Posted By Posting
Sep 09, 2008
maielise
Newbie Here, looking for some seasoned advice
Good Evening ladies! Let me just start out by saying I am so grateful that I have found you! I have been a member for a few days now and have been meaning to post and introduce myself, what can I say things get crazy here on the homestead between school, choir, scouts, I am sure I do not need to go into detail i'm sure you can relate. My name is Gaby and I have 2 beautiful children Elise 8 and Julian 5. We are currently living in Dallas originally from Chicago. My son was recently diagnosed with GERD he was diagnosed by his allergist. We are getting ready to go meet with a GI to evaluate the extent of his damage. His allergist and myself have come to the conclusion that he has suffered in silence for some years now. We have gone threw ear infections, partial pneumonia, croup, asthma, constant vomiting, barking cough, excessive mucus and the list goes on. In the early stages we thought he had some sort of chocolate allergy because every time he had it he would get sick, so then we cut it out and he still continued with the symptoms. So currently I am journaling what he eats to see what exactly is a trigger and I am starting to suspect cow milk. Julian is on prevacid 15mg twice daily and he has been on it for about 10 days now and it does not seem to be making much of a difference. He is still complaining of tummy aches and he still barking and he says he has a funny taste in his mouth which honestly I can smell it smells like hunger breath like when you have an empty stomach. I was just wondering if you ladies can share some success stories with the meds how long before we can see an improvement. Also is there any sort of tricks that help alleviate the symptoms. We currently have his bed elevated and we are constantly on the brat diet & I am sending his lunch to school which usually consist of PB and toast, apple slices & banana with almonds and apple juice and sometimes rice & almond crackers. Any insight will be greatly appreciated! Thanks!
Sep 09, 2008
daniejo
Mom (Danie) to Adam (9-4-03) & Nate (3-7-07) Nate was diagnosed with silent AR at 2 months old. He was on neocate, prevacid 30mg per day and couldn't start solids till he was almost 8 months old. He started cow's milk at 14 months and is currently off all meds!! So far so good :) PIC: Disney trip 2008. Nate didn't know Piglet was there, he didn't like the characters too much.
Hi, and welcome. I can tell you what worked and didn't work for us. I made sure to give the prevacid on an empty stomach. It was hard to do so with an infant but I made sure he didn't eat at least 2 hours before giving it...and waited about a half hour before letting him eat.

Honestly, anything to do with apples made Nate's silent AR so much worse...too acidic for him. Elevating his bed definitely helped him at night. Now that I think about it, bananas would irritate him a little too...he would actually vomit after eating them and he was not even a puker.

I know all kids are different, but I just wanted to share our story. You will get lot's of advice here. Oh...one more thing...it took about 2 weeks for the prevacid to "kick in" for Nate. Hope that helps :)

Sep 09, 2008
mom2halleyann
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
Hi and welcome! I'm in Dallas as well. I'm glad that you found us and hope that everyone can be as great a resource for you as they have been for me.

My dd was on Prevacid and we found it took 3 1/2 weeks before we saw any relief. Once it kicked in, though, it was a miracle drug for her. It seems it takes anywhere from 2 to 6 weeks to become effective, so although it's hard, it's going to take some patience. I'm not sure if your doctor told you, but it should be taken on an empty stomach 30 minutes before a meal. You may be able to use Mylanta to help him with breakthrough pain until the Prevacid kicks in, but take care not to give it within a few hours of the Prevacid or it will render the solutabs ineffective. Hope he starts feeling better soon!

Sep 09, 2008
mom2halleyann
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
I agree with Danie - apples can be tough on the system. Here is the FDA ph website. Anything with low numbers is more acidic, so I'd try to stick to the higher numbered foods until he starts feeling better. Pears may be a good substitute for the apples.
Sep 09, 2008
mom2halleyann
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
Oops, I'm sleep deprived. Here is the website

http://www.cfsan.fda.gov/~comm/lacf-phs.html

Sep 09, 2008
engin117
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including engi.nowaira.net, engi@nowaira.net, Engi@nowaira.us, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
LOL on the sleep deprived, I know how that is. Apples and carrots set Meggy off. Also she never had any relief until we took away cow's milk. We also elevated her bed.
Sep 09, 2008
rissaroo
Picture: This is what happens when you raise a kid on health food and they get ahold of a Coke! Bad mom, that soda is NOT on the reflux diet.
UPDATE: Isaiah is now 12 and off meds! He is doing great, eating again and hopefully will be catching up in the growing department. I am still in the "hoping it sticks" phase, but we're so happy that he's better!
I don't have much time now, but I have an 11 yr old with similar issues! The Prevacid took over 3 weeks to work for him, so don't give up yet. Hopefully it won't take that long for your son, but it *can* take quite a long time. Hang in there...it takes awhile but you'll get it worked out!
Sep 09, 2008
maielise
Thank you for the speedy response and the reassurance. We had a few good weeks during the summer without any flare ups but as soon as school started it was the end of our quiet nights. For the last 2 weeks it has been an every night event at least I can say he has not lost his stomach in about a week now so that is some improvement.

