples, which lasted us 2 months since we started at 1/2 tab.

We used prilosec with no success, others here have had fantastic results with it though.

We ran through just about every formula out there. If there are no milk or soy allergies/intolerances in your family, gentlease is a good one to try. I like Good Start, but have used numnerous Similac and Enfamil products. HTH

Oct 01, 2008
jenrackley
PAGER Volunteer Services Coordinator
Nutritionist
Melina 7/24/02 now reflux free!!
TWINS:
Ella 5/3/05 GERD, asthma, hypotonia, food intolerances, esophagitis, IBS //
Ava 5/3/05 asthma, food allergies
Pic: My girls! They are getting so big!
It's me again. I just e-mailed you but here is a good page to check out for Rx help with Prevacid:

http://www.prevacid.com/tools/heartburn-medicine-savings.aspx

I know ther Dr's here have samples so hopefully yours will have some too until this gets sorted out. If the prevacid works well and you still can't figure out the $$ let me know.

~Jen
Oct 01, 2008
zack'smom
Zack born 09/28/07 @ 31 weeks. Dx silent reflux @ 6 mo. Now not so silent. Switched to Elecare @ 9 mo. On Prevacid 15mg 1x daily. Looking to stop the puke and gain some lbs.
Puke stopped about 24 months and he's learning to eat...very slowly.
Still on prevacid and periactin.
Beyond the Burn
When I joined I got my card really fast. It covers 25$ and now I get it for 3 bucks a month! So helpful!
Oct 01, 2008
jmom
Josh 12 yrs colic as a baby
Jenna 6 yrs dream baby
Jessica (6/11/07) Silent reflux dx at 3 weeks
Went off meds successfully at 3 mos
Went back on Prevacid 8 mg TID 1/3/08
May I email you? Cristy
Oct 01, 2008
heather100
I agree with you on the price. And it has gone up just in the past couple of months. Wal-Mart is the cheapest I've found, as well. I signed up for that $25 card. I hope I get it soon. Wow, that dosage is so much higher than what my son is on. He's 7 months old, 20 lbs and only taking 7.5 mg per DAY. Why are the dosages so all over the board?? Kinda scares me. Shouldn't it be based on weight so each ped is recommending the same amount???
Oct 02, 2008
adelaidesmom
high price of prevacid
Hi, a couple of things: First, I misread the dose in my fatigue. I am supposed to give 7.5 2x per day. Sorry to make all of you wonder what in the heck was going on! However, each time I have given Adelaide a dose, she has reacted horribly--tons of gas, now not sleeping at night in her swing (with white noise it was working for 6-7 hours!). So now I feel that even with the Prevacid, she can't get better. We are at a difficult juncture, and I feel I must cash in my retirement because maternity leave is almost over, and I can't see her doing well at the babysitter's. We are seeing the dr. today for 2 month shots, and can hopefully get referred to a GI. I am so disappointed that the Prevacid did this to here, even though we weren't able to afford it. I am at an all-time low! Cristy and others, you are welcome to email. For some reason, I can't update profile to make it public: rebecca.a.schulman@gmail.com
Check with your
doctor first!