Posted By Posting
Sep 05, 2008
baby quinn's mommy
Mom to a 3 year old baby girl with severe reflux: g-tube, nissen fundoplication. dx: RAD, failure to thrive, DGE, epilepsy, sleep apnea, paraesohphogeal hernia, high lactic acid there's more "unknown disease"... Hospitalized 12 times, PT graduate! ST graduate! OT graduate! Current Meds: singulair, zopeonex, pulmicort, reglan, Keppra, Trileptal, vitamin B6, Veramyst. Current weight: 34 lb. Current height: 39". g-tube dependent, oxygen 1-2LpM all day and night PIC: Ms. Quinn
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Blah! Sounds respiratory
Quinn is sick. Blah! sounds respiratory. So far no fever. She has actually been very very cold. She just sounds quite junky and is choking on everything, not eating much and has very green boogies. Not cool with the nasal cannula in her nose during nap and nighttime. It's icky by morning! I'll take her in when she starts running a fever or starts wheezing really bad. Now would be a great time to get a pulse oximeter approved. UGH! Why is insurance such a B-word???? Good thing is that now she is a CCS case and so EVERYTHING is being transferred and forwarded to CCS so she should get approvals faster. Sometimes it is just so hard for me to believe how medically involved she is. I was talking to my BF's sister and she was asking me questions about Quinn and she just couldn't believe all that we have been through and all that she needs. It sort of puts daily life for us into another perspective. Things just become routine and she just looks and acts so good now that it's hard to soak in how sick she is or would be if she didn't need g-tube feeds, oxygen, and 8 daily meds to control all the symptoms of whatever it is that is torturing her body. Pray that this respiratory thing goes away on it's own. Either that or doesn't require a hospital stay. -Sarah
Sep 05, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
Oh boy! I sure do pray it doesn't require a hospital stay. You know what to do so you don't need advice, just hugs!
Sep 05, 2008
kmom
Worry Wart mom to
27 mo. reformed "happy spitter"
34.8lbs , 37in tall(oct)
Diagnosed A/R at 6 wks
Zantac until 1yr then Prevacid
Med free since February 08
peanut & egg allergies...still
Zoo Boo Trick-or-Treating (pic).
Sending boogie nixing vibes your way. Isn't it incredible the ability to just take everything in and function? You have just dealt with everything without thinking about it. Do what you have to do for your kiddo, right? When you take a minute to process it you probably wonder how you do it. I suggest you don't think about it too often. You'll get depressed. Rejoice in all that you have accomplished and all that Quinn has persevered through. You guys are two of the toughest cookies out there!
Sep 05, 2008
baby quinn's mommy
Mom to a 3 year old baby girl with severe reflux: g-tube, nissen fundoplication. dx: RAD, failure to thrive, DGE, epilepsy, sleep apnea, paraesohphogeal hernia, high lactic acid there's more "unknown disease"... Hospitalized 12 times, PT graduate! ST graduate! OT graduate! Current Meds: singulair, zopeonex, pulmicort, reglan, Keppra, Trileptal, vitamin B6, Veramyst. Current weight: 34 lb. Current height: 39". g-tube dependent, oxygen 1-2LpM all day and night PIC: Ms. Quinn
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Ack! It's definitely croup AGAIN!!!! WTF??? How often are kids really suppose to get croup? This is so frustrating!
Sep 05, 2008
molson1525
Mary & Nicholas 7-17-03 (non-refluxer)allergies, asthma on Singulair and Flovent & Aidan 1-28-07(my refluxer)Nissen Fundoplication on June 20, 2008, FTT, MSPI, DGE, ear tubes, allergies and severe GERD now currently taking just Prevacid and drinking Elecare Vanilla 1+.
Hey Sarah! Sorry to hear that Quinn isn't feeling good and that it turned into croup. Unfortunately, you will probably find that with asthma every little cold turns into croup or something more serious. It is just the way their crappy lungs function. Nick has had croup at least 3 times a year for the last 5 years. It is just a side effect of the disease. I hope you get that pulse-oximeter. Our pulmo gave us one for free at our last visit. I was so excited! Hang tough.
Sep 05, 2008
kmom
Worry Wart mom to
27 mo. reformed "happy spitter"
34.8lbs , 37in tall(oct)
Diagnosed A/R at 6 wks
Zantac until 1yr then Prevacid
Med free since February 08
peanut & egg allergies...still
Zoo Boo Trick-or-Treating (pic).
I think croup is inflamation of the throat. Some kids get it, some don't. From the web: Croup is characterized by a loud cough that may sound like the barking of a seal and may be accompanied by fast or difficult breathing and sometimes a grunting noise or wheezing while breathing. At first, a child may have cold symptoms like a stuffy or runny nose for a few days and may also have fever. As the upper airway (the lining of the windpipe and the voice box) becomes progressively inflamed and swollen, the child may become hoarse, with a harsh, barking cough.
Sep 05, 2008
kmom
Worry Wart mom to
27 mo. reformed "happy spitter"
34.8lbs , 37in tall(oct)
Diagnosed A/R at 6 wks
Zantac until 1yr then Prevacid
Med free since February 08
peanut & egg allergies...still
Zoo Boo Trick-or-Treating (pic).
Sorry...my point with the last post is that croup is a secondary symptom. My friend's 3 kids get croup with every cold/URI/etc. I imagine that it is very uncomfortable for Quinn.
Check with your
doctor first!