Posted By Posting
Sep 13, 2008
izmom
Prevacid/constipation /sleep
Hi. I'm a first time mom to a 10 week old girl w/ silent reflux- yuck i hate reflux! She is on 2.5 ml of Prevacid 2x day. We are still having issues with her sleeping- mostly during the day. She will sleep for 20-30 min. and then wake up crying and usually has a burp or gas (after I pick her up) and then can't get back to sleep. This happens the whole day! So you can imagine she is exhausted all the time and cranky. It's so sad. Does anyone else deal with this type of sleeping issues? At night she does okay with sleep, usually 2-4 hour stretches. Also, she now is not having BM's about every 2-3 days and then the following day will have one that blows out her diaper and through her clothes. The doc recommended prune/pear juice w/ water but I'm wondering if it is a side effect of the meds will I have to give her that forever?? Waiting for a call back from the doc now on this question too. Also she hates the car and her stroller (which is her car seat on a frame). The only way to make it anywhere in the car is to swaddler her and have the white noise cd playing and even then it's a 50% chance she will scream the entire time. It breaks my heart. Any other ideas? Also has anyone tried a chamomile tincture? My mom suggested. I'm also doing the probiotics. Also- I'm not eating any dairy/soy- no ingredients either. Did the elimination diet and didn't see any changes but still not eating many things (dairy, soy, leafy greens, beans, chocolate, caffeine, etc. in case this is contributing). I miss lattes! So I'm just looking for any advice anyone might have or anything they have tried or just similar experiences? Sorry this post is so long! Thanks!
Sep 13, 2008
ethan's mom
Meridith, mom to Ethan born 4/23/08. Ethan was diagnosed with reflux at about 1 month. He has been on Zantac (unsuccessful) and Prevacid. He is currently taking 7.5 mg of Prevacid 2x per day, with good results. We also suspect MPI, though this hasn't been confirmed by a doctor yet.
Ethan is mostly breastfed, though we are doing one bottle of soy formula each day. We also do some homeade "solids' including, so far pears, avocado, sweet potato, and peaches.
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This sounds pretty familiar to me. My son is 4.5 months, and has/had a lot of the same symptoms. As far as the car seat and stroller go, it seems to be worse for us if Ethan has just eaten. Once his tummy is less full, an hour or so, he tollerates it much better. Of course this only allows 30 minutes to run whatever errand before another nap rolls around. . .
His bms are exactly the same way, and I generally do dilluted pear juice on the second day, which helps. I'm not sure if it is a side effect of Prevacid or not.
I'm sorry that this wasn't a whole lot of advice, but I hope it helps. I'm glad you found the page, it has been a great help to me.
Sep 13, 2008
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
Hi there! Welcome. Your baby sounds like my little Katie when she was that age. She is now three. I wish I had found this site earlier. These moms are so knowlegeable and so kind. You will feel like have a place to get your questions answered.

My only thought would be the dose of medicine. I think my daughter was on 15mg solutabs at that age and also Zantac. You might want to talk to your ped. about that.

Katie had trouble pooping until I switched to Nutramigen formula.

Sep 13, 2008
izmom
thank you!! were you breastfeeding prior to switching to the Nutramigen? When do you find out about the lactose intolerance- is there a test- i'm clueless about that? thnx
Sep 13, 2008
stickybean
I am Jacky, mommy to Joslyn Olivia (April 2008) and Katelyn Isabel (November 2009).
Joslyn was dx'ed with Silent Reflux with breath apnea at 5 days old. VERY SCARY!
Katelyn is a spitter reflux baby. Started at 3 days old as well. (Both were/are breast fed.. symptoms came on when my milk came in).
Joslyn has been reflux free since she was 12 months (suffered poor weight gain for a few months) and Katelyn is now on Zantac... waiting to see if it works.
Joslyn had silent reflux too. But luckily is does not affect her sleeping!!!!!!!! She is one of the best sleepers I know. But she can go up to 6 days without a poopy diaper. *she is 100% breastfeed.* She is back on prevacid since yesterday and on Zantac until Prevacid begins to work. The poopy thing is "normal" (her Pedi said) as long as she has a good size one when she goes. Have you tried different feeding positions? I feed Joslyn with her more vertical while she nurses. All I can tell for now is she has horrific episodes when I drink orange juice. **Congrats on your new baby girl!!!!!!** Jacky
Sep 13, 2008
abbysmom
Andrea: Mom to 3 crazy girls!
Jackie (3/01)
Payton (9/03)
Abby (4/06) Prevacid 7.5mg (evening), MSPI, goats milk (currently trying to wean off Prevacid)
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I would also check and make sure that the probiotics that you are using are milk and soy free. I would def stick with the elimination diet. How long have you been on it? Also you might want to check and see if her Prevacid is being compouded correctly. Here is a link to read up on that http://www.infantreflux.org/forum/forum_posts.asp?TID=4505
Sep 13, 2008
engin117
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Our carrier is the only thing that somewhat gave us a break. Looks like a car seat but only for use at home. We had to pad the seat so that it wouldn't make her sore.

