Posted By Posting
Sep 28, 2008
refluxmama
Cassandra Lynn 10/23/06. Former 29 Weeker Preemie. Reflux since birth. Prilosec Liquid 2 mls am. and pm. Elecare formula 30 cal per ounce. Severe oral aversion/complete bottle and solids refusal! NG tube fed since birth, G-tube Placement on October 3rd 2007, very DGE and motility issues, FTT, developmentaly delayed,
Hypotonia. Recieves Speech therapy for feeding problems, Physical Therapy for muscle weakness and delayed gross motor also has Developmental teacher and soon will be attending a feeding clinic. She's on a continous 24 hour feeds. Except for when I give her a break :) She's tolerating 40-45 mls an hour with some vomitting, can not tolerate a bolus at all, not even a 2 ounce over 30 min :( one . ~Picture: My baby is a big girl now :(
Cassie update
Hi guys, it's been soooooo long since i've been here! I am such a busy person now it makes me terribly sad! I just wanted to come by and say hi! Cassie is so big now, I am posting a new pic in my siggy for you guys to see. She will be two next month on the 23rd already! Can you believe how fast time just flys?? She is still not eating much, she starts eating a bit then doesnt want to any more. She is pretty much 95% tube fed and still on elecare formula. I am going to start giving her baby food threw her tube because she isnt gaining weight at all!! She gets 30 ounces of 30 cal formula and still doesnt gain weight. She still isnt even 20 lbs :( She is so happy and sooooooooo smart! She knows all the cartoon characters by name and she talks so much!!! We just found out yesterday that she has a lil sibling on the way, we are so excited!! We are going to Disneyland in two weeks with Sharon Elyse and the daddies. It's going to be so much fun! Well I hope everyone is doing well. I know a lot of people on here now probably dont even know me :) I will try to check in more often. God bless!! -Vanessa
Sep 28, 2008
lauren'smom
Jennifer - 1st time mom. Lauren (6/1/07) diagnosed 9/07 with GER at 3 1/2 months. Prevacid 7.5 mg in the am. Currently drinking whole milk and eating great!!
No longer aspirating! Yippee!
Picture: Why would Lauren play with the hundreds of dollars worth of toys scattered in my living room?!?! When she could play in a box! Estimated move date: Oct. 3rd!
Oh my goodness she is getting so big! She doesn't look like a baby anymore! I never would guess that's she's not even 20 lbs, she looks healthy and happy to me!

Congrats on the new baby too!!

Sep 28, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
Vanessa, Cassie is a beauty!!! Really. She'll eat in time. I know it's hard. We have been soo lucky. But I completley feel your pain, I do. Food in the tube is a great idea to add weight. It worked for us. Advocato and flax seed and olive oil go in pretty well too. Good luck.

CONGRATS sooo happy to hear that Cassie will have a sibling soon. You are a much braver Mother than I am.

Have you ever thought about a clinic for Cassie to see if they coudl help her learn to eat, she's getting to that age. It's hard on your coast, there aren't too many over there, sorry.

Sep 29, 2008
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
congrats! i am happy to see an update from you cassie is as beautiful as ever! have fun at disney!
Sep 29, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
Photobucket
Hey there, love the new pic! she is such a big girl now! When I met her she wasn't walking yet and i don't think Elyse was even sitting unsupported...and now they are going to Disney together! CRAZY! And congrats again on the newbie :)
Sep 29, 2008
mom2halleyann
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
I was so happy to see your post! Cassie doesn't look like a baby at anymore - she's a beautiful little girl! That's exciting news about the soon-to-be new addition!! When is the baby due?
Sep 29, 2008
lorenzomama
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
Wow! Vanessa! So great to hear from you, and CONGRATULATIONS to the whole family on the little sibling on the way! That Cassie -- brains and beauty....what a combination. She is going to do great things in this life, no doubt about it. I can't believe she's going to be 2!

I hope things are going, overall, well for you. Thanks so much for the update! --Cristina

Sep 29, 2008
mamad
Noah 10/06 Reflux free for 1 year
Reid 7/08 Prevacid 15mg
Hi Vanessa...congrats on the new little one! It had been a while since I was on here too. I just had my second son and he has reflux, so here we are again. Thanks for the update on Cassie...she is adorable. I wish you a happy and healthy pregnancy. Take care. Jamie
Sep 29, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
I'm so glad to hear from you! She looks so grown up! Every time I see her pics she is more grown up! Vanessa, I'm sorry she hasn't made more progress, but I know that you know the Lord is taking care of her! Hugs!
Check with your
doctor first!