Posted By Posting
Sep 24, 2008
molson1525
Mary & Nicholas 7-17-03 (non-refluxer)allergies, asthma on Singulair and Flovent & Aidan 1-28-07(my refluxer)Nissen Fundoplication on June 20, 2008, FTT, MSPI, DGE, ear tubes, allergies and severe GERD now currently taking just Prevacid and drinking Elecare Vanilla 1+.
Ellen-Blueleopard
Aidan has been scoped twice once at 6 weeks and once at 8 months. Both time he didn't have EE. The problem with both of the scopes picking up allergies or allergy cells is that he wasn't eating anything but elemental formula at the time so I don't know how there would be any eosinphils. You know what I mean. I am still sure he is having milk allergy isssues but we are just going to avoid for now until I am willing to do another scope. Thanks for the ideas though.
Sep 24, 2008
jessicalynn
Brent 2 years old,
Birthweight 12 lbs 3.3 oz!
Very severe GERD,LPR,FTT
Severe esophagitis/scarring
Paraesophageal Hiatal Hernia,
Esophageal Dysmotility,
Food impaction,Aspiration
ALTE,Dysphagia,Odynophagia
Eosinophilic Esophagitis,Severe retching
Severe allergic colitis/malabsorption
Susp eosinophilic colitis,chronic diarrhea,
Laryngomalacia,Gas/Bloat Syndrome,
Visceral Hyperalgesia,GI Dysmotility,
Chronic infection(ear/sinus/lung)
Adenoid/tonsillar hypertrophy
Gait abnormality/bowlegs,widened growth plates
Susp Vagus Nerve Damage
Surgeries, Nissen fundo,hernia repair/
reconstruction,esophageal dilation,gtube,
ear tubes,adenoidectomy
Bronchs w/ BAL's,lung biopsy
Upcoming scope/colonoscopy
Manometry testing in Oct.
Meds: Nexium,Zantac,Baclofen, Neurontin,
Zofran,Pulmicort/Splenda,PrednisonePRN,
NPO tubefed continuous elecare 24 hours/day
Brent had several scopes prior to fundo on elemental formula only, neg for eosinophilic esophagitis, then several months ago had a scope confirming severe eosinophilic esophagitis, while only on elemental formula. It is always a possibility.
Sep 25, 2008
blueleopard
Pictured: G'mom w/3 kids. I'm mom to 1 angel Melissa (dec'd 11/92 - hypoplastic left-heart syn.)
2 healthy daughters (knock wood) Cory (16), Kim (11) & Eric (4) diagnosed with e.e. (scoped 8/08), GERD & severe food/seasonal allergies, asthma. Cried non-stop first 17 mths. of life Found out he is allergic to cow's milk, soy, eggs, and peanuts. Takes Prevacid, Neocate One Plus & Flovent.
Eric's first scope was ok, but he had just started to eat a variety of foods & the seasonal allergies/asthma hadn't yet kicked in. But, by age 2 1/2 it was obvious that he was still having issues (choking, etc.) even though we were avoiding about six allergens (milk, soy, nuts, eggs, fish, citrus). I was shocked at the increase in the eos. He went from 3 to 36. I'm not saying this is the problem, but keep in mind it could be. And, has he been skin tested for milk & other food allergies? It is so quick (a 30 min. affair max - 2 mins. to scratch on the back (very tiny tiny tiny needles) the rest is waiting for a reaction). This is different (of course) from e.e. It is possible to have e.e. & no IgE food allergies. Keep at it - I'm finding out more and more that it has to be the patient (or mom/dad) that gets to the bottom of things. Ellen
Sep 25, 2008
kmom
Worry Wart mom to
27 mo. reformed "happy spitter"
34.8lbs , 37in tall(oct)
Diagnosed A/R at 6 wks
Zantac until 1yr then Prevacid
Med free since February 08
peanut & egg allergies...still
Zoo Boo Trick-or-Treating (pic).
Ellen, I totally agree with you. If we aren't vigilant, the doctors will never figure it out. My mom recently had surgery and had a reaction to her pain meds: hallucinations, delusions, etc. She was a crazy person! They though she was always like that and were content with status quo. If my sibs and I hadn't been there most of the time, she would have continuted thinking that: men were sleeping in her bed at night; that she had roommates (private room); that they secretly moved her during the night to another facility; that they held her down and tried to kill her; that the nurses had a wild party in the hall one night, etc. WE had to insist something was wrong, WE had to ask for a psyc consult, WE had to make the doctor change her pain meds. No wonder people who have visitors recover more quickly in the hospital. Some one has to be there to be their advocate. I KNOW those poor nurses were glad to see us go. I am sure everytime they saw me come off that elevator they just cringed! We weren't mean just "involved", lol.
Sep 26, 2008
blueleopard
Pictured: G'mom w/3 kids. I'm mom to 1 angel Melissa (dec'd 11/92 - hypoplastic left-heart syn.)
2 healthy daughters (knock wood) Cory (16), Kim (11) & Eric (4) diagnosed with e.e. (scoped 8/08), GERD & severe food/seasonal allergies, asthma. Cried non-stop first 17 mths. of life Found out he is allergic to cow's milk, soy, eggs, and peanuts. Takes Prevacid, Neocate One Plus & Flovent.
kmom - Oh my gosh. It doesn't surprise me at all, though, that they missed it. You really need to be on guard. I read something that said typically if the doctor hears hoof beats, he/she will think horse, but it might just be a zebra - KWIM. Hope your Mom is better now. Ellen
Check with your
doctor first!