We also had to use miralax until the point that Meggy came off of dairy. She could not have a bowel movement otherwise without help. We were told that in majority of kids it does not cause any long term damage or addiction (miralax) However that hasn't been the case with our Meggy's little body as she seems to be the 1% to have side affects of everything. Apple juice words best for Meggy now when she has bouts of constipation.

We also tried gripe water. I believe it has ginger and fennel in it. Other moms I knew at the time have had great success with it. It didn't work for us. The only meds we found to give our Meggy some relief were Levsin for spasms, and carafate to coat her throat.

Also are you eating peanuts or peanut butter? Many kids are allergic and it can cause problems.

Sep 14, 2008
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
I was breastfeeding prior to switching to Nutramigen. However, I was also supplementing with a regular formula before we switched to 100% Nutramagin. I had a hard time breastfeeding her. She just refused it! So I pumped most of it. I was doing suppositories and pear juice to help her poop. When I switched to Nutramagin she had no problems.

The only way to tell if they are lactose intolerant is to completely remove it from their diet. It really helped Katie but she was 3 years old when we did it. She also just had a scope which will confirm it

Other mom's are doing the elimination diet they could give you better advice on that

Also, I have heard that the liquid form of the Prevacid is not all that reliable. I would really talk to your doc about the solutabs. A lot of us supplement with Mylanta . You should talk to your doc about that too.

Katie took all her naps in a vibrating bouncy with white noise. I don't know why the white noise was so effective but it helped a lot!

As for the car it was just short trips for a long time. Apparently it is the position they are in when they are in the car seat that makes their tummy hurt even more.

Katie slept much better on her tummy. You may want to ask doc about that.

Hang in there. It does get better . I promise.

Sep 14, 2008
mamad
Noah 10/06 Reflux free for 1 year
Reid 7/08 Prevacid 15mg
I don't really have much advice, but when I read your post it was like reading my thoughts. My son is the exact same way with his sleep. He is only 6 weeks and we just started prevacid a few days ago, so we are waiting for it to kick in. The only thing that seems to help a bit is that we have a wedge in his bed and a sleep positioner. He is swaddled and the positioner keeps him in place. We tried not swaddling and that was worse. He is also BF and I tried the elimination diet, but I don't think it makes a difference. My other son had reflux and went through the same thing with the sleep. I just remember that once the meds started working, it was like night and day with his sleep habits. I am just trying to hang in there and hope that it is the same with this one. How long has your little one been on the meds? I just wanted to say that I feel your pain.
Sep 15, 2008
izmom
thanks for everyone's help and words of support! My hubby just made it back from 2 weeks out of town and I'm surprised I survived! My little izzy has been on the Prevacid for 3 weeks now and was on Axid before that. I just asked my doctor to change to the solutabs instead of liquid so I'm hoping that helps because she seems to be doing worse this last week....which is so discouraging! And the wait for the GI appointment is 1.5 months-ugh!! Does anyone know the conversion for mg to ml? She's on 2.5 ml 2x per day but I notice everyone seems to know their dose in mg. It's so helpful to know that it does and can get better because I am seriously losing hope and don't know how I'm going to go back to work and find someone to stay with her....ah- crying!!
Check with your
doctor first!