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Sep 27, 2008
heather100
Stopping prevacid?
Hey guys. It's been awhile since I've been here. My question is what age did you stop prevacid? My son was dx w/ GERD at about 2 weeks old. Prevacid was prescribed and it really helped. Well, last night I decided to not give it to him to see if he was ok with that. He hasn't had a dose since Thursday night (so about 1 and 1/2 days). He still spits up just a bit but not much. When he spits up, he doesn't seem bothered by it. Do you think it's ok to stop it? What symptoms should I look for to put him back on it? He's actually been sleeping better not on it (maybe a coincidence but he awoke way less last night and he's still asleep for his morning nap 2 hours later and often it's only 1 hour long). I'm just torn by stopping it too soon vs keeping him on it when he doesn't need it. Thanks so much in advance. This is such a great place and I refer many ppl here for advice!!!
Sep 27, 2008
heather100
Forgot to say...
He will be 7 months old next week. The GI said 7-8 is often the time the spincther (spelling?) over the esophagus matures.
Sep 27, 2008
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
I wouldn't rush into stopping the meds. We weaned Katie off meds at about 1 1/2 years. I thought I was doing such a great service to her to not be on meds and manage the episodes as they came.

She is three and now has damage to the esophogus and stomach

We will heal it with meds but it has been very painful for her

My ped. said " I am all about not putting kids on meds if they don't need it but I also know that the damage the reflux can do is worse than any downside of being on meds"

Just my opinion.

Sep 27, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Hi there. I tend to agree with Kubicki5. I think that if we had gotten Sebastian on the right med earlier (took six long months), we wouldn't have some of the internal damage we do (well, that, and all the poisonous foods). Also, Sebastian (and again, he is a special case, but I know other moms have expeirence this, too, like mom2coy) got bad again around 10-11 months. I would consider sticking it out til a year or so or at least discussing it with the doc before taking him off meds right now. Good luck!!
Sep 27, 2008
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
I would at least wait until teething is under control - Allie's reflux goes berserk when she's getting ready to break a tooth
Sep 27, 2008
heather100
Thanks so much for the feedback. That does make sense. I don't want to cause him internal damage. I did talk with the ped when he was 4 months and again at the 6 month appt. She said I could take him off at anytime and then put him back on if he showed signs of pain. I just worry about keeping him on a medicine daily. You just never know as years from now they could say infants on prevacid showed xyz symptoms. That worries me. Plus, he wakes up every 1-2 hours ALL NIGHT LONG. He has since he was born. 7 months later and I'm exhausted. But last night, he slept so much better. What signs would you look for to know if he still needs it or not?
Sep 27, 2008
heather100
This is what always concerns me that I find everywhere: "The safety and effectiveness of Prevacid in patients less than 1 year of age have not been established."
Sep 27, 2008
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
I know that it is hard to medicate our kids. None of us want to. However, we really should be thankful that there are medicines out there that can help them. There isn't 70 years of research on PPIs on kids but there is about 20 years and all the studies show them to be safe.

have peace of mind that you are helping your little one feel better. If he is still getting up at night , that is probably a good sign that he still needs to be on it.

Sep 27, 2008
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
The only thing I would disagree with regarding the stopping/starting is that prevacid (like all PPI's) need time to work. Something more like Zantac, Pepcid, or Mylanta work fine when only given occassionally, but Prilosec and Prevacid only work best when the body has built up its stores of these.
Sep 27, 2008
mom2halleyann
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
Something else to consider is that we are entering flu/cold season which can really cause a flare. If you want to try weaning, maybe lower the dose for a little while and see how it goes. That way, there will still be some in her system if things don't go well. We had to try weaning 4 times before we were finally successful (at about 14 months). We did it gradually each time - dropping a quarter of a pill rather than going cold turkey. You'll know if she's not ready...you'll start seeing wet burps, arching, etc.
Sep 27, 2008
mom2halleyann
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
oops! meant "he" not "she" :-)
Sep 28, 2008
heather100
Thanks again, everyone! I decided to put him back on it. Last night was miserable. He was up all night and he was coughing which was a symptom he had last time before the prevacid. And he still spits up quite a bit. I think I should wait until the spit up decreases so it doesn't burn. He's on 7.5ml of the solutab (half of the 15 mg pill) only once per day. It seems many around here are on more but it seems to work so I'll stick with it. I really appreciate you guys!!!
Sep 28, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
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I know you already made your decision, but wanted to add that when we thought Elyse no longer needed a PPI we asked to downgrade to Zantac. That way, she is still getting some protection but it is not such a strong med. We are down to one dose a day now!
Sep 28, 2008
helen lai
Mom to Matthew, 01/16/08, GERD baby, has been on Zantac since 2 mos. Aidan, his twin brother, no GERD. Max-ed out on Zantac at 1ml-3 times/day, and switched to Prevacid 15mg split tab 08/20/08. Switched again to 20mg Prilosec 09/18/08 due to Prevacid's restlessness/headache side effects. Reflux was out of control again and had to switch to 10mg Nexium 02/11/09. Good result so far.
As for the sleep problem, my son woke up every 1-2 hrs while he was on Prevacid. He also had mild diahrrea and blood in his stool the 1st week he was on it. My new GI told me it was not suitable for him. It could be headache, nausea, etc. side effects. We had to switch to Prilosec and he sleeps/naps MUCH better now. He started to sleep thru the night a week ago and I couldn't be thankful enough. The only thing we have is that constipation is a problem and it irritates him at times. We deal with it by giving him more water and uses Milk of Magnesia as need. Hope your son feel better soon.
Check with your
doctor first!