Posted By Posting
Sep 20, 2008
tiasmama
Macy, mama to Alexia, 2nd child with reflux. Born 4.5 weeks early on Oct. 20th. Showing signs of reflux very first week. Exclusively breastfed, starting elimination diet 11/1.
Tylenol Warning
OMG... Hi everyone. Mot of you probably don't know me. I haven't been around as of late, but towards the beginning of this year, this site saved my life. I honestly don't know what I would have done without the information and care given by the members and volunteers here.

Anyhoo.. at the height os Tia's reflux I started giving her Tylenol daily, for a little it was even every 4-8 hours. It seemed to be the only thing that took the edge off her pain and let her not writhe in constant pain. This was before I go the elimination diet all figured out. I just read a study that shows that even moderate use of Tylenol in infants lead to a serious increase in asthma.

Here is the msnbc link. http://www.msnbc.msn.com/id/26788879/

I am shocked and can not believe it. I hope I haven't done my poor baby a disservice. I was not informed and doing the best I could. But I thought I would pass it along to anyone that could maybe use the information.

I wish you all the best with your situations. I know at the height of it all with Tia when the doctor said that one day soon it would be over and that I would laugh about it I just wanted to spit in his face. I am not at the point of laughing about it... but I don't have to bare watching my poor baby suffer anymore. I don't have to worry myself to insanity, question myself, feel the guilt and anger and hopelessness. I hope that this site provides the relief to you new members that it did for me. God Bless!
Sep 20, 2008
amber f
I remember you:) You should share a new pic of you beautiful girls. Also if you get a chance can you give us an update. Is her reflux under control now?

Thank you for the information:)

Sep 20, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
Thanks! I know what you mean! Maggie's has been better for almost a year and I still don't laugh about it. I don't think I ever will laugh about it. Maybe say "whew, thank God I got through that!" but not laugh.

I remember you too! I'm glad things are going better AND don't feel bad. She'll be fine..you can't live your life based on studies! You have to live it according to what is best for you and your family!

Sep 20, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
god, I don't even want to think about this. I have given Sebastian WAYYYY too much Tylenol in depseratio nover the last few months. Thanks for sharing this.

Your doctor sounds like a real gem...I don't know ONE MOTHER who would be laughing about her child being in pain! WTH? It takes all kinds, I guess. Nice to see you on here - not sure if we ever met on here...but hello!!

Sep 20, 2008
amber f
I just reread that and I need to clarify... When I asked if her reflux is under control I meant is she off of meds? Sorry.

I don't think any of us will ever laugh about reflux.

Sep 20, 2008
tiasmama
Macy, mama to Alexia, 2nd child with reflux. Born 4.5 weeks early on Oct. 20th. Showing signs of reflux very first week. Exclusively breastfed, starting elimination diet 11/1.
Heya Amber,

Tia is doing soo good. She has been off of all medication since July. She has no reflux issues at all, just intolerances now. She is the happy, energetic, cute baby I knew her to be when her reflux would ebb. I don't think I will EVER laugh about it either, ever.

I think back to how depressed, isolated, and exhausted I was when it was starting and at its worst. I think of how no one really understood, except for the parents on this forum and how grateful I was and still am that this site is here.
Sep 20, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
Photobucket
i remember you! Good to hear the freat update :) Tylenol causes liver issues too if taken in excess, i remember that from when i was in high school and one of my friends was regularly taking huge amounts of it!! (not trying to freak you out, just passing it on...I doubt Tia had enough to hurt her)
Check with your
doctor first!