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Sep 20, 2008
luvmyboys
I am a mother or 3 boy's. John, Christion, and Anthony. My first 2 have had no GI problems but unfortunatly Anthony has had many. Diognosed with silent reflux and alergy to protien at 3 weeks old. Currently on previcid solutab half a tablet 1x a day(morning) and zantac 2ml 1x a day (night). Neocate formula.
advise please
What an excellent site this is. I have been reading alot of the advice people have been giving and decided to register. So Ok here it goes. My son Anthony is only 6 weeks old. When he was only 2 weeks he was having a hard time passing stool and the pedi said he was alergic to milk,so he put him on a soy formula, he was only getting worse and when tested his pedi said he was alergic to that also, so on to nutramigen, while on this he was hospitalized because he was still getting worse,(straining all the time and having really bloody stools) The pedi and GI said he had reflux and put him on Zantac. When it was time for the follow up with the GI he still had bloody stool so he said he couldn't tolorate the nutramigen and put him on Neocate. Things seemed to get better stool wise but now he cries all day and night! So back to the GI and he started him on the Previcid solutabs half of a tablet once in the morning and said to give him 2ml of the Zantac at night(he was getting 1ml 2x a day before) My son has been on both now for 3 days and he still doesn't seem any different! The Zantac has never seemed to help and I am wondering why he doesn't give him the previcid 2 x a day?Any suggestions? Not to mention not one doctor has explained what acid reflux was to me, I learned everything from this site! Thank you! Any advice will help!
Sep 21, 2008
seamus mama
Seamus was diagnosed with Silent Reflux at 3 weeks. Now he is 14 months, on Prilosec and avoiding dairy,soy,egg. Still nursing. A lot !!!
Hi. I'm sorry you have to be here, but this site is great.I have a little guy who was diagnosed with silent reflux at 3 weeks old too. It can be really frustrating to get proper care for a silent refluxer. I am not totally sure but I think that the Prevacid solutabs have dairy in them so there is a chance that the dairy may be causing your little one worsened reflux. You might want to look into this. Other wonderful women on this website will have insight for sure. I think if your baby is still crying night and day than it is time for immediate action-Switch the meds or increase the dosage..or if you need to, get a second opinion from a different GI ! Allergy testing or doing an elimination diet may help you figure out triggers of his reflux..For many little people, we cannot detect any causesfor the mysterious and annoying condition. Luckily, it dissapears for most. Good luck and good night..
Sep 21, 2008
maielise
My son Julian started Prevacid at the begining of this month 09/02 and we did not really notice a difference until about a week ago. For a bit there it seemed like he was getting worse, but now things are a lot better. I learned from some of the other ladies here that the prevacid can take several weeks for it to really work. If your baby is in constant pain, I would call the doc and tell him maybe they can switch him to the prevacid solution. Since you son is allergic to the milk.
Sep 21, 2008
baby quinn's mommy
Mom to a 3 year old baby girl with severe reflux: g-tube, nissen fundoplication. dx: RAD, failure to thrive, DGE, epilepsy, sleep apnea, paraesohphogeal hernia, high lactic acid there's more "unknown disease"... Hospitalized 12 times, PT graduate! ST graduate! OT graduate! Current Meds: singulair, zopeonex, pulmicort, reglan, Keppra, Trileptal, vitamin B6, Veramyst. Current weight: 34 lb. Current height: 39". g-tube dependent, oxygen 1-2LpM all day and night PIC: Ms. Quinn
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I hated this part of the reflux rollercoaster. Getting the doctors to listen was really tough and it doesn't help when you tell them that they are ALWAYS IN PAIN while the child is happily drinking a bottle and smiling in the office. We know one office visit doesn't reflect the daily battle of reflux and some doctors are just ignorant to that unless the child is obviously having issues in the office. I know we always got docs to listen more when Q was puking and screaming and choking in the office. But it doesn't always work like that. A video camera is always great so keep that in mind. Same with pictures of his stools. I think splitting up the prevacid dosage might help. The solutabs worked the best for us. think about increasing the dosage until it helps him. The only thing to consider about over-dosing on PPIs is that the body needs acid to help fight infection so it's not good to give them too much. -Sarah
Sep 21, 2008
maiam
maia m - GERD. Nissen Fundoplication w/hiatal hernia repair.
Mom to
Son (10) GERD(aspiration pneumonias, apnea, tracheomalacia), Food allergy, Asthma
Daughter (6) GERD, Heart Murmur, Food Allergy, Asthma, Mold allergy
Another thing to watch w/ elemental formula (Neocate) is CONSTIPATION. It is such an amazing formula, that it is mostly used up by the body and there is not much waste. This means not much stool, and constipation. Many of our kiddos who have been on elementals have had to use Miralax. Constipation can also worsen reflux. My oldest had his first aspiration pneumonia at 3 weeks old. It sure is a learning experience!
Sep 21, 2008
luvmyboys
I am a mother or 3 boy's. John, Christion, and Anthony. My first 2 have had no GI problems but unfortunatly Anthony has had many. Diognosed with silent reflux and alergy to protien at 3 weeks old. Currently on previcid solutab half a tablet 1x a day(morning) and zantac 2ml 1x a day (night). Neocate formula.
Thank you very much for all the advise. I did ask my doctor yesturday if they made a liquid form because I was having a hard time with the solutab (getting it to disolve all the way) And I felt like it wasn't working. He actually said that I wouldn't see a difference for a few days and that they took the liquid one off the market? I am wondering if I should see if I can take him off the zantac at night and give him the other half of the solutab instead (he is only on half of a 15mg tablet 1x a day (morning)?Also since he has been on the neocate he has not been constipated, However, his stool is like black and stinks really,really bad. Will it ever go back to normal? Also I read alot of people saying (i think ) mylanta? Is he to young for this?Once again thank you everyone!
Sep 21, 2008
mom2halleyann
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
Welcome!! Prevacid takes time to work, so you may want to try to hold out for a couple of weeks to see if he improves (easy for me to say, I know). It took 3 weeks before we saw any improvement at all for my dd - but by 4 weeks, she was doing significantly better. Good luck - this first part of the roller coaster is definitely the hardest and the scariest.
Sep 21, 2008
abbysmom
Andrea: Mom to 3 crazy girls!
Jackie (3/01)
Payton (9/03)
Abby (4/06) Prevacid 7.5mg (evening), MSPI, goats milk (currently trying to wean off Prevacid)
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My daughter has been on Zantac (in the beginning) then Prevacid 15mg (half in the am and half in the pm) and also Neocate. Yes, def watch out for the constipation that is a big issue with the Neocate. Abby took Lactulose for this and it helped greatly. We were able to wean her off of it about 6 mos after starting the Neocate.

