Posted By Posting
Sep 11, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
The ped says Sebastianis having night terrors.
Of course he says that, because NOTHING is ever easy when it comes to sleep with this kid!!!! He explained his theory to me (and he seems pretty damn sure, as does my sister, whose 6-year-old daughter had night terrors as a baby), and it does sound like Sebastian. Last night he was screaming and crying with his eyes open, but when I checked on him, he had no idea I was there (have a video monitor). I went to check on him, but before I opened the door, he was quiet again. A little later, I was in bed and I heard this loud choknig sound, and then the screaming and crying started again. My husband went in to wake him/pick him up and restart the sleep cycle (if that is even possible with a young baby), and this time, Sebastian stopped crying. He slept for two more hours, then woke to eat. Then he slept quietly (I didn't hear him, at least, and I stupidly sleep about 6 inches from my monitor) for about five and a half hours.

The ped told me there really isn't anything I can do. He definitely thinks that Sebastian's presumed night terrors are caused by exhaustion, because they are WAYYYYYY worse on days he refuses at least one nap (like yesterday...and last night was no good).

I have tried every trick in the book and cannot get this kid to sleep during the day (CIO has works at night as long as he is rocked to sleep initially..but it DOES NOT work during the day. He can go FOREVER.). What is awful for me is that he is having these problems because he is so tired, but I can't make him sleep. I know that kids who don't outgrow these end up as the sleepwalkers. :(

Sep 11, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Oh God, I hope the choking sound was just him waking up crying. He has never had breathing issues, even when we coslept for the first five months. Anyone know how to find a sleep specialist?
Sep 11, 2008
mom2halleyann
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
You've probably tried EVERYTHING, but have you tried laying down with him during the day? Even a little bit of rest may help him. I'm sorry that he's having such scary dreams :-(
Sep 11, 2008
mommy2max&lucy
Patti, mom to Max (3/04) with EE and chronic sinus issues; Lucy (6/07) with reflux
Hi! I am so sorry to hear about this...it is so frustrating when there is no clear cut answer. I also agree that you might want to find a sleep specialist and also have a sleep study performed. Our son did this quite frequently at this age...after many months of agonizing over every single thing that could be causing it and being told by our peds that is was nightmares/night terrors, we were able to correlate it directly to his allergies/EE. During high allergy season (our son has over 20 environmental allergies), his sleep is much worse and we have frequent episodes like you describe...they are more frequent when he sleeps with the windows open as well. We also have similar problems when he is eating something that he should not be getting...whether through a food trial or if we accidently gave him something with an ingredient he can't have. I would not be so quick to rule out the allergy side of things. A sleep study may shed some light on it, though. We had a sleep study performed at the same time as a pH probe and the results were very insightful. Good luck!
Sep 11, 2008
mollybeth
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
Laying down w/ Cooper is the only way he gets a good nap. Otherwise it is cat naps in my arms or the car. He has never been a good napper. I am really sorry. It must be really tough knowing he's scared and there is nothing you can do for him. hugs!
Sep 11, 2008
lorenzomama
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
This link: http://www.sleepapnea.org/index.html has lots of information about obstructive sleep apnea, as well as resources to find sleep study specialists around the country. What state are you in?

Sebastian is, according to "the experts" too young to be experiencing sleep terrors, but as we all know "the experts" are not always correct about every single situation. There is a lot of controversy about whether or not there are pre-cursor behaviors to night terrors -- I am definitely concerned about this with Lorenzo, as he does the eyes wide open, not seeing things from time to time, and sleep terrors run in my family.

An interesting starting place for exploration of sleep problems and sleep cycles in children is Richard Ferber's book "Solve Your Child's Sleep Problems." Although most people only refer to The Ferber Method as a CIO technique, his book is actually a fascinating introduction to normal and abnormal sleep patterns

I'm so sorry you are dealing with this on top of everything else. Do be aware that pediatricians receive almost no education about sleep....

