Posted By Posting
Sep 07, 2008
Mom to Peter - 10 months old with reflux on prevacid and dairy allergy
2 silly questions
Here's my first silly question that I can't ask other non GERD moms - What do you do when your kid can crawl and stand up and you have him in an inclined bed? The incline has really helped my son, but now he sits up in his sleep, rolls all over the place and crashes to the bottom of the bed waking him up! Additionally, we want to work on some sleep issues, but I don't feel I can leave him in his bed because he'll hit his head if he gets upset and tries to stand up. This morning he was crawling up the incline! Any ideas? (I don't think he'd tolerate the tucker sling, we have screaming episodes when he gets strapped into the carseat :)

Second, I want to try giving my son some formula (he's only ever had breast milk). I know nothing about formula and don't want to give him something that will upset his reflux. Any affordable ideas? Advice for where to start and when to try something else?

Thanks! I've very much appreciated the responses of the people on this board to my past questions! This is such a great place to go when you just have no where else to turn. Thanks everyone.

Sep 07, 2008
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
We gradually decreased the decline, though Allie was always a roller, we didn't do much. We also got the go ahead from the ped to place her on her left side, which worked well for us.

As for formula, we ran the gamut. If your son's not MSPI or MPI, I'd try Good Start, which is what Allie's on now with no problems (we did Enfamil Lipil, Similac Sensitive, Isomil Advance, Gentlease, Alimentum, Neocate, and Nutramigen off the top of my head)

Unless there's big problems with the formula, like projectile vomiting that doesn't stop or major diarrhea that doesn't stop after a few days, our MD's asked us to give it a few weeks before changing. On that note, it's also good if you can transition slowly - maybe an ounce or 2 of formula in the breastmilk for the first few bottles and increase over a few days until the formula is all that's in the bottle. HTH

Sep 07, 2008
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
Sadly, once my dd graduated from the tucker sling, we had to give up the elevation. Once they start moving around it is near impossible to keep them from rolling to the bottom or climbing up, even with the u-shape blankie roll under the sheet. We had to go cold turkey to flat sleeping, but it worked out okay once we put a bumper in the crib. When she was in the sling she was confined, and she did NOT like having all that wiggle room at first, and would stick her arms and legs out thru the bars and cry! Also, when he starts pulling up it isn't a good idea to have the mattress elevated would make it too easy for him to "fall overboard"! Some moms have tried putting a firm pillow under the sheet so they have a little elevation...I was too paranoid to try it, and Elyse would never have stayed on it anyway. :)
Sep 07, 2008
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Sebastian had this trouble, too! He was an early sitter (four months without support) and crawler, so the elevation was a disaster. I finally just took it away all together because he was using the incline to go from laying on his back to a sitting position ALL THE TIME (I equated this with Dracula rising out of a coffin if you'd like a visual). I was shocked, but he actually did ok (we took the incline away at about 8 months). He, too, crashed his head into the bars constantly, so I finally just put the bumper back in even though they say to leave it out once your kid is pulling up. It's soooooooo much better for us this way. He needs the cushioning!

We also sleep trained at this point, and definitely did look like a bull in a china shop for a while...but he never injured himself in the crib (now, once he started walking on the hardwoods is another story).

I'm sorry, but I don't have any formula advice since my son reacted to everything but Neocate. But I know the other moms will be of great help to you. Good luck!

Sep 07, 2008
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
we use a memory foam pillow under her crib sheet, 9 times out of ten she sleeps on it. If it were me i would try hypoallergenic first to see how the formula is tolerated then maybe go down to a gentelease formula (low lactose), or even good start. There is an AR formula if he spits up a lot. Milk proteins and lactose are known to upset reflux, some refluxers do just fine on regular milk formulas. Soy formulas can be a good option sometimes too, but i beleive i read some where that a good percentage of babies that have AR are milk intolerant and a large percentage of those babies are also soy intolerant. I would talk it over with your pedi and see what he/she recommends.
Sep 07, 2008
Mom to Peter - 10 months old with reflux on prevacid and dairy allergy
Thanks for all the feedback! I'm going to just flatten out my sons bed tonight! I couldn't believe it when he sat up in his sleep last night. Hopefully he'll do just great :). We'll see about the sleep training. We're still having some reflux issues, so we're going to take it slow.

Thanks for the advice on formula too. I'll make it a slow transition and talk to his pediatrician. Thankfully I have some frozen breastmilk so I wont half to give him a full bottle of it for a while.

Sep 07, 2008
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
Hey there. Coyle only slept on an incline on me or in a glider up until 4 mo. old when he was able to roll over. At that point he laid down in his crib, flat, and has tummy slept ever since. So, i can't help you on that end. If he can roll both ways and ends up sleeping sideways, on his back, or on his tummy just leave him how he is because he must be comfortable that way, kwim... formula. alimentum has been our choice up until last week. he reacted badly to everything else. i'd start with hypo and stick with it until you intro milk. it is expensive, but if you mix it with breastmilk for awhile you've only 4 more months until milk anyway..

as far as sleep training, i've had great luck with my refluxer. we had a bad week last week but we're back on our sleeping thru the night (11 hrs) and two solid naps a day. ask some questions and maybe people can give some advice. we'd love to help.
Sep 08, 2008
baby quinn's mommy
Mom to a 3 year old baby girl with severe reflux: g-tube, nissen fundoplication. dx: RAD, failure to thrive, DGE, epilepsy, sleep apnea, paraesohphogeal hernia, high lactic acid there's more "unknown disease"... Hospitalized 12 times, PT graduate! ST graduate! OT graduate! Current Meds: singulair, zopeonex, pulmicort, reglan, Keppra, Trileptal, vitamin B6, Veramyst. Current weight: 34 lb. Current height: 39". g-tube dependent, oxygen 1-2LpM all day and night PIC: Ms. Quinn
I just decided to take the incline out after much, much trouble trying to keep her inclined. She would roll to the end of the bed and didn't have the strength to get out of the position she was in. It was a little dangerous because she would have her neck all in the corner of the bed with her feet up the incline. We didn't have a choice anymore. I kept it at a very very slight incline (Maybe 1/2-2 inches) but it didn't do much.
Sep 08, 2008
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
Hi! I always had Maggie just slightly elevated and she did fine. She's actually still elevated bc we've been too lazy to put the bolt and thingy down.

As for formula, I agree with slimfast....I'd try goodstart first. It's a good broken down formula, but not for mspi babies. Hopefully you won't have to switch many times to find one that works. Isomil advance worked for Mags.

Check with your
doctor first!