Posted By Posting
Sep 06, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Why are people so cruel?
Sep 06, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Wait. I forgot to finish. But I know the answer to this - because they are idiots. I read an article in the Baltimore Sun that told people whose kids who go to peanut-free schools to pack almond butter and cashew nut butter instead. I got sort of fired up because that is moronic (most kids who are allergic to one have to avoid them all!). I wrote a letter to the editor and then posted this on the article's web page:

As a journalist myself (I actually wrote a story that appeared on the front page of your section in 2001), I am appalled by Karen Nitkin's irresponsible reporting shown in her "tips."

Ms Nitkin included "No peanuts allowed at your school? Try almond or cashew butters, Pierre says." You probably already know that peanut allergies are one of the most life threatening allergies out there today (my son has one). However, tree nuts allergies are RIGHT behind - thus bringing me to my point. Many children who have peanut allergies are also equally allergic to treenuts (like my son). However, most children who do NOT have treenut allergies but who are allergic to peanuts must still avoid all treenuts because there is an inordinate amount of cross contamination among nuts. It is quite likely that peanut butter contains traces of almond, cashew, and other nuts, and vice versa.

In an age where food allergies are becoming alarmingly common (and more severe), we do not need to encourage parents to find loopholes in school rules that are meant to keep other children safe. Could Nitkin not have mentioned one of the safer (and widely advertised) alternatives, such as soy nut butter and sunflower butter? Or at the very least, could she have offered almond and cashew butters as tasty alternatives to be in indulged in at home?

I understand that Ms. Nitkin was just quoting a dietician, but regardless - she should have had better judgment. I know that if my name is going to be on an article, I do my homework and consider my audience before sending it off to print.

Thanks for your time.

And these are some of the responses I and one othermom got:

1. "Get a grip. If your kids don't steal my kid's lunch, they won't have a problem. "

And this is the one that has me reall upset:

2. "Try to imagine I don't really care. You freaks of nature are not going to tell me what to do. "

I know that pretty much anyone (provided the right conditions, but you know what I mean) can be a parent, so obviously there are going to be a lot of idiots raising kids. But this is awful. How can anyone be so mean? My kid is NOT a freak of nature. I know I have to prepare Sebastian because he is going to hear stuff like this throughout his life, but seriously, WTH? I hate when people say they shouldn't have to deny their kids things because a foos allergic kid has special needs, but that is a hell of a lot better than being so evil.

Sigh.

Sep 06, 2008
katiesmommy
Tracey, mom to Katie. Diagnosed with reflux at 3 weeks and put on Zantac. At 8 months old she was removed from Zantac as it was giving her migraines, currently on Prevacid. Switched to Elecare since she is not gaining weight; trialing solids after being off for a month. Geneticist said reason she isn't gaining weight is she is stubborn. Upcoming appts.: Neurologist for developmental delay and EGD scheduled for September. She is one funny baby!

Don't hate me: I would be one of those people who would find almond butter not understanding that there is cross contamination. Dh, myself and most likely Katie do have food allergies but nothing like Sebastian so I couldn't begin to understand the severity of his allergies and I can't begin to comprehend how ever food product that enters your home has something in it that can do him harm.

Now for the post about being freaks I do believe that you get back what you put out. I am sure that Katie Holmes had the WORST CASE of postpardum in the history of the world after his comment to Brooke Shields since he later apologized to her. Whoever posted that to you will most likely have some family member who has to live in a bubble since they are so suspectable (sp?). People are cruel and heartless. Sorry that you were attacked!!!!!!

Sep 06, 2008
engin117
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including engi.nowaira.net, engi@nowaira.net, Engi@nowaira.us, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
Thank you for standing up for all of our children. This is amazing. I am glad you know that you were chosen to be Sebastian's mother for a reason, not any one else. I do believe that we are chosen for the children we bear because we are able to take care of them in ways no one else could. So for the comment about the freaks of this world, just know they only say that because they have never walked in your shoes. It is no excuse but they can't know what it is like to be you. It is just way to easy to judge what you do not know.
Sep 06, 2008
mom2coy
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
I'm sorry that you were responded to in this manner. It is unbelievable the way people will "speak" to each other in cyberspace. I've read many responses on yahoo and other forums where posters (anon, of course) have completely flipped on the original poster.. calling names, etc. etc. Your post was well written and informative; those people are not cruel Melissa, they are probably just uneducated and bored.

Especially the person who wrote the response regarding stealing his kid's lunch. That person probably feels his child can bring a gun into school as well...
Sep 06, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
I'm Sorry...
that people are soo heartless and cruel.

There is NO excuse for that behavior.

The only thing I can say is IF they walked a day in YOUR shoes they would be singing a different tune.

Sep 06, 2008
kmom
Worry Wart mom to
27 mo. reformed "happy spitter"
34.8lbs , 37in tall(oct)
Diagnosed A/R at 6 wks
Zantac until 1yr then Prevacid
Med free since February 08
peanut & egg allergies...still
Zoo Boo Trick-or-Treating (pic).
This happens so often in the internet world that I avoid going to chat rooms, etc. I think some people just love hiding behind their computers and spewing hurtful, mean things. What happened to if you don't have anything nice to say, don't say anything?

Really, was "freaks of nature" truly necessary? It makes the people who post garbage like that look like idiots. I guess they get their due by coming off as stupid. It makes me feel lucky that I am intelligent enough to recognize brainlessness when I see it.

I think it is a good thing that you are trying to educate people. More power to you. Most people don't know anything about food allergies. That will all change with the rising rates of food allergies in the population. One day that neandertal who blasted you will feel like the moronic blowhard that he/she really is.