Sep 11, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
You know, I second what Donnessa said. I used to have to pretend to nap with Morgan so she'd go to sleep then I'd get up. Maybe that would work if you don't think it'd ruin him for bedtime.
Sep 11, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Thanks, everyone. Lorenzo's mama, we are in Maryland. I am going to go to the library today anyway, so I will pick up the book. I, too, only knew about Ferber's CIO fame. Thanks for the link, too. I just hate this. My poor little man. :(
Sep 11, 2008
lorenzomama
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
Hang in there! We went through 16 months of sleep hell trying to understand what was happening with Lorenzo, and we were told all sorts of incorrect things by our pediatrician along the way. I discovered that it is essential to be a true advocate for my child by being educated and insistent when it some to his health care. As time allows, I will try to find some more of the links I found helpful in my explorations about children's sleep. ((HUGS))
Sep 11, 2008
mom2coy
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
Now that you have mentioned the eyes wide open then yes that is definitely a night terror. and yep, they are caused by over-exhaustion. here is my only suggestion. if you can get him to take one good nap a day then what you probably need to do is get him to take atleast another cat nap--45 minutes at least. on days when coy refuses a nap in the afternoon i go for a drive. works every time. i get myself a starbucks and drive thru the park. is this at all possible for you maybe 1-3 days a week to fit into your schedule with work and all?
Sep 11, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
Jedd hasd night terrors at 6 months old after heart surgery. His were caused by trying to come awake while intibatated and with all his ljnes still in. Little bugger. They were super scary. Thye lasted about a monht and then passed never to return yet.

I hope you can figure out what's up. Those sound like night terrors.

Sep 11, 2008
katiesmommy
Tracey, mom to Katie. Diagnosed with reflux at 3 weeks and put on Zantac. At 8 months old she was removed from Zantac as it was giving her migraines, currently on Prevacid. Switched to Elecare since she is not gaining weight; trialing solids after being off for a month. Geneticist said reason she isn't gaining weight is she is stubborn. Upcoming appts.: Neurologist for developmental delay and EGD scheduled for September. She is one funny baby!
So sorry that you all have one more thing to deal with. How dark is his room during the day? Katie REFUSED to nap in her room until I bought black out curtains to make it as dark as night. I have them pinned to the wall at the curtain rod with thumb tacks and a clothes pin down the middle to make sure all light is kept out; it looks like a drunk or vampires room instead of a little girls! :)
Sep 11, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Kell-I am going to try the driving this week...maybe tomorrow? I am praying a miracle will occur and that he will actually sleep in his car seat. I think I have the only baby in the world (no, I don't - there's Mags, too) that will NOT sleep in the car. Like ever. But I have never tried it specifically at nap time, so who knows?? Thanks for helping. Tracey - oh yes, we have navy blue blackout drapes, too! I was laughing when I read your response because we have our tacked to the wall with thumbtacks AND we have them sealed together with giant safety pins. And the bugger WILL STILL NOT SLEEP. Sigh. Thanks so much, ladies. And Sebastian says stop trying to ruin his fun - he likes running me ragged.
Sep 11, 2008
lorenzomama
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
Just so you know you are not alone, Lorenzo did not sleep during the day, under any circumstances, for many months. It is still hit and miss, and there is no suggestion I have ever heard of -- and believe me, I've heard some doosies, that made an iota of difference. Actually, my best suggestion to you would be to look into craniosacral therapy for him. Our pulmonologist recommended it -- he's also a sleep specialist, and he says they have seen amazing results over the years with it. We started it with Lorenzo, and it wasn't a miracle cure or anything, but it really does seem to make a difference....
Sep 11, 2008
engin117
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I feel for you. I hope they get it figured out soon. Meggy goes from around 8AM-midnight every day. She hardly ever naps. I have read every sleep training/help book I can find. Nothing works. I would spend 3 hours getting her to nap for 30 min. The car just makes her more alert. When we are up 3-5 hours every night, this makes it very hard for me to keep going. Just don't know how she does it.
Check with your
doctor first!