His doctor has him taking the med with food which i didn't understand I am going to give it to him on an empty stomach see how that makes a difference, this was the same doctor who told me to give him the apples? At least she was wise enough to refer me to a GI.

My son was diagnosed just as we were getting ready to move here from San Diego where we lived for 2 years. So the Dr. in SD had prescribed the Prevacid but we did not fill it there because our insurance there denied it and it is exp.

We have lived here in Dallas now for 6 weeks and week 3 is when we started to have symptoms again things got really bad, really fast. Thankfully our new ins. approved the meds.

I was giving it to him just before breakfast and just before dinner. I have enlisted the dh to give it to him in am when he leaves for work. I can remember his allergist in SD telling me to give it to him on empty stomach, but when this doc here said with food I figured maybe I was wrong.

Donnessa, where do you take your little princess for her GI? We are affiliated with Medical City Children Hospital.

Well thanks for the help ladies, I am off to bed for now I have an early day tomorrow and last night was a bad night, for now he seems to be sleeping sound(crossing fingers), but he was coughing for about 2 hours straight.

G'night
Sep 10, 2008
drockers13
dana rinaldi
I AM ALSO NEW HERE AND NEED ADVICE
MY SON WAS DIAGNOSED W SILENT AR. HE WENT THROUGH THE PH PROBE TEST AND PUT ON ZANTAC AND ON ALIMENTUM FORMULA. HE WAS DOING GREAT FOR 3 1/2 WEEKS AND THEN HIS SYMPTOMS GOT ALOT WORST. HE STARTED TO GAG AND CHOKE ALL OF THE SUDDEN AND NOT JUST AFTER FEEDING, HE WAS IRRITABLE WOULDNT TAKE NAPS SO IT WAS BACK TO THE DOCTOR. HE SENT HIM FOR AN UPPER GI AND PUT HIM ON A SLEEP MONITOR EVEN THOUGH HE DIDNT HAVE SLLEP APNEA AND HE UPPED THE DOSE OF ZANTAC WHICH DIDNT HELP. THE UPPER GI SHOWED HIM REFLUXING BUT EVERYTHING ELSE LOOKED FINE. I PUT HIM ON RICE CEREAL 4 TEASPOONS IN A 4OZ BOTTLE EVERY FEEDING AND NOW IT SEEMS HE SPITS UP MORE AND ITS MIXED WITH MUCOUS HE HAS A VERY HARD TIME GOING NUMBER TWO. I HAD ASK FOR A REFERRAL TO A GI SPECIALIST SO IM GOING TO GET ANOTHER OPINION. BUT I WAS JUST WONDERING IF ANYONE HAS A SIMILAR EXPERIENCE AND IF ITS NORMAL FOR HIS CONDITION TO GET WORSE LIKE THIS. HES ALSO CONGESTED AND IM ALWAYS ASPIRATING HIS NOSE AND STEAMING UP MY BATHROOM. MY POOR SON CANT EVEN LAY FLAT FOR A MINUTE BECAUSE HE GETS MORE CONGESTED ALWAYS NEEDS TO BE ELEVATED. PLEASE HELP
Sep 10, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
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I have an Elyse too. :) Talk to your pharmacist about the timing of the med if you want a 2nd opinion. Also, if the pharmacy gives you info on the drug, read that. We were told to give it on an empty tummy 30 minutes before eating, but i think adults are supposed to take it one hour before, so you might want to ask about it specifically for a 5 yr old.

I was also going to say that i have a friend with a 2 year old who has had chronic asthma and pnemonia....she took him to an allergist a few weeks ago and was told it was probably milk-related. She took him off milk and he is doing great!

Have you done any research on a diet for refluxers? no acidic foods, no onion, chocolate, caffeine, some spices are hard too.

Sep 10, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
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Dana, check out the Tucker sling for elevation (advertised here); I would not have survived without it. She slept in it, and if I needed to lay her down for a minute I put her in it too. I also elevated her changing area because she could NOT be flat. Elyse also choked, gagged, and turned blue and the only drug that helped with that was prevacid solutabs...ask about that. A lot of pedis won't prescribe it but a GI will.

Rice cereal is very constipating. Try oatmeal instead for a thickener, or ask about one of the thickeners like simply thick (I have no experience with it). Thickenign did not work for us either. His tummy is so young for cereal, IMO.