Probably the people who posted are the author's mom and dad, lol.
Sep 06, 2008
ethan's mom
Meridith, mom to Ethan born 4/23/08. Ethan was diagnosed with reflux at about 1 month. He has been on Zantac (unsuccessful) and Prevacid. He is currently taking 7.5 mg of Prevacid 2x per day, with good results. We also suspect MPI, though this hasn't been confirmed by a doctor yet.
Ethan is mostly breastfed, though we are doing one bottle of soy formula each day. We also do some homeade "solids' including, so far pears, avocado, sweet potato, and peaches.
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I too would have been one of the parents who sent almond butter to school with their kiddo, if I hadn't read your post. Thank you for at least trying to get the message out there.
It really is too bad that people who have it easy with their children don't realize that not everyone can just do what they want to in terms of parenting.
At any rate thanks for posting this on here, so that I can spread the words amongst my friends who have school age children and are encountering this sort of thing.
Sep 06, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
I actually just intended to spread the word with my post to the editor - I wouldn't have known about the contamination issue before Sebastian if I didn't have a six-year-old niece with food allergies (milk, eggs, sesame, coconut, treenuts, peanuts, fish, shellfish). My sister had to learn so much...this was back in the days before it was mandated that allergens be clearly listed on product labels (honestly, they have come so far in a few short years...still a ways to go, but I have it soooo much easier than my sister did). My sister knew NO ONE (Outside of our incredibly allergic family...all of Sebastian's cousins now have food allergies) to turn to for help when Bryn was a baby. It just wasn't common yet.

I also wanted to remind the journalist that it is her job to think about things like this before she addresses tens of thousands of people! I got burned for not looking at the whole spectrum when I just started out, and I LEARNED QUICKLY. There is a lot of power in the hands of the media, and this writer, while obviously trying to do something good, did something careless when she could have enlightened thousands and thousands of people.

I know not to let morons on the internet get me upset, and I never do until it comes to Sebastian. I just am so protective of him - obviously because he is my son, but also because he needs some special attention. I am proud, though, that I used my full name on my post! I am guessing that deterred additional idiotic comments.

Cheers~

Sep 06, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
I actually just intended to spread the word with my post to the editor - I wouldn't have known about the contamination issue before Sebastian if I didn't have a six-year-old niece with food allergies (milk, eggs, sesame, coconut, treenuts, peanuts, fish, shellfish). My sister had to learn so much...this was back in the days before it was mandated that allergens be clearly listed on product labels (honestly, they have come so far in a few short years...still a ways to go, but I have it soooo much easier than my sister did). My sister knew NO ONE (Outside of our incredibly allergic family...all of Sebastian's cousins now have food allergies) to turn to for help when Bryn was a baby. It just wasn't common yet.

I also wanted to remind the journalist that it is her job to think about things like this before she addresses tens of thousands of people! I got burned for not looking at the whole spectrum when I just started out, and I LEARNED QUICKLY. There is a lot of power in the hands of the media, and this writer, while obviously trying to do something good, did something careless when she could have enlightened thousands and thousands of people.

I know not to let morons on the internet get me upset, and I never do until it comes to Sebastian. I just am so protective of him - obviously because he is my son, but also because he needs some special attention. I am proud, though, that I used my full name on my post! I am guessing that deterred additional idiotic comments.

Cheers~

Sep 07, 2008
molson1525
Mary & Nicholas 7-17-03 (non-refluxer)allergies, asthma on Singulair and Flovent & Aidan 1-28-07(my refluxer)Nissen Fundoplication on June 20, 2008, FTT, MSPI, DGE, ear tubes, allergies and severe GERD now currently taking just Prevacid and drinking Elecare Vanilla 1+.
My best friend was telling me a story about her first PTA meeting of the year where they were discussing what food to have catered for some event that year. The lady in charge suggested pizza and someone reminded her of dairy allergies and so she said well we can have Chick-fil-a. Nobodies allergic to chicken. My friend just laughed because her daughter has allergies too. Because not only are people allergic to chicken chick-fil-a cooks their chicken in peanut oil. Hello peanut hazard. Some people just don't get it. The comment that annoyed me the most was the one about not letting your child eat their childs lunch. It isn't about sharing what is in the lunchbox but some children are so allergic even sitting next to some one eating a peanut sandwich could set off a reaction. And that child not washing his hands and then touching a toy that your child will touch next. Some people are just ignorant.
Sep 07, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
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VERY well written. I too stay away from most message boards due to the way people treat ppl who can't see them. I was so excited to find pager bc the tone here is very supportive.
Sep 07, 2008
lauren'smom
Jennifer - 1st time mom. Lauren (6/1/07) diagnosed 9/07 with GER at 3 1/2 months. Prevacid 7.5 mg in the am. Currently drinking whole milk and eating great!!
No longer aspirating! Yippee!
Picture: Why would Lauren play with the hundreds of dollars worth of toys scattered in my living room?!?! When she could play in a box! Estimated move date: Oct. 3rd!
Like it was said before, people are idiots. What you said is very true and as a responsible journalist she didn't do her job.

As a school teacher, I deal with this on a face to face level ALL THE TIME. This year I have one student with Celiac's and another with a severe allergy to all tree nuts and fish. Some people get it, other's don't. Our DIRECTOR of food services for our district doesn't get it! My student with the allergy to fish can even have an allergic reaction to the smell of fish, yet she still puts fish sticks on the lunch menu. We haven't had nuts in our school in years, but now we have to start the fight all over again with fish. Room Mom's at parties are often equally as ignorant.

Good for you for trying to educate the general public!

Check with your
doctor first!