It def takes time for the Prevacid to work. I would give it 2wks and if not any better I would ask about adding a dose of the Prevacid in the evening. But remember that you can't give the Prevacid and Zantac at the same time. I think that you need to leave about 2hrs inbetween. Also, make sure that you give the Prevacid solutab on an empty stomach and wait 30mins to feed. It is important that it doesn't come into contact with stuff in the stomach b/c that will break down the med before it makes it to the proton pumps and then it won't be as effective. We have found that the best way to give the Prevacid is on a baby spoon with a little bit of water. Or you can just put the tablet on the inside of his cheek and hold it there until it dissolves. If you use a syringe the medication tends to get stuck in the tip and then they don't get it all. The tablets do contain some lactose. This is different the milk protein though. Most kiddos do fine with this but there are a few that can handle it.

Also, the Neocate is AMAZING!!! It worked so well for Abby. But also give this time to work. We saw a huge difference in her after about 1 month on it.

Sep 21, 2008
nicholas'smom
It also took a few weeks for the prevacid to work for Nicholas. We do get it compounded into liquid by our pharmacist (only a good pharmacist will do this for you). We also, just started the neocate as eczema had spread to his entire body. The stools are dark here also.
Sep 21, 2008
engin117
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including engi.nowaira.net, engi@nowaira.net, Engi@nowaira.us, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
After 8 weeks on neocate and Meggy getting worse, we started doing a complete breakdown of all the ingredients that were in the things she had tried. She was worse on elemental formulas even after a long term trial. The inside of formula cans are sprayed with a corn product(this does not have to be listed as an ingredient), not to mention the corn ingredients in all formulas. Elemental have more corn than the others.

This may or may not affect your little one.
Many others here had problems that were due to reflux but not corn, and the meds worked after some time.
I am sorry u r dealing with these things and hope it works out sooner rather than later.

I just always share my corn story because many are not aware of corn in baby formula. (malt, maltodextrin, dextrose, ect.) Corn just as milk and soy have so many names it gets confusing after a while.

Sep 25, 2008
tiasmama
Macy, mama to Alexia, 2nd child with reflux. Born 4.5 weeks early on Oct. 20th. Showing signs of reflux very first week. Exclusively breastfed, starting elimination diet 11/1.
Maybe check on giving him Carafate, I don't think he is too young for Mylanta either. Both coat the stomach and relieve baby from pain, but one is OTC and one isn't. It takes a while to figure it all out. There are several medicines available. Try the mylanta and/or carafate on top of the Prevacid, give it 2 weeks... and if that doesn't work try something new, like Prilosec maybe.
Check with your
doctor first!