|Sep 24, 2008|
Susiegal - Son Charlie born 11/15/07, diaganosed with GERD at 2 months
Current meds: zantac, prevacid, mylanta, reglan
How to get more calories?Charlie has gained 2 lbs in 2 months which I am very grateful for, it took 4 months to gain 2 lbs previously. But I think we have hit a plateau as it is difficult getting more forumula into him without him vomiting. Does anyone have any ideas other than more frequent feeds? Here is what we do: He gets 5 feedings/day, 5.5oz per feeding. Lately I have had to cut back the last feeding, around 11PM, to 4 oz because he was refluxing and vomiting in the middle of the night. He holds down feedings fairly well but he will still vomit on average once a day, maybe an ounce or two. He is nearly on 30 calorie formula as we do 4 scoops Alimentum for 5 oz of water plus we thicken it up and that ends up being 6 oz of formula. I am going to try an extra half ounce for each feeding and see how it goes. He is entirely g-tube fed due to aspriation and I am slowly working on pureed food but at this point it is playing and not really eating. Does anyone do slow feeds during the night? I am willing to try but worry he will reflux and aspirate (he has had aspiration pneumonia twice so I am really fearful of it now plus it sets us back while he recovers). But maybe if you do a slow feed they are less likely to reflux? Thanks, Susie
|Sep 24, 2008|
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|Our slow feeds for Meggy did not go well but was done through an NG tube. As far as we know she didn't aspirate or anything, but she seemed miserable all the time. Your child is different though and don't know if it would work or not. What kind of pump do you have. Would slow feeds in the day be possible? |
These guys were very helpful to us when we were tube feeding Megan.
What do you use to thicken the formula? Have u tried something like simply thick from a pharmacy or the other one, other ladies on the forum could tell u about. I cannot remember it's name.
Have u tried using a mattress wedge?
Our pureed food is going a lot better than any formula ever went. Meggy does best so far with sweet potatoes, lentils, chick peas, ect.
|Sep 24, 2008|
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
|We did solids through Jedd's G tube. It's called a blended diet. It actually greatly increased his calories and greatly decreased the vomitting....a nice side affect.|
I could actually get just aobut every stage 2 beechnut baby food through the tube. I only used baby foods that were above 100 cals for the 4oz jars.
I also added olive oil, flax sedd oil, and some times CIB powder to them That can really boost the cals. I coudl get the foods up to about 50-75 clas per oz. sometimes. You have to be careful not to dehydrate your son though. for us that was not an issue because he got continuos feeds atnight for 10 hours at 37-38cc an hour with his pump. So that hydrated him enough.
I know some tube feeders who do the blended diet exclusively and use NO formula and it does great for them.
As far as night feeds and aspirations...that might scare me a bit. As long as you can do the feeds you are doing an dgain, I'd do it that way and not do continuos overnight. I think that woudl be the best bet to avoid aspirations.
Have the DRs talked about advancing that G tube to a GJ instead??? That would just about rule out the aspiration issues all together. You would have to go on continuos thought and boluses would no longer be an option. You can't bolus the with a GJ. You have to do a slow drip. Or as high as the child will tolerate without retching or vomittign due to the feed backing up.
Just some thoughts off the top of my head. BTW you could still do the blenderized diet in the GJ tube as well it would jsut be done a little differntly.
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