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Sep 06, 2008
engin117
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including engi.nowaira.net, engi@nowaira.net, Engi@nowaira.us, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
Diet for soy, dairy, corn intolerance
Hey everyone. I was reading through your stories and realized a lot of you have to avoid these things as well. What are some of the things you offer your children to avoid the above. We try to avoid High Fructose Corn Syrup ( is super hard for our bodies-we are not able to break it down) and we are also trying to avoid hydrogenated or partially hydrogenated oils. Meggy's dad had Cholesterol over 300 so we are trying to make sure we don't set her up for problems in that area since she is predisposed genetically. Not sure what is left to give her. When I look up alternative names for dairy, corn, and soy, it seems to be in everything.
Sep 06, 2008
maiam
maia m - GERD. Nissen Fundoplication w/hiatal hernia repair.
Mom to
Son (10) GERD(aspiration pneumonias, apnea, tracheomalacia), Food allergy, Asthma
Daughter (6) GERD, Heart Murmur, Food Allergy, Asthma, Mold allergy
Have you checked out apfed for info on eos disorders? Or kidswithfoodallergies.org? There are tons of people there avoiding those foods and then some!
Sep 06, 2008
mollybeth
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
HFCS is good for us now! Haven't you seen the commercials!? Just kidding, those new commercials by the corn refiners association infuriate me. It is chemically altered corn product that is not good for our children! Wow, can you tell it hit a nerve. LOL. Luckily Cooper is younger and has yet to realize all the things he isn't getting, but seeing as I don't eat any of these things due to nursing, I feel your pain. We cook a lot and try to but organic as much as possible b/c those products are usually sweetened w/ evaporated cane juice (organic, not refined sugar) or fruits. I live in a very small community and the closest Whole Foods is 3 hrs away, but every time we go to Cooper's drs we stock up. In the local stores we shop for anything labeled "natural". Lays has some yummy chips that are natural, good for snacking when I'm craving junk. If you shop in the gluten free section, you will find a lot of those products are also allergy friendly. I would suggest the cook and freeze method, that's what we try to do. That way we always have a snack. I made Cooper some yummy rice pancakes this week, and it makes a great snack. You can sweeten them w/ apple sauce and cut them up for a finger food. Does your lo eat Gluten/wheat? My biggest suggestion would be eat/cook at home as much as possible and make things that are quick and portable. That way you know exactly what your getting.
Sep 06, 2008
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
I have just about given up on the regular grocery store. Whole foods have great snacks without all the yucky presevatives and high fructose corn syrup.

I am such a dope - I have been giving Katie Italiano bread from the regular grocery store because it is the only one with no milk. Just realized today it has high fructose corn syrup - Ugh.

she eats lots of fresh fruit and protein.

Sep 06, 2008
engin117
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including engi.nowaira.net, engi@nowaira.net, Engi@nowaira.us, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
Thank you, I will have to find a good whole foods market close to us. I am glad u shared. I guess that is the trick to forget wal-mart, target, publix, kroger, where I spend hours just trying to find one thing she can eat other than fruits, veges., meats. We have not tried gluten free. The celiac test said she doesn't currently show to have it but could develop it in the future. I will take all the tips I can get. U guys are great.
Sep 06, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Sigh. I feel your pain. This is so, so hard. I was in the grocery store looking for snacks I could eat around Sebastian, and I left with a jar of applesauce, some Utz chips (the plain ones), and lots of fruits and veggies. I couldn't find one thing in the ENTIRE cookie and cracker isles, nor in the cereal isle. NOTHING. I am not avoiding corn, so that helps us a bit, but it is pretty hard to find processed foods that don't contain an of your three listed. I don't eat much of it at all (never have), but come on - I DO eat bread and crackers and ice cream and cereal like everyone else...but they don't make it easy on allergy moms. And the allergen-free foods for us are often a joke (except for a few lines, like Enjoy Life!). SO many are processed on shared lines. We can't even use cooking spray anymore because I cannot find ANY that don't have soy in them!

www.kidswithfoodallergies had a lot of recipes ($25 a year to access the database and the rest of the site...totally worth it, IMHO). Mollybeth and kubicki are right, too - it seems so much easier to just make your own stuff or to avoid the regular grocery store.

I'll start thinking about recipes...

Sep 06, 2008
mollybeth
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
Enjoy life is one of my favorite brands. We love the snickerdoodle cookies, and all the other things we have had are good too. You can order that on line.
Sep 07, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
Photobucket
Check out http://www.brothersallnatural.com/index_default.htm and the healthy times website, they may be helpful. We have used these products with success. There is a baking line of products too that we used for Elyse's birthday cake....i will try to remember it
Sep 07, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
Photobucket
The baking line is cherrybrook....and I see you still haven't been able to get your pic to work! Darn!
Sep 07, 2008
engin117
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including engi.nowaira.net, engi@nowaira.net, Engi@nowaira.us, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
LOL, yeah that pic thing seems easy enough, just won't cooperate. I am so glad I found a home where there are so many people who are kind, caring, helpful, and so giving of time and love. You guys are just awesome. I will definitely check out the food lines you mention.
Sep 07, 2008
alohaot
idea for diet
Hello, my son has the same intolerance. He is only an infant but I am breastfeeding him. Anyway, I learnt to have the following foods : I use rice milk to subtitute milk in recipes for muffins, cookies etc. I also cook meat in the owen or in a crack pot in broth made of apple juice. The end results is not too bad. I add a little vinegar and brown sugar. Animals crackers sold in bulk at Walmart are also soy and milk free as well as cheerios (the real brand-original). I put apple sauce to thicken mashed potatoes. One of my favorite is pieces of chicken rolled in Corn Flakes and cooked in olive oil-that is a substitute for Chicken nuggets. Hope this helps.
Sep 07, 2008
alohaot
error on the diet-corn flakes
Sorry, I meant Bran Flakes (made of 100% wheat) for the chicken nuggets. Also, Melba has crackers that are 100% wheat -so soy free milk free.
Check with your
doctor first!