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Sep 29, 2008
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
thought this might be interesting autism/reflux
Preface!!!** this is not meant to scare anybody.**!!! I finally got some time to look online to see if there was any literature on discipline and a child with reflux/pain. As most of you know we have been dealing with tantrums for months. Dh and i decided we were going to do some research and find a good way to deal with her tantrums and sleep issues and while he took his week of vacation next week we would implement it.

While i have not yet found any useful disciplinary literature I did however come across this article: http://autism.suite101.com/article.cfm/gastrointestinal_problems_in_asd that brought up some alarming red flags. Decreased sucrase enzyme, diarehea, constipation, abdominal pain, reflux, gaseousness and foul smelling stools, ect. (she has more things listed in the article too)

well i searched autism and while it does not seem to fit emily at all, i found a couple mentions of aspergers syndrome and looked those up and many if not all characteristics fit emily. Of the few articles i read though say drs do not dx AS until children are 4-11

i just thought the link between AS and emilys tantrums might be to big to ignore, do you think her GIs would care about this?? Does anybody know about Asperger's Syndrome?
Sep 29, 2008
katiesmommy
Tracey, mom to Katie. Diagnosed with reflux at 3 weeks and put on Zantac. At 8 months old she was removed from Zantac as it was giving her migraines, currently on Prevacid. Switched to Elecare since she is not gaining weight; trialing solids after being off for a month. Geneticist said reason she isn't gaining weight is she is stubborn. Upcoming appts.: Neurologist for developmental delay and EGD scheduled for September. She is one funny baby!

AS is an autism spectrum disorder. I believe (I mix up the two differences) that kids with Aspergers have greater difficulty with learning but are not as socially inept. They think historically people who were classified as "odd" by friends and family had Aspergers before there was a diagnosis.

I had a student with AS and she was sweet and loving but could not put herself into others shoes (empathy) unless it was explained to her how her behavior might impact others. Once it was explained she showed so much empathy that she became hysterical and tried to make up for hurting others by going overboard. Another student with Autism and he had little to no empathy. If another student touched him in line he punched them because each touch was the same to him.

Does she look you in the eye, interact with you and come when her name is called? These are all things that kids with true autism don't do. That's not to say she doesn't have an autism spectrum disorder(there are so many classifications) and I would definitely talk to her pedi if you think that she fits the category. HTH!!!

Sep 29, 2008
katiesmommy
Tracey, mom to Katie. Diagnosed with reflux at 3 weeks and put on Zantac. At 8 months old she was removed from Zantac as it was giving her migraines, currently on Prevacid. Switched to Elecare since she is not gaining weight; trialing solids after being off for a month. Geneticist said reason she isn't gaining weight is she is stubborn. Upcoming appts.: Neurologist for developmental delay and EGD scheduled for September. She is one funny baby!
Sorry, I just read that intelligence is not a factor and often people with AS are very intelligent.
Sep 29, 2008
katiesmommy
Tracey, mom to Katie. Diagnosed with reflux at 3 weeks and put on Zantac. At 8 months old she was removed from Zantac as it was giving her migraines, currently on Prevacid. Switched to Elecare since she is not gaining weight; trialing solids after being off for a month. Geneticist said reason she isn't gaining weight is she is stubborn. Upcoming appts.: Neurologist for developmental delay and EGD scheduled for September. She is one funny baby!
Sorry-me again!

http://www.udel.edu/bkirby/asperger/aswhatisit.html

The note by Lois Cook is more akin to my student. She was just a little different and without a diagnosis you would just think she was an odd but completely sweet and nice little girl. She had huge temper tantrums but was completely apologetic afterward and showed great remorse. I think the diagnosis at age four is just to rule out the "terrible twos" time period.

Sep 29, 2008
stickybean
I am Jacky, mommy to Joslyn Olivia (April 2008) and Katelyn Isabel (November 2009).
Joslyn was dx'ed with Silent Reflux with breath apnea at 5 days old. VERY SCARY!
Katelyn is a spitter reflux baby. Started at 3 days old as well. (Both were/are breast fed.. symptoms came on when my milk came in).
Joslyn has been reflux free since she was 12 months (suffered poor weight gain for a few months) and Katelyn is now on Zantac... waiting to see if it works.
ditto to tracey. I had a student who has AS. He was a sweet boy (most of the time) however he did not know how to make friends well as he did not know how to "read" their manners and behaviors. He did get very physical at times. While I was preggers he tried to kick and hit me. Once I explained that he would hurt my baby he calmed down. He was a difficult child... but when he was having good days he was a gem to be around! He was insanely smart and had a bound of energy.
Sep 29, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
I also taught a you ng girl with AS type of Autism. She was the most loving child I have ever taught. Wanting to constantly kiss and hug everyone. She was inept at social interactions with her classmates. Seh had not direct eye contact and at 5 years old did NOT know how to carry on a conversation, she would repeat the same phrases over and over again. She also inflicted pain on herself in the form of bitign her nails until they bled and scratching at her skin until it bled.

