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Sep 16, 2008
engin117
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including engi.nowaira.net, engi@nowaira.net, Engi@nowaira.us, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
Something isn't right
Dear Ladies,

I have tried to give a link to a photo album, let me know if it doesn't work.

After Meggy's chicken pox vaccination, a lot of things started going wrong. I don't know how to explain what I am seeing so I have taken some pictures. Please look at these and tell me if you notice anything out of ordinary. Not sure if the photos can show what I am seeing. Or the picture I want to portray so that I can help her docs. understand what is going on.

Couple things:
*Looks like Megan is fainting. She just falls over and is out for seconds and gets back up like nothing is happening.
*Her eyes are doing something funny-sometimes half closing-somtimes one eye closes the other half closes-sometimes they just kind look rolled back but not to point that whites are only thing visible-Sometimes she seems to have trouble making them focus, during which time she is not responsive.

*She holds her chest and wheezes.
*She is now curling her toes under often and walking on them.
*Also sometimes looks like her face is drawn to one side involuntarily. Don't know how to explain this otherwise-just have to see for yourself.
*Her head also seems to drop out of no where. Like she will be sitting and looking at you and then her head just kind of falls like it is too heavy. She pulls it back up and it does it again.

As silly as it may sound-this really freaks me out. Did the vaccination cause her seizures? Is this something else? Do you know of any conditions that vaccinations can trigger?

Thanks again ladies. engin117/Meggy/Weird events

Sep 16, 2008
engin117
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including engi.nowaira.net, engi@nowaira.net, Engi@nowaira.us, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
Guess the album didn't work, sorry, I will have to try again. I have to run to appt. but will post again in few hours.
Sep 16, 2008
engin117
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including engi.nowaira.net, engi@nowaira.net, Engi@nowaira.us, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
I am gonna try again, sorry if don't do it right again.

engin117/Meggy/Weird events

Sep 16, 2008
rissaroo
Picture: This is what happens when you raise a kid on health food and they get ahold of a Coke! Bad mom, that soda is NOT on the reflux diet.
UPDATE: Isaiah is now 12 and off meds! He is doing great, eating again and hopefully will be catching up in the growing department. I am still in the "hoping it sticks" phase, but we're so happy that he's better!
If you click on the photo, it will take you to the album. (((hugs)))....if she wasn't doing these things before and suddenly is now, I would take her in. It sounds to me like something is going on, not sure if the vaccination would have anything to do with it but either way I think it's worth checking into. How is she otherwise? How often are these things happening? I think if it were me, I'd take her in and take the pictures too, in case she doesn't do any of the things you're worried about while she's there. Remind me...is she on any medications right now? There are a few that do cause neurological side effects sometimes, so that comes to mind as well. I hope you get to the bottom of it!
Sep 16, 2008
stickybean
I am Jacky, mommy to Joslyn Olivia (April 2008) and Katelyn Isabel (November 2009).
Joslyn was dx'ed with Silent Reflux with breath apnea at 5 days old. VERY SCARY!
Katelyn is a spitter reflux baby. Started at 3 days old as well. (Both were/are breast fed.. symptoms came on when my milk came in).
Joslyn has been reflux free since she was 12 months (suffered poor weight gain for a few months) and Katelyn is now on Zantac... waiting to see if it works.
I am lost here. I saw the pics and I have no idea. I would for sure ask the pedi. Please let us know! I hope she is okay right now
Sep 16, 2008
kmom
Worry Wart mom to
27 mo. reformed "happy spitter"
34.8lbs , 37in tall(oct)
Diagnosed A/R at 6 wks
Zantac until 1yr then Prevacid
Med free since February 08
peanut & egg allergies...still
Zoo Boo Trick-or-Treating (pic).
I can't see the pictures but this sure sounds like seizures.
Sep 16, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
Was if just eh chicken pox one or did she get other shots??

I know someone who had a perfectly normal 18 month in all aspects. He had no issues with develpopment at all. He now had a vaccine realted illness and is permantly health imparements.

His 18M shots almost killed him. Not to scare you, his is an extreme case and they won a settlement from the pharacudical co. who amde the shots. the settlement is set up to take care of his the trest of his life which he will need.

All that said to say, I'd ahve her checked. I think you emntioned this last week right???? So she had had these issues for a bit after having the shots. If the pedi. won' tlisten I'd take her to the ER to get seen.

http://www.jacksonpresleydiamond.com/

That is his website. (it's out dated a tiny bit..LOL). She goes into detail into what happend to him.

HUGE HUGS!!!!!

Sep 16, 2008
nicholas'smom
Oh Goodness. Have no help for you, but would definitley have her checked out. That sounds very scary.
Sep 16, 2008
engin117
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including engi.nowaira.net, engi@nowaira.net, Engi@nowaira.us, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
They are trying to tell me as always it is nothing to worry about. We will see what John Hopkins says. I got her records today and was reading through them. I found it very annoying that the pediatricians nurse had previously told us that her stools were negative for blood. The results clearly state they are positive.

I wish I could find someone to really listen and pay attention.
Meggy had her GI appt. today. They put her on Neocate E028 splash. We had talked about it previously, but now we are actually doing it. We have not had any success yet. She spits it out and very clearly says YUK! We will keep trying. Perhaps she will get a taste for it. I want to help her so much. On the other hand now that I know how to post an album, I can share some happy moments for a change.

Thanks, Ladies.

Sep 16, 2008
engin117
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including engi.nowaira.net, engi@nowaira.net, Engi@nowaira.us, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
Meggy is currently taking carafate 1ml as needed 2 times a day. She takes Levsin 4-6 drops as needed. Up to 4 times a day.
Sep 16, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
God, how horrible. I am so sorry and am praying you get some good help at Hopkins. I have been to three departments there (four if you count the pediatric ER) and can tell you that they have spent plenty of time with us...we have never been rushed. Actually, we've experienced just the opposite - we always feel like we are there too loooonnnnnnggg.

When is the appt?

Sep 16, 2008
engin117
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including engi.nowaira.net, engi@nowaira.net, Engi@nowaira.us, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
I love that picture of Sebastian . It looks like when Meggy takes something of mine or her Daddy's and tries to run fast away giggling. It is her way of saying I want u to play with me. I love her little giggles so much. They are just precious treasures.
Sep 17, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
Photobucket
The description sounds like possibly siezures to me too. did you ask the GI his/her opinion about the spasms in her tummy?
Check with your
doctor first!