Posted By Posting
Sep 22, 2008
hi everyone, afreen's mom here
hi moms...been thinking of you guys a lot lately so thought of singning in and checking how our kiddoz are? i started work in jan of this year n lifez been running fast ever since. afreen is 3 years old now, just started preschool twice a week for 2 n half hours each day...fingers crossed for the virals. she is doing much better. she is off tube feeds in day and takes milk still every two hours (4 ounce ). but can actually finish it herself now rather than 2 by mouth n 2 by syringe. we still run continious milk at night.she also is starting to try solid food mostly without gauging. she still vomits on average once or every other day. but all n all i think she is getting better. now tell me how all your kiddoz are doing. feels like meeting my family after a long time. will check for your replies soon :)
Sep 22, 2008
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site:
What GREAT progress of the tube weaning!!!! I know first hand what hard work that is. Jedd just had his night feeds dropped at the end of June. We are only on liquids and purees as well. Good luck in the rest of th etube weaning process!!!!! WTG!!!!!
Sep 22, 2008
baby quinn's mommy
Mom to a 3 year old baby girl with severe reflux: g-tube, nissen fundoplication. dx: RAD, failure to thrive, DGE, epilepsy, sleep apnea, paraesohphogeal hernia, high lactic acid there's more "unknown disease"... Hospitalized 12 times, PT graduate! ST graduate! OT graduate! Current Meds: singulair, zopeonex, pulmicort, reglan, Keppra, Trileptal, vitamin B6, Veramyst. Current weight: 34 lb. Current height: 39". g-tube dependent, oxygen 1-2LpM all day and night PIC: Ms. Quinn
Hello! congratulations on the tube weaning! We are weaning Quinn ourselves and she is doing really well. I'm trying to figure out if this oral feeding is causing her respiratory issues though so we are going back on the tube for a little bit to see if her breathing problems get better. -Sarah
Sep 23, 2008
thank you so much for replying...glad to hear that jedd n quinn both r also getting better. keep intouch :)
Check with your
doctor first!