She spent 2 years in my K-5 class and thenmoved on to 1st grade. He sympotms were much much worse when she reached there. Her self inflicing got 10x's worse to the point that she pulle dout all her eye lashes and eye brow hairs. We think this was extreme anxiety caused by being in a stable class for 2 years straight. She was extremely comfortable with me and by having to move up she just could not take it.

It's not that the next teacher was not paitent or anything, it's just the physical moving to a differnt room with a differnt environment.

FWIW all the babies in our peds prctice are screened for Autism and the spectrum at their 1 yr. visit. They also do a follow up at the 2 year visit. The key to autism is to catch it early!!!!! The earlier it is caught the better the child can function through life.

Sep 29, 2008
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
thanks for the article tracey that was very interesting. and the experiences you girls had while teaching was also very helpful. emily hates change, always has, would be happy if she did the same thing every day, doesn't really like going out of the house much and is a terror when we do. Only really likes going to one grocery store. She also avoids eye contact unless she is doing what we call a "death stare" which means, when she is about to start a tantrum she gives the most evil stare she can manage. it is cute but slightly scary lol But tracey i do think you are right some of this stuff on the list is compatible with the "terrible twos" so it might be too early to be thinking about this.

Jessica that sounds horrible about that poor little girl! i can't imagine the anxiety and stress level she had. I always thought that they had learning disabled kids in separate classrooms but i guess according to you girls Autism is different, hmmm
Sep 29, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
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Yes, AS is different from autism and typically kids with AS are VERY smart with very high IQs but have little knowledge of how to interact socially/appropriately. Kids with AS when older know they are different from other people and care about it, while kids with high functioning autism do not have that awareness. They are diagnosed later because they have typically developing language skills...people don't realize there is a problem at first because they are talking, and smart.
Sep 29, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
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Also i am PAINFULLY aware that there is some sort of link between autism and gastrointestinal disorders. I eagle eye Elyse because of that link and because the preterm labor drug I took supposedly can cause autism. Currently she is doing a verbal behavior that sounds very autistic and it freaks me out, but I have not been around many typically developing kids to know if it is also part of normal language development. She also cycles thru foods like kids with autism, uses a word once or twice and then never again, and a couple other things i can't remember right now. HELP! But, she has many characteristics that are definitely NOT autistic...the thing is though that she is still so young, she is at the age where they can appear to be developing normally and then change and "become" autistic.
Sep 29, 2008
mom2coy
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
My stepson has been diagnosed with Asperger's Syndrome.. also ADHD, depression, and Oppositional Defiance Disorder. Everyone is definitely right that Aspergers explains people with difficulty in social situations. The characteristics he exhibits are:

Won't look anyone in the eyes.

can not take turns talking, interrupts conversations, cant hold a converstation for an extended period of time.
Does not show empathy or at least know how to express it.
preoccupied with only one or few interests, for example he ONLY likes to play video games and swords. Makes everyone play these games with him.
horrible table manners. Chews with his mouth open. Wipes his hands on his pants. Even with repeated reminders and rewards.

bad bathroom manners. i.e. pees/poops his pants and does not care.. he is 10.
Sep 29, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
Kathyn
I taught in apirvate school When she was DX with the AS (which I suspected she had from day one) we met with the parnets and let them know that as long as we could meet herneeds she was allowed to stay with us. At the end of the 2nd year of K5 she could read WELL, do all the math, everything. she was right on grade level for our phonics intensive program.

She didn't make it but 1.5 quarters in the first grade class. She jsut couldn't take it...:-( It was sad. Her parnets wanted so badly for her to recieve a private Christian education but that was just not possible.

Sep 29, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Hi there. My cosuin has Asberger's. He is BRILLIANT (he draw DETAILED street maps (including little alleys) of NYC, Baltimore, etc from memory and do pretty much any math problem in his head. He just finished college and has a job in geography with the government. WIth him, it is like there is a filter that isn't working (by traditional standards, I should say) - he says exactly what he thinks and doesn't really get what is "OK" and what isn't (for example, he told our 90-year-old grandfather that he was in the death zone and told my sister she was starting to age. Hahahahahahahaha. He also called our grandfather a son of a b*tch when my gpa kept driving his mnivan in circles and missing parking spots. hehehehehe. He is on medication, but from what I know, the Feingold diet would probably help immensely...
Sep 29, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Help him immensely, I mean - not Emi!
Check with your
doctor first!