Posted By Posting
Sep 10, 2008
Will they ever find what is wrong?
Today we went back to the ortho for Michael. He is still in unbelievable pain and unable to resume any activity at all. If he tries to even sit for a while he gets very short of breath. The ortho is stunned at what is going on unless his lung has a hole in it even a tiny hole that a microscope can only see. The clot is still also there.

Tomorrow morning we go to the family doctor for an exam and MRI. I am praying by this time tomorrow I will have an answer. I am so tired of seeing him in pain and hurting like he is. I do miss the help but I miss seeing his cheerful face and cutting up that gets on my nerves so bad. I guess I will appreciate that when he gets better. Right...

The boys are sick with this nasty cold. I think Braddy's is a sinus infection though. I know both babies have an ear infection. Their ears are draining. I have been using the drops for 5 days now but they aren't improving. I take all 3 to the ENT tomorrow too along with Braddy's speech appt. Will I ever breathe???

I am going to try and have some time catching up on everyone. I try to check in at least every other day although I dont post. I am thinking and praying for you and your LOS. Carla

Sep 10, 2008
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
It is so hard to see them so sick. I will pray that you have some success at the doctor and that they can help. I hope the other kids feel better soon. Hang in there....
Sep 10, 2008
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
Have you tried taking him to a pulmonologist? I'm really worried about that clot...
Sep 10, 2008
Mom (Danie) to Adam (9-4-03) & Nate (3-7-07) Nate was diagnosed with silent AR at 2 months old. He was on neocate, prevacid 30mg per day and couldn't start solids till he was almost 8 months old. He started cow's milk at 14 months and is currently off all meds!! So far so good :) PIC: Disney trip 2008. Nate didn't know Piglet was there, he didn't like the characters too much.
I agree with Donessa, I would definitely call a pulmo. I can't believe the dr's there send him home in the shape he is in!! Can you travel to another town to get some better treatment?

If the babies ears are draining, that is actually a good sign. Before Adam got his tubes, his ears wouldn't drain which in turn caused the pain, so draining is not necessarily a *bad* thing. He still gets an occasional ear infection which he needs the ab's for but the pain is very minimal.

I hope the dr's can figure out what is going on with dh, looking forward to an update later.

Sep 10, 2008
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Ugh, Carla. If anyone needs a freaking break ,it is YOU. I am thinking of you and praying that things improve for your family pronto.
Sep 10, 2008
Worry Wart mom to
27 mo. reformed "happy spitter"
34.8lbs , 37in tall(oct)
Diagnosed A/R at 6 wks
Zantac until 1yr then Prevacid
Med free since February 08
peanut & egg allergies...still
Zoo Boo Trick-or-Treating (pic).
Good luck tomorrow. I hope Michael feels better soon. I can only imagine what it's like when half your brood is sick. You must be going out of your mind. Hang in there!
Sep 10, 2008
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
Sorry yall are still struggling. Hugs!
Check with your
doctor first!