Posted By Posting
Sep 25, 2008
Lost my 33 yr old most physical fit husband 1 year ago, I miss him and his help! Feels so shitty and unfair. My baby getting better is the only thing that would bring my sanity back.
Ear Nose Throat, Nexium, advice
I am going to push to be seen by an ear nose throat specialist in hopes of some answers and had wondered what your experiences were like with them? Still no official diagnosis, and unmedicated right now at 25 months. We were given 10mg of nexium, the little individual powder pkgs, how do you get this in your toddlers? He knows when I put it in his drink and on his food. I really would rather not tie him down and shove it down his throat. There has to be something easier than this? I also noticed that he was breaking out in massive sweats on it, and it seemed to be making him worse at nite. Mind you I only went about a week, and am really unsure about continuing with it. BUT I know he NEEDS something to help him. I really would like a ph probe done, and am going through fk'in roller coaster dr hell trying to get one, bullshit system. There has to be something that is going to give him relief! I give him maylox once in awhile when really needed, and that too I have to shove down his throat, but he seem to get some relief. Does anyone know what a hernia is? My sister in law told me to look into it for him. We have tried every single med, why haven't we got relief? I think we haven't found the right combo of meds. How I wish financially I could go out of province and start fresh with someone who cares, as BC children's thinks I am looney. Just tired of being tired, my god two years of this is enough to drive anyone insane! On a more positive note, since my one year mark has passed.. I feel more 'lighter' and more 'me' more often and am having much more better days.. thank heavens. Just would love for my son, to be able to have some relief and some sleep. Tired of no naps and sleepless nites. Thanks Mom's.
Sep 25, 2008
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
Has your son ever had an edoscopy so that they could see what is going on in his little tummy?

Sep 25, 2008
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
Glad to hear you're getting better mentally, though I'm still sending prayers your way for you and your ds's healing processes! This if from

"A hernia occurs when one part of the body protrudes through a gap or opening into another part. A hiatal hernia forms at the opening in your diaphragm where your food pipe (esophagus) joins your stomach. Part of the stomach pushes through this opening causing a hiatal hernia. Most small hiatal hernias don't cause problems, and you may never know you have a hiatal hernia unless your doctor discovers it when checking for another condition. But a large hiatal hernia can allow food and acid to back up into your esophagus, leading to heartburn and chest pain. Self-care measures or medications can usually relieve these symptoms, although very large hiatal hernias sometimes need surgical repair. "

Sep 25, 2008
Lost my 33 yr old most physical fit husband 1 year ago, I miss him and his help! Feels so shitty and unfair. My baby getting better is the only thing that would bring my sanity back.
An upper endo was done July 18th, with no nothing.. nothing abnormal, I should have been happy but I was really looking forward to an answer and a solution.
Sep 25, 2008
Brent 2 years old,
Birthweight 12 lbs 3.3 oz!
Very severe GERD,LPR,FTT
Severe esophagitis/scarring
Paraesophageal Hiatal Hernia,
Esophageal Dysmotility,
Food impaction,Aspiration
Eosinophilic Esophagitis,Severe retching
Severe allergic colitis/malabsorption
Susp eosinophilic colitis,chronic diarrhea,
Laryngomalacia,Gas/Bloat Syndrome,
Visceral Hyperalgesia,GI Dysmotility,
Chronic infection(ear/sinus/lung)
Adenoid/tonsillar hypertrophy
Gait abnormality/bowlegs,widened growth plates
Susp Vagus Nerve Damage
Surgeries, Nissen fundo,hernia repair/
reconstruction,esophageal dilation,gtube,
ear tubes,adenoidectomy
Bronchs w/ BAL's,lung biopsy
Upcoming scope/colonoscopy
Manometry testing in Oct.
Meds: Nexium,Zantac,Baclofen, Neurontin,
NPO tubefed continuous elecare 24 hours/day
A hernia would have been picked up by an upper GI or scope, unless he has developed it since then. My son had the largest hiatal hernia his surgeon had ever seen, he had to have repair and reconstruction, he was in very bad shape.His stomach was trapped(it wasnt a sliding one, usually they are sliding) up in his chest and was in danger of being strangulated which is life threatening. Unless they are big, they dont require any treatment, but can still worsen reflux. We use Nexium packets, at a higher dose. We mix the packet with 15 cc water, wait to thicken, then administer through his gtube.I havent noticed brent sweating more, but he sweats excessively anyway. I hope they figure out something to help him. Poor little guy.((hugs))
Sep 25, 2008
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
I just keep wondering if his pain is food allergy related. He reminds me so much of Eric, blueleopard's child. You may want to check out to see if anything there rings a bell. I'm so sorry you've had to go through all this over the past year. Sending big hugs.
Sep 25, 2008
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
Did they do any biopsies with the Upper endo?
Sep 25, 2008
Lost my 33 yr old most physical fit husband 1 year ago, I miss him and his help! Feels so shitty and unfair. My baby getting better is the only thing that would bring my sanity back.
Yes bio done with endo...nada
Check with your
doctor first!