Posted By Posting
Sep 05, 2008
mom2adriane&morgan
Adriane Reese 05/16/07; seemingly healthy when born; diagnosed with MSPI, severe Reflux, Apnea, Ashtma, Epilepsy, and severe food allergies(rice, corn, milk, soy, eggs, oats, wheat, beef, chicken, squash, pumpkin, avocado, etc.);On apnea monitor, seems to be tolerating RCF w/carbohydrate mixed in; on Zyrtec, Xopenex, Prevacid
National Jewish Hospital CO
Does anyone have any experiences with this place? We are looking into some options to see if they can't connect or at least treat everything that A is dealing at the same time or at least in the same place. I have had a few people mention this place and were wondering if any of you know anything. Thanks, Amanda
Sep 05, 2008
molson1525
Mary & Nicholas 7-17-03 (non-refluxer)allergies, asthma on Singulair and Flovent & Aidan 1-28-07(my refluxer)Nissen Fundoplication on June 20, 2008, FTT, MSPI, DGE, ear tubes, allergies and severe GERD now currently taking just Prevacid and drinking Elecare Vanilla 1+.
I've never been but on all the allergy boards it is listed as one of the best. It has an incredibly long wait from what I hear. When I was in MN this summer there was a special on the news about a little girl who went there for constant allergy issues that all the best hospitals including the Mayo, U of M, etc. couldn't seem to figure out and they were able to help her in 6 weeks. They had to take her off of everything but elemental formula and do all these weird wraps to get her excema and hives under control and then re skin test her when she wasn't flaring and it really helped. It looked like a really cool place.
Sep 05, 2008
maiam
maia m - GERD. Nissen Fundoplication w/hiatal hernia repair.
Mom to
Son (10) GERD(aspiration pneumonias, apnea, tracheomalacia), Food allergy, Asthma
Daughter (6) GERD, Heart Murmur, Food Allergy, Asthma, Mold allergy
The moms on Kidswithfoodallergies.org rave about NJ. Especially if you are dealing w/ food allergy, asthma, eczema, etc. Best of luck.
Check with your
doctor first!