Posted By Posting
Sep 10, 2008
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
First the "good": Maggie asked to sit on the potty at school today. WOW!

My mil had to have fluid taken from her lungs today. I don't know how bad that is. It's the 2nd time they've done it.

My fil's mother is dying. She has been in a nursing home and recently went to the hospital AGAIN. they said today that she's not gonna make it through this time. I don't know what kind of time frame we're talking. I'm not close to her, dh isn't either, but Morgan has went to visit her a lot over the years.

Sep 10, 2008
amber f
Sorry about your GIL. Also I hope the fluid in MIL lungs clear up and she feels better soon. I think the fluid comes from laying around all day. A lot of people who are in the hospital develop pneomnia from laying around and the fluid settles in their lungs. Hopefully she can be up and about more now off of the vent that is won't continue to happen.

Wow that is great about the potty business. Yay for Mags:)

Sep 10, 2008
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
Wow, your family has really been through the ringer lately. I really ope thing continue to turn around w/ your mil soon. That is great news about the potty!
Sep 10, 2008
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
Ok, Mil is being transferred to a rehab facility close to us....well, 30mins away instead of 45.
Sep 10, 2008
So sorry to hear about fil's mom-glad to hear MIL is going to be closer..and way to go with the potty!!!
Sep 11, 2008
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
Elyse had to have a respiratory therapist when she was on the vent because she had so much fluid in her lungs. My guess is that she couldn't handle her own secretions and was aspirating???
Check with your
doctor first!