Posted By Posting
Sep 04, 2008
bellamomma2
Maria (27), mommy of 2 beautiful boys with spwcial needs. Raymond (2) born preemie NICU stay. Diagnosed with mild CP, Severe Reflux, and Trachealmalasia. Currently off all meds and doing excellent!!! William (11 mos) Full term suffered from Apnea episodes, on heart monitor for 4 months. Diagnosed with Severe Reflux, Trachialmalasia, milk sensitivity and other foor allergies. Currently on Prevacid and Nutramigen formula, trying milk slowly...Off thickened liquids now and doing well.
Milk Trials
So we've been slowing trying to introduce Will to cows milk, per his Pedi's advice. She said he may have grown out of his lactose allergy. So we started small...last couple days we have been adding 1oz of cows milk to his day time bottles....so far so good. A tad crabby. This afternoon I tried 2oz of Nutramigen and 2oz of cows milk...within 15 min we had a puke-fest. :o( Is this even worth it??? Does he really need to switch to cows milk? I cant keep him on the Nutramigen forever, too many calories.... What would you guys do, maybe try rice milk or something else? I hate to put him through all this.... with the 'exorcist' style puking comes bad reflux flare ups. :o(
Sep 04, 2008
engin117
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including engi.nowaira.net, engi@nowaira.net, Engi@nowaira.us, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
If you try rice milk will u be adding anything for calories or nutrition. Meggy tolerated it beautifully, but because it hardly had calories or nutrition she was loosing weight. She also tolerated Goats milk quite well, but it is full of fat and hard on their kidneys. ( We found it with the other milk but almost impossible to see. It is about a quart size carton that is purple.) You could always try the lactose free cows milk if u think lactose is still a concern. Other wise just check your options and consult with pedi if they are of any help.
Sep 04, 2008
mollybeth
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
Yes, I was going to suggest the lactose free milk too. What about other milk products first, such as yogurt. How about soy milk? It is really up to you and what you what him to be on for the time being IMO. If he is eating other foods well, the cows milk isn't absolutely necessary at this time I wouldn't think. Our boys sound very similar. Hows your little guys stridor these days?
Sep 04, 2008
mommyto2
BRANDON-Zantac and Bethanacol; Neocate formula, 2 sets of ear tubes, Adnoids removed, Vasomotor Rhinits, Asthma. Currently on: Xyzal, Omnaris, Flovent and Xopenex,
AUBREY-Zegerid 2x a day, Soy Milk, Tubes put in and adnoids removed (11-7), Hypotonia, ECI therapy for low muscle tone throughout trunk and hips, oral motor issues and sensory integration issues, delayed speech, Teething, probiotics
PICTURE: Aubrey in her cute cat outfit. If you look you can see how her right foot turns in. She walks that way as well. It is not as exaggerated in the morning's but gets worse in the evenings. This was after her nap.
Photobucket
I was going to suggest soy first. We went to soy. VERY SLOW! Then after a successful soy intro we were to intro things MADE or cooked w/ dairy before going straight to dairy. Sure enough at almost 2 she does not tolerate dairy yet.
Sep 04, 2008
bellamomma2
Maria (27), mommy of 2 beautiful boys with spwcial needs. Raymond (2) born preemie NICU stay. Diagnosed with mild CP, Severe Reflux, and Trachealmalasia. Currently off all meds and doing excellent!!! William (11 mos) Full term suffered from Apnea episodes, on heart monitor for 4 months. Diagnosed with Severe Reflux, Trachialmalasia, milk sensitivity and other foor allergies. Currently on Prevacid and Nutramigen formula, trying milk slowly...Off thickened liquids now and doing well.
Soy is a no go, allergy to that as well...although the Nutramigen has trace Soy in it. (go figure) His breathing has greatly improved. Just a dull rattle sometimes after puking. Can cows milk cause a rash? I have noticed a light rash on his neck, back and chest...small light specks..not upraised.
Sep 05, 2008
mommyto2
BRANDON-Zantac and Bethanacol; Neocate formula, 2 sets of ear tubes, Adnoids removed, Vasomotor Rhinits, Asthma. Currently on: Xyzal, Omnaris, Flovent and Xopenex,
AUBREY-Zegerid 2x a day, Soy Milk, Tubes put in and adnoids removed (11-7), Hypotonia, ECI therapy for low muscle tone throughout trunk and hips, oral motor issues and sensory integration issues, delayed speech, Teething, probiotics
PICTURE: Aubrey in her cute cat outfit. If you look you can see how her right foot turns in. She walks that way as well. It is not as exaggerated in the morning's but gets worse in the evenings. This was after her nap.
Photobucket
I think it effects everyone differently. I have heard several saying a rash was a side effect.
Sep 05, 2008
mom2coy
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
actually, they can stay on formula until 2. And, formula has 20 cal per ounce while milk has 19 so not a difference really at all. you can try what we are doing.. i am switching coy over to "go and grow" which is a next-step formula to see if he can tolerate this for awhile and then we may go to milk @ 15 mo. when the spitting up hopefully slows down and he gets better @ eating solid foods. he's been on it for a few days now and i really havent noticed too much of a difference, except for hiccuping... he hates the taste tho. oh, and he was a huge, huge vomit/diarrhea king on milk and soy too!
Check with your
doctor first!