Ask about an elemental formula when you go to the GI....neocate or elecare. it may help him, or try nutramigen which is over the counter (I think alimentum is milk based). Also mucous can be normal in spit up....if he is congested it is probably draining into his tummy and coming back up, which could contribute to the spit up. Also, if he has problems with milk, that can cause the congestion.

Sep 10, 2008
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
Until you get to your GI doc I would follow the reflux and no dairy diet. That is what got us through to the appt. If it is dairy related the prevacid is not going to do the whole job. Good luck!

Sep 10, 2008
maiam
maia m - GERD. Nissen Fundoplication w/hiatal hernia repair.
Mom to
Son (10) GERD(aspiration pneumonias, apnea, tracheomalacia), Food allergy, Asthma
Daughter (6) GERD, Heart Murmur, Food Allergy, Asthma, Mold allergy
Welcome! I have an 8 1/2 year old and a 4 1/2 year old, both with significant GERD (and me too!). I hope you find a good GI to work with. We did scopes (endoscopy) to see how much damage had been done, and to rule out more serious conditions (if reflux does not respond to meds, there are other conditions like EE that could be present.) It can take a couple of weeks for the Prevacid to work fully, and yes, it is vital that you take it 30-60min before a meal. Best wishes.
Sep 10, 2008
mom2halleyann
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
Hi Gaby, we did not like our GI AT ALL so I can't recommend him (I'd be happy to provide his name via email dmyers5375@yahoo.com). There is another pedi GI in the same practice named Annette Whitney that I have heard good things about (Jenn, screen name mommyto2 uses her). Hopefully you'll see some relief soon.
Sep 10, 2008
mommyto2
BRANDON-Zantac and Bethanacol; Neocate formula, 2 sets of ear tubes, Adnoids removed, Vasomotor Rhinits, Asthma. Currently on: Xyzal, Omnaris, Flovent and Xopenex,
AUBREY-Zegerid 2x a day, Soy Milk, Tubes put in and adnoids removed (11-7), Hypotonia, ECI therapy for low muscle tone throughout trunk and hips, oral motor issues and sensory integration issues, delayed speech, Teething, probiotics
PICTURE: Aubrey in her cute cat outfit. If you look you can see how her right foot turns in. She walks that way as well. It is not as exaggerated in the morning's but gets worse in the evenings. This was after her nap.
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Hello and welcome! I have nothing more to add, but I too live the the Dallas/Fort Worth area. My kids both saw Dr Whitney at a Children's Hosp in Dallas. I have not used the other dr's in her practice but I do LOVE her. I hope you can get an appt soon!!!! Jennifer

I do ditto the apples and banana's thing. Neither of my kids tolerated apples or bananas. My ds has grown out of his reflux and my dd still has it. We just watch for trigger foods like tomato, apples (on occasion), bananas(on occasion) etc. Good Luck!

Sep 10, 2008
blueleopard
Pictured: G'mom w/3 kids. I'm mom to 1 angel Melissa (dec'd 11/92 - hypoplastic left-heart syn.)
2 healthy daughters (knock wood) Cory (16), Kim (11) & Eric (4) diagnosed with e.e. (scoped 8/08), GERD & severe food/seasonal allergies, asthma. Cried non-stop first 17 mths. of life Found out he is allergic to cow's milk, soy, eggs, and peanuts. Takes Prevacid, Neocate One Plus & Flovent.
Has he had any of the following tests to look for milk allergy (skin scratch, CAP-RAST, or patch test (to look for delayed reactions)? Of course, the best thing to remember is that reactions trump results - in other words, no matter what the result of the test, if he reacts in some way, that food is a problem. My son's problems turned out to be mostly allergy related. Sounds like you may be on the right track. Good Luck - keep us posted. Ellen
Sep 10, 2008
blueleopard
Pictured: G'mom w/3 kids. I'm mom to 1 angel Melissa (dec'd 11/92 - hypoplastic left-heart syn.)
2 healthy daughters (knock wood) Cory (16), Kim (11) & Eric (4) diagnosed with e.e. (scoped 8/08), GERD & severe food/seasonal allergies, asthma. Cried non-stop first 17 mths. of life Found out he is allergic to cow's milk, soy, eggs, and peanuts. Takes Prevacid, Neocate One Plus & Flovent.
P.S. If no one mentioned it - watch that Prevacid - some versions contain dairy (the type that desolves - may be cherry flavored). El
Sep 10, 2008
mollybeth
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
Welcome. I don't have much to add either. But we live in Tx and Cooper goes to Cooks in Ft Worth. I hope you can get something figured out soon. Glad you found us.
Check with your
doctor first!