Posted By Posting
Sep 24, 2008
keely_and_allie
Erythromycin-Any good for Reflux?
Hi Everyone, I'm new to this site, and I'm hoping that some of you have some experience with using erythromycin to treat your child's gerd. My daughter is 7 weeks old, and we have tried many different formulas and several medicines with no luck. She seems to only get worse. We just started with Erythromycin. Has anyone tried Reglan?
Sep 24, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
Hi! I'm sure there are moms that will come by with more knowledge than me. I haven't used either, but based on what I've read here....reglan has a lot of scary side effects and the erythromycin doesn't as much. I would definitely try the eryth. before going with reglan.
Sep 24, 2008
susiegal
Susiegal - Son Charlie born 11/15/07, diaganosed with GERD at 2 months
Current meds: zantac, prevacid, mylanta, reglan
Hi there - my son is on Reglan. He's been on it for a couple of months now. Everything is fine, no side effects. It is helpful in that while it does not stop the refluxing, if he refluxes he does not vomit up nearly as much as before Reglan. Have you seen a GI doc yet? They usually have you try something for a week or two to see how it works then move on to the next thing if it is not working. It can be totally frustrating when your child is still refluxing and miserable but the meds do kick in. Hang in there. It is tough but it does get better and definitely speak up if things are not working. Susie
Sep 24, 2008
mom2adriane&morgan
Adriane Reese 05/16/07; seemingly healthy when born; diagnosed with MSPI, severe Reflux, Apnea, Ashtma, Epilepsy, and severe food allergies(rice, corn, milk, soy, eggs, oats, wheat, beef, chicken, squash, pumpkin, avocado, etc.);On apnea monitor, seems to be tolerating RCF w/carbohydrate mixed in; on Zyrtec, Xopenex, Prevacid
We have tried both. The eryth. didn't seem to work for A but the Reglan seemed like it was the answer. We had horrible side affects though. I know it affects everyeone differently so you will never know until you try. A was very restless and cranky not to mention it made her seizures worse. Granted we didn't know until then that she had true epilepsy so I guess it was a blessing in disguise. Good Luck with the meds and just be patient. -Amanda
Sep 24, 2008
molson1525
Mary & Nicholas 7-17-03 (non-refluxer)allergies, asthma on Singulair and Flovent & Aidan 1-28-07(my refluxer)Nissen Fundoplication on June 20, 2008, FTT, MSPI, DGE, ear tubes, allergies and severe GERD now currently taking just Prevacid and drinking Elecare Vanilla 1+.
We have used both separately and together. The Reglan was a life saver for us and we used it solo for 8 months. We added Erthro when it didn't seem to be working as well and then when my son had neurological side effects from the Reglan we used only Erthro for a while. I didn't think the Erthro was a huge help. I will say that even though the side effects of Reglan are scary they are usually very temporary so once you remove the drug the side effects are gone. For us it was worth the risk due to aspiration and apnea issues. I hope you find a combo of things that work for your daughter. Unfortunately, it is kind of a crapshoot in the beginning especially when they are so small and can't really tell you what is going on. Hang in there and keep us posted.
Sep 24, 2008
jessicalynn
Brent 2 years old,
Birthweight 12 lbs 3.3 oz!
Very severe GERD,LPR,FTT
Severe esophagitis/scarring
Paraesophageal Hiatal Hernia,
Esophageal Dysmotility,
Food impaction,Aspiration
ALTE,Dysphagia,Odynophagia
Eosinophilic Esophagitis,Severe retching
Severe allergic colitis/malabsorption
Susp eosinophilic colitis,chronic diarrhea,
Laryngomalacia,Gas/Bloat Syndrome,
Visceral Hyperalgesia,GI Dysmotility,
Chronic infection(ear/sinus/lung)
Adenoid/tonsillar hypertrophy
Gait abnormality/bowlegs,widened growth plates
Susp Vagus Nerve Damage
Surgeries, Nissen fundo,hernia repair/
reconstruction,esophageal dilation,gtube,
ear tubes,adenoidectomy
Bronchs w/ BAL's,lung biopsy
Upcoming scope/colonoscopy
Manometry testing in Oct.
Meds: Nexium,Zantac,Baclofen, Neurontin,
Zofran,Pulmicort/Splenda,PrednisonePRN,
NPO tubefed continuous elecare 24 hours/day
My son Brent did reglan for over a year,it never helped him, he didnt have any side effects other than drowsiness. He ended up having to go on baclofen for motility/severe retching after his fundo. Lauren my 6 year old daughter uses Reglan along with other meds for bad GERD and slow motility, and it has been more helpful for her, no side effects for her, and she is on high doses.. There are children who do have adverse effects though, so be wary of reglan. I would try erythromycin first since it has less risk of side effects.
Sep 24, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
We did reglan with successs except Jedd was a mnster while on it. He screamed constanly, withotu stopping pretty much it was horrid. But, it did work very well for him.

We are now using Erythromycin. Keep in mid that e-mycin is going to do discountinued soon. The co. that makes it is going to stop making it completely. I know many ladies who have been told this by their pharmacy. I also know a pharmacy tech who told me the same and our local pharmacist hs said the same thing.

Once that occurs the only drug approved for market use will be Reglan. We are in the process of weaning Jedd down to see how he does. It's not fun I assure you.

Sep 24, 2008
nicholasmom
We never tried the erythro. but we did try the Reglan (started with half the prescribed dose) and after four 1/2 doses we stopped. Nicholas just screemed all the time. I don't know exactly what it did to him, but it was clear he couldn't stand it. Every child is different though. If you do try it, I definitely would consider trying a lower dose first to see how baby tolerates the medicine before trying the full dose. This was our pedi pulmo's idea and I'm glad we did it that way. Good luck.
Sep 25, 2008
tiasmama
Macy, mama to Alexia, 2nd child with reflux. Born 4.5 weeks early on Oct. 20th. Showing signs of reflux very first week. Exclusively breastfed, starting elimination diet 11/1.
We used EES too. It definitely worked, though not by itself really. It helps keep the food down, but not stop the acid or block the pain. I'm sorry to hear they won't be making it anymore. That seems like a shame. I think it is really a good thing to use if your baby is gagging or constantly vomiting. We went from constant changes of clothes to just using diaper cloths. It was a drastic improvement for our l/o.
Sep 25, 2008
keely_and_allie
I can't believe they are going to stop making it! We are giving Allie prevacid twice a day along with the erythro. It has only been about 36 hours since we started, but she does seem to be refluxing less and screaming alot less. I'm warry of the reglan because of the side effects, but it may be our only option once erythro is off the market. We have been working with a pedi GI, but it has been a really slow process. Thanks for all the feedback!
Check with your
doctor first!