Posted By Posting
Sep 10, 2008
mom2halleyann
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
Ellen (blueleopard), how are you feeling?
I wanted to check on you to see if you're feeling any better.
Sep 10, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Hey Ellen. Ditto for me in ref: Donnessa's question. I hope you and your little guy are doing OK. We are all thinking of you. I also wanted to thank you for your responses to my sleep question. Sebastian definitely reacts poorly to ragweed, and the numbers around here (Maryland) are throught he roof right now, of course. I have no idea what to do with this child. Craigslist is looking like a better and better option allt he time (except he is so freaking cute. He stepped down from the dining room into the living room today and is was sooooooooo adorable!).
Sep 10, 2008
kmom
Worry Wart mom to
27 mo. reformed "happy spitter"
34.8lbs , 37in tall(oct)
Diagnosed A/R at 6 wks
Zantac until 1yr then Prevacid
Med free since February 08
peanut & egg allergies...still
Zoo Boo Trick-or-Treating (pic).
Sorry to post jump. Ellen, I thought you'd see this first rather than the last thread. I haven't heard of that but I will look it up because I just have to do these things. I can't help myself.

Do you show signs of jaundice? I would think that will Bili (as in biliruben (SP), right?) in the name that it is possible.

Are you getting tested?
Sep 10, 2008
kmom
Worry Wart mom to
27 mo. reformed "happy spitter"
34.8lbs , 37in tall(oct)
Diagnosed A/R at 6 wks
Zantac until 1yr then Prevacid
Med free since February 08
peanut & egg allergies...still
Zoo Boo Trick-or-Treating (pic).
primary bilibary (sp.) cirrohsis. I found this on line. Knowing what we know about Eric, maybe this is an issue for you?
57% of patients with acute liver failure have anti-transglutaminase antibodies[4] suggesting a role of gluten sensitivity in primary biliary cirrhosis, and primary biliary cirrhosis is considerably more common in gluten sensitive enteropathy than the normal population.

Do you think you could be gluten sensitive?

I am kind of jumping the gun here. I am going to think positively that it's just a blockage that they can fix.
Sep 10, 2008
mollybeth
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
I hope your are both doing well. Sorry for all you have gone through lately.
Sep 11, 2008
blueleopard
Pictured: G'mom w/3 kids. I'm mom to 1 angel Melissa (dec'd 11/92 - hypoplastic left-heart syn.)
2 healthy daughters (knock wood) Cory (16), Kim (11) & Eric (4) diagnosed with e.e. (scoped 8/08), GERD & severe food/seasonal allergies, asthma. Cried non-stop first 17 mths. of life Found out he is allergic to cow's milk, soy, eggs, and peanuts. Takes Prevacid, Neocate One Plus & Flovent.
Thanks for asking about me, Donnessa
Unfortunately, I am still feeling about the same - it's been a month now. I have blood work pending (mostly for liver issues) and a gallbladder test tomorrow. I also have an apt. with a cardiologist (the GI Dr. insisted). I really need this on top of Eric's issues/diagnoses! I can't wait until they figure it out. My two fears are: they won't figure it out/it will be something unfixable. I will let you all know if I get any answers. Melissa - Nooooooooo. No Craig's List or I swear I'll buy him. He really is too cute. The allergy thing sucks so bad & the Dr.s really can't do much. Allergy shots are our best bet, but they have to be a certain age (I heard). kmom- I do have yellowing of the corners of my eyes & I swear I look "tanner" when I'm usually pale as a ghost. I don't think I am sensitive to gluten in any way, but I do think I may have some autoimmune issues. This, together with my hubby's severe allergies, probably contributed to Eric having extra severe allergies. Thanks Mollybeth, answers can't come quick enough for me. It's a bummer feeling like crap & taking care of three kids (esp. Eric - Mr. High Maintenance)! Ellen
Check with your
doctor first!