Posted By Posting
Sep 04, 2008
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
update on Cooper and me
Wow has it been busy on here. I can't catch up. Poor Cooper is sick. He has a yucky upper respitory infection. He looks just pitiful. I didn't take him to the pedi b/c I know exactly what they will say and I'm already doing it. I took him to the chiro today to get adjusted and he said keep doing what we were doing. He also reminded me that kids have to get colds from time to time in order to build their immune system. That was a nice reminder. He hasn't been sick in quite some time for him, probably about 2 mo. As for me and my boob, we are doing better. I am continuing the amoxcillin for the rest of the week. I also am doing the heat and massage. It is giving out milk today and is only slightly engoaged, but I am terrible sore. The deep massage has left the tissue very painful. My mom, a retired LLL leader (and a southern baptist) made me drink some wine yesterday. She said it will help me relax and help the milk come down. Not sure if it helped my milk but it did make me relax. I am having a glass now before bed in hopes to get some relief and rest. I will also sleep with cabbage in my bra. Considering I do not regularly drink, my one glass of wine has made me very sleepy, so I'm signing off for the night.
Sep 04, 2008
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
I remember being told over and over to drink a beer to increase milk production (but when I looked it up it looked like an old wives tale!!). makes sense that the wine helped you relax though. Glad you are getting some relief
Sep 05, 2008
Worry Wart mom to
27 mo. reformed "happy spitter"
34.8lbs , 37in tall(oct)
Diagnosed A/R at 6 wks
Zantac until 1yr then Prevacid
Med free since February 08
peanut & egg allergies...still
Zoo Boo Trick-or-Treating (pic).
Glad to hear you are feeling a little better. Poor Cooper. I am sure he would prefer not to build up his immunities, lol. I think of that when it's the 3rd time in a month I have been to the doctor!
Sep 05, 2008
Picture: This is what happens when you raise a kid on health food and they get ahold of a Coke! Bad mom, that soda is NOT on the reflux diet.
UPDATE: Isaiah is now 12 and off meds! He is doing great, eating again and hopefully will be catching up in the growing department. I am still in the "hoping it sticks" phase, but we're so happy that he's better!
Glad you're feeling a little better, but I'm sorry Cooper is sick! Prayers for a speedy recovery for both of you. (((hugs)))
Sep 05, 2008
PAGER Volunteer Services Coordinator
Melina 7/24/02 now reflux free!!
Ella 5/3/05 GERD, asthma, hypotonia, food intolerances, esophagitis, IBS //
Ava 5/3/05 asthma, food allergies
Pic: My girls! They are getting so big!
I will be praying you will recover to 100% quickly. I remember going through that when I was bfding the twins. OUCH!!! It was rough. I hope Cooper feels better soon. ((HUGS))
Check with your
doctor first!