Posted By Posting
Sep 09, 2008
seamus mama
Seamus was diagnosed with Silent Reflux at 3 weeks. Now he is 14 months, on Prilosec and avoiding dairy,soy,egg. Still nursing. A lot !!!
Worried about Seamus not growing
Good evening. Its been bothering me for sometime. During his first three months Seamus was in the 50th percentile for height and weight. Since then he has been getting lower and lower on the charts in height. He is in the very bottom of the 5th percentile for height and average for weight. I wonder if the PPIs may be affecting the absorption of calcium,etc for healthy growth? Maybe all the lack of sleep hasn't given him the ability to grow? Maybe he is just a very short 14 month old and I am paranoid.It worries me that he has not grown AT ALL in the last several months. I know that I shouldnt compare him to others his age and I should be happy that he is gaining weight. The other little boys his age are already bullying him and knocking him down. He is SO sensitive and he just looks at me in confusion when it happens..I hope that he had a growth spurt soon.
Sep 09, 2008
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including,,, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
How tall is he? Maybe his growth will come later. If he is gaining in weight he should grow in height I think. We were talking to the GI about bone age testing. She said didn't need to do it to know that Meggy's bone age is delayed. When I read about bone age, my understanding is: As long as the growth plates do not close, if his bone age is delayed it just means he will grow that much longer after everyone else has passed that stage. So say his bone age is 10 months, that means he would grow for 4 more months than the other kids his age. Does that make sense. Not sure if it is helpful but I thought I would ask. U can always consult an endo. if you concerned. How many Months has it been since his height changed?
Sep 10, 2008
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
Seriously, please talk to your GI at Stanford about getting a sleep study done. They do them at nearby El Camino Hospital. With the sleep issues he has had and the growth concerns -- slow growth can definitely be related to insufficient sleep, we were just told after Lorenzo's study -- I would really put the question straight to them. Ask for it and ask why not if they don't feel it is warranted.

I have really been struggling with the whole acting as advocate in medical setting thing, and finally got it that I am a consumer at a business, and they need to either provide clear and complete answers to ALL of my questions, or they need to investigate to find those answers. That is their JOB! UGHH, I'm going to start I'll give you all the info I know and suggestions about how to approach it via email.....

Sep 10, 2008
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
PPI's inhibit the absorption of magnesium at least, though I'm not certain about calcuim.
Sep 10, 2008
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
Are you or his daddy short in stature? Genetics may be playing a role as well.
Sep 10, 2008
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
What does the ped say about his lack of height increase? Has he been following a curve at all? I just wanted to tell you that Rory was 86% for height at birth and is now around 16%, so a drop on the percentiles isn't necessarily bad, BUT she continually grows at each appt, and I think there is supposed to by a sychronicity with height and weight. I wouldn't worry too much (HA, I worry like crazy too!!!) but I would discuss your concern with the ped so that it is something to keep an eye on. How tall is he?
Sep 10, 2008
Pictured: G'mom w/3 kids. I'm mom to 1 angel Melissa (dec'd 11/92 - hypoplastic left-heart syn.)
2 healthy daughters (knock wood) Cory (16), Kim (11) & Eric (4) diagnosed with e.e. (scoped 8/08), GERD & severe food/seasonal allergies, asthma. Cried non-stop first 17 mths. of life Found out he is allergic to cow's milk, soy, eggs, and peanuts. Takes Prevacid, Neocate One Plus & Flovent.
Are you and your husband tall people? That will def. play into it. The other thing - since you are avoiding dairy/soy do you give him something like Neocate One or Eldercare? We have to give this to Eric and it's the only thing that keeps him growing. P.S. He isn't tall though because his dad & I aren't. Ellen
Sep 10, 2008
seamus mama
Seamus was diagnosed with Silent Reflux at 3 weeks. Now he is 14 months, on Prilosec and avoiding dairy,soy,egg. Still nursing. A lot !!!
Thanks for your input. Bone age testing sounds interesting. I wonder what it involves.. The pedi thinks that Seamus will grow taller at some point..He is not really worried at all. Seamus has been gaining less weight than earlier months but it makes sense because he is sooo active, crawling and walking everywhere. As far as our GI is concerned his waking up every 2 hours isnt a big deal. When we tried CIO a few months ago we did reach a point where he only woke up twice in the night and cried for just a few minutes, SO the GI is pretty sure that his nightwaking is habitual. It was really deranging for me to do CIO. We are going to try something else. I also want to introduce dairy and see how it affects him. We have cut his meds in half. The GI wants to try cutting them out entirely to see if he even needs them right now. He has hardly shown any reflux. Last night he woke up after lip smacking and a big swallow( he has silent reflux) He may be getting a tooth or two right now because he has been gnawing on his fingers and drooling more. The extra saliva could have caused a little bit of reflux. Im going to call the GI today to discuss this stuff. The kid is sooo tired all the time and he refuses to take a nap unless he is totally worn out. I am pretty worn out too and it annoys me how the Pedi and GI think its no big deal. I guess they have seen worse. They have seen babies failing to thrive and barfing their brains out, so when I complain about my silent refluxer not growing taller they must think I am a freak!
Sep 10, 2008
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Hi there. I am so sorry to hear you are so worried. I can imagine how upset this is making you.

I just wanted to jump in and say that it is probably not the PPIs. I think that takes several years. Sebastian has been on a PPI since January and he is very tall for his age (nearly 32 inches). He also doesn't sleep! There are some studies about the PPIs, and I am pretty sure they are all more long term.

What kinds of kids are bullying him???? Sebastian crashes around other kids like a bull in a china shop, and I think it is just because he is 11 months old. I don't think little kids this age can bully yet, so try not to worry!!! Sebastian also looks confused and comes to me when things don't go his way. Our friend brought her 14-month old, 16-pound preemie daughter over yesterday, and she snatched Sebastian's book away...and he sat down and cried! (It was actually really funny because he weighs 10 pounds more than her and she stuck it to him). I think babies this age are kind of like dogs- they don't really process the kids may be bigger than them - they just know they are kids.

Has your doctor expressed any concerns about his growth?

Sep 10, 2008
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
I can't add much to what's been said, except Jasmine also went from the 50% in weight to bottom 5% (presently still is) She also had a major height growth spurt at 16 months, which brought her up the curve in height. Hopefully he's due for one too!

It's also a bit more difficult for them to gain weight when they are so restricted with food choices. I hope you get some good medical support.

Sep 10, 2008
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
sorry your are having to go through all these worries. i have nothing to add. Good to hear from you.
Check with your
doctor first!