Posted By Posting
Sep 04, 2008
mommyto2
BRANDON-Zantac and Bethanacol; Neocate formula, 2 sets of ear tubes, Adnoids removed, Vasomotor Rhinits, Asthma. Currently on: Xyzal, Omnaris, Flovent and Xopenex,
AUBREY-Zegerid 2x a day, Soy Milk, Tubes put in and adnoids removed (11-7), Hypotonia, ECI therapy for low muscle tone throughout trunk and hips, oral motor issues and sensory integration issues, delayed speech, Teething, probiotics
PICTURE: Aubrey in her cute cat outfit. If you look you can see how her right foot turns in. She walks that way as well. It is not as exaggerated in the morning's but gets worse in the evenings. This was after her nap.
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Aubrey won't say anything related to food
For months Aubrey has been talking. Putting several words together and using new words. Well, we have NEVER been able to get her to say any words related to food-drink, cup, crackers-nothing food related. The other day she did say CHEESE when I was taking pictures. But here is the thing. She has never had cheese before so we have never used the word associated w/ food. Just when taking pics. It finally dawned on me yesterday. She isn't saying anything related to foods but it might be b/c of all the food issues she has had. I am not sure how we get around this but I am just wondering if she could already know how to associate food words w/ pain.

She had diarrhea for several days and now she is constipated and her bottom is broken out badly again. Ugh. When will the cycle ever end??? I monitor what she eats so I know she isn't getting anything she shouldn't. Why do we go from one extreme to the other???

Sep 04, 2008
molson1525
Mary & Nicholas 7-17-03 (non-refluxer)allergies, asthma on Singulair and Flovent & Aidan 1-28-07(my refluxer)Nissen Fundoplication on June 20, 2008, FTT, MSPI, DGE, ear tubes, allergies and severe GERD now currently taking just Prevacid and drinking Elecare Vanilla 1+.
I don't know about the food words but anything is possible. Does Aubrey take anything for constiption like Mirilax? The reason I ask is because it is pretty common to go back and forth from diarrhea to constipation with true constipation issues. What happens is it just builds up and up (the constipation) until the body just kind of reaches its max point and then bursts and then hence the diarrhea. So maybe using something like Mirilax consistently would break the cycle. The worry never ends does it? I swear someday I am not going to talk about poop.
Sep 04, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
You just never know how Jen. She could have learned that already. These girls are smarties. Maggie is finally saying more words. I think being with other kids so much helped.

Sorry about her hiney. wish I could help!

Sep 04, 2008
michelle&aurora
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
HUGS.

Honestly, I think it's probably just a coincidence. Kids will pick and choose which words they like to use, most often it's words they NEED, like mama, baba, dada, hi, no, etc. The rest they pick up in general conversation. I bet if you start giving her options at meal times, or ask her if she wants this or that, she'll eventually learn that she has to "tell" you which she prefers. Rory's answer is always "cheese". She still doesn't not say yes or no. Please is "cheese", keys is "cheese", sneeze is "cheese". :) I don't think you need to be worried. Sorry about the stupid diarrhea. Rory also has a burned bum from being off prevacid. HUGS

Sep 04, 2008
mom2coy
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
sorry about her bum :( it is interesting that she does not say any food related things but my mom likes to say how my brother barely talked until he was two.. and, he is really the smartest of us all. maybe its nothing. has the new PT guy come yet?
Sep 04, 2008
bigdaddy
Liz, mom to Donnie 12/2005
Surgery for Pyloric Stenosis at 5 weeks old
GERD since 4 weeks old
Colic until 13 weeks old
Delayed Gastric Emptying
MSPI
Surgery for Tubes and Adenoidectomy at 14 months old
Anemic since 9 month check
Febrile Seizures
Speech Therapy
MEDS: Zyrtec, Nasonex, Xopenex,
Vitamins with iron, and back on Prevacid as of 12/2008
That is really interesting. Donnie literally didn't say anything until he was 26 months old and then it was like he woke up one day and it all just came pouring out. I truly hope that it isn't that she associates food with pain. That is something I would definitely address with her therapist. Hope her bottom gets better too! -Liz
Sep 04, 2008
mommyto2
BRANDON-Zantac and Bethanacol; Neocate formula, 2 sets of ear tubes, Adnoids removed, Vasomotor Rhinits, Asthma. Currently on: Xyzal, Omnaris, Flovent and Xopenex,
AUBREY-Zegerid 2x a day, Soy Milk, Tubes put in and adnoids removed (11-7), Hypotonia, ECI therapy for low muscle tone throughout trunk and hips, oral motor issues and sensory integration issues, delayed speech, Teething, probiotics
PICTURE: Aubrey in her cute cat outfit. If you look you can see how her right foot turns in. She walks that way as well. It is not as exaggerated in the morning's but gets worse in the evenings. This was after her nap.
Photobucket
Her bottom is HORRIBLE tonight. We let her run naked and then did some malox and then ointment. Hopefully it will be better by morning. Poor girl says owe and pulls at her diaper. I forgot a dose of her meds, surely that would not have caused the burnt hiney would it? Who knows w/ these kids.
Sep 04, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
I'm so sorry! Sebastian goes back and forth between constipation and diarrhea, too, and I never know if I should stop the Miralax. If I do, he gets constipated again, and if I don't, he gets dairrhea on the tiniest of doeses. IT SUCKS. I'm not sure aobut the food words/pain association. God, I hope not! But I do hope her little butt heals SOON. Like tonight.
Sep 04, 2008
mollybeth
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
I'm so sorry. Hopeful she won't suffer with this too much longer.
Check with your
